Author Topic: I could use some prayers, too...  (Read 5756 times)

Sue

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I could use some prayers, too...
« on: May 11, 2009, 05:56:27 pm »
Well, since you guys are so good with the prayers, I would appreciate whatever you can do for me.  This is a non-AN matter, but I'm scared, nonetheless.  I take generic Fosamax for osteoporosis.  I expressed my concerns to my doctor and he said that "jaw death" was rare.  I said, "Well, we all know that "rare" happens!"  I went off the drug for awhile, but my tests came back and he said...better take the drug, you are losing bone.  So I went back on it.  Now, wouldn't you just know it....I had a problem with a lower tooth and turns out, in January, I had to go to the endodonist because at the tip of an old root canal and I had some bone infection there.  Dentist knew about the fosamax stuff and said it was rare to have a problem.  Things were okay after he treated me, but now I have some tenderness in that gum area.  I'm terrified that something horrible is going on.  I'm going to the dentist tomorrow at 8 AM.  To add to my anxiety, my husband's dental plan doesn't cover anything but a regular root canal, and none of that procedure was covered.  I have no idea what is going to happen next (my imagination has me in the hospital with my jawbone being taken out!)...but I would appreciate good thoughts, a few prayers. divine intervention, kind words, whatever you can do.  I'm thinking all sorts of things, but mainly I'm just saying, "Oh Great, Just Freakin' Great!!"   And since I'm freaking out, I thought I'd turn to the best support group in the whole, wide world.  I need some massive huggles, that's for sure. :'( :'( :'( :'(

Freakin' out in Vancouver,
Sue


« Last Edit: May 11, 2009, 11:14:47 pm by Sue »
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

saralynn143

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Re: I could use some prayers, too...
« Reply #1 on: May 11, 2009, 06:21:55 pm »
Sue, of course we will pray for you. I happen to be a world-class worrier, so I turn a lot to Matthew 6. My husband and I even chose this for our wedding text.

Do Not Worry
 25"Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more important than food, and the body more important than clothes? 26Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27Who of you by worrying can add a single hour to his life?

 28"And why do you worry about clothes? See how the lilies of the field grow. They do not labor or spin. 29Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you, O you of little faith? 31So do not worry, saying, 'What shall we eat?' or 'What shall we drink?' or 'What shall we wear?' 32For the pagans run after all these things, and your heavenly Father knows that you need them. 33But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

I hope that you find this comforting.

Sara

« Last Edit: May 11, 2009, 06:53:36 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

SML

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Re: I could use some prayers, too...
« Reply #2 on: May 11, 2009, 06:39:27 pm »
Sue,

I'm sending you prayers, good thoughts and a million good wishes!
It’s my turn to put a hex on all things bad! Enough already! >:( I’m very sorry you have to deal with more!

Here is another prayer that you receive good news tomorrow. Please keep us posted.

Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

suboo73

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Re: I could use some prayers, too...
« Reply #3 on: May 11, 2009, 07:10:03 pm »
Dear Sue,

I will be thinking of you tomorrow morning on my way to work, saying prayers that all will be better after your doctor visit.
Please, think positive thoughts and know that we are all there with you.

As someone else on the forum always says, please stay strong!
Keep us posted of your progress.

Sincerely,
Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

sgerrard

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Re: I could use some prayers, too...
« Reply #4 on: May 11, 2009, 07:32:29 pm »
The best I can do is wish that it all dental in nature. I bet it is just another root canal issue, but that is just another brand of misery. :P

I hope it all ends soon.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Kaybo

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Re: I could use some prayers, too...
« Reply #5 on: May 11, 2009, 07:53:40 pm »
Sue~

Of course you will be in my prayers - tonight & tomorrow.  I know you will let us know whatever you find out.

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: I could use some prayers, too...
« Reply #6 on: May 11, 2009, 08:01:09 pm »
Sue .....

None of us need any more things to worry about!  I will certainly keep you in my prayers.  Like Steve, I cannot help but feel that this is going to be dental in nature ..... let's hope that is correct!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Sue

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Re: I could use some prayers, too...
« Reply #7 on: May 11, 2009, 08:11:23 pm »
Well, never thought I'd wish for a root canal! HA    :D

Thank you, thank you.  Knew I could count on you all for support.  I appreciate the scripture also.  Very sweet.  I may have to put that on the Fridge!  ;)

I'll let you know.  It's not the end of the world....it's just, you know...ANOTHER thing and "things" never come at a convenient time..if there is such a thing.

But I keep forgetting, I'm winning the lottery tonight! 

Thank you again, sweet ones.

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Kaybo

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Re: I could use some prayers, too...
« Reply #8 on: May 11, 2009, 08:12:42 pm »
you want me to pray for that too?   ::)

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Sue

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Re: I could use some prayers, too...
« Reply #9 on: May 11, 2009, 08:38:37 pm »
The Lottery?   Youbetcha!  HA   

Sue in The 'Couve
 ;D
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

wendysig

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Re: I could use some prayers, too...
« Reply #10 on: May 11, 2009, 09:22:07 pm »
Sue, 

You can count on my prayers for you too.  Root canal is bad enough but obviously ther eare worse things.  I hope eveyrthing works out okay.  And if I can't win the lottery myself, I hope you do!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Brendalu

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Re: I could use some prayers, too...
« Reply #11 on: May 12, 2009, 04:51:59 am »
Sue,
Prayer, good thoughts and lots of positive energy coming your way.  I am having bone grafts in my lower jaw.  Is that something you might benefit from?  I have a nine month course of treatment I am on from my dentist.  It is expensive, but necessary.  Keep us posted, we care.
Hugs,
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Sue

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Re: I could use some prayers, too...
« Reply #12 on: May 12, 2009, 09:52:55 am »
Hello Everyone,
 
Thank you so much for your kind support in my moment of dental anxiety!  I have good news to report!!  The dentist was very nice, told me not to worry about it because the x-ray shows that everything is okay.  It is slow to heal, probably because of the fosamax and possibly because I'm diabetic too.  There is a little scar tissue down there and that is making it a bit tender still.  The tender part is the point of entry when he did the bone repair in January.  He said I can come back anytime to have it checked.  So...it's okay, I'm okay....my visions of jaw replacement can go back into the closet and not come out again.  Ever.  And no charge for the visit or x-ray!  My kind of guy.  ;) ;D

Thanks guys.

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Kaybo

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Re: I could use some prayers, too...
« Reply #13 on: May 12, 2009, 10:17:44 am »
YEA!!  Great news!!  ;D 

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

GRACE1

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Re: I could use some prayers, too...
« Reply #14 on: May 12, 2009, 10:35:28 am »
Wonderful!! Yeah for you!!!

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16