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Author Topic: I still have my hearing!!!  (Read 4378 times)

MAlegant

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I still have my hearing!!!
« on: May 19, 2009, 12:20:21 pm »
Much to the amazement of my doctors, I passed my hearing test with flying colors.  Absolutely normal hearing in my right ear, same as before surgery.  I am so happy!  Makes the other issues take a back seat for the moment.  I'm quietly celebrating....
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

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Re: I still have my hearing!!!
« Reply #1 on: May 19, 2009, 12:28:53 pm »
Marci -

congratulations!  That is absolutely fantastic!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: I still have my hearing!!!
« Reply #2 on: May 19, 2009, 12:36:18 pm »
Marci, as you are quietly celebrating *shhhhhhhhhhhhh*... I'm going to let loose with a very, hearty....


CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

DLM4me

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Re: I still have my hearing!!!
« Reply #3 on: May 19, 2009, 01:11:14 pm »
How wonderful!  Congratulations.  ;D
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Middle fossa craniotomy 04/08/09, Drs Brackmann, Schwartz, et al, St Vincent/HEI in Los Angeles.

NancyMc

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Re: I still have my hearing!!!
« Reply #4 on: May 19, 2009, 02:11:24 pm »
How'd dey do dat?  That's some magic, for sure.  Have a glass of wine in Tuscany for me!
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

cindyj

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Re: I still have my hearing!!!
« Reply #5 on: May 19, 2009, 02:43:32 pm »
Just great, Marci!  So happy for you!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

NL

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Re: I still have my hearing!!!
« Reply #6 on: May 19, 2009, 04:10:34 pm »
Hey Marci,

That is SO fantastic! And all the better to listen to Italian opera. ;) Hope you have a wonderful summer program - and may the time pass VERY slowly.  ;D

Congrats!

Nancy L
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Jim Scott

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Re: I still have my hearing!!!
« Reply #7 on: May 19, 2009, 04:21:46 pm »
Marci  ~

Splendid news!  Thanks for sharing it with us.  ("can you hear me now?"  Yes!)  ;)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

texsooner

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Re: I still have my hearing!!!
« Reply #8 on: May 19, 2009, 04:46:57 pm »
Awesome news Marci....thanks for sharing. It's great to hear about good stuff like this.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Pooter

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Re: I still have my hearing!!!
« Reply #9 on: May 19, 2009, 04:55:13 pm »
Woo Woo!  Congrats, Marci!  That's great news!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

MissMolly

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Re: I still have my hearing!!!
« Reply #10 on: May 19, 2009, 05:35:36 pm »
That is co cool.  Congratulations to you!! 

Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

Lainie181818

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Re: I still have my hearing!!!
« Reply #11 on: May 19, 2009, 06:12:01 pm »
Thats great Marci, congratulations you are "stereo" again.
Lainie.
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Kate B

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Re: I still have my hearing!!!
« Reply #12 on: May 19, 2009, 08:09:52 pm »
That is music to my ears...
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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

stoneaxe

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Re: I still have my hearing!!!
« Reply #13 on: May 20, 2009, 12:00:21 am »
Wow!....such a simple thing that we take for granted. Very happy for you.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

suboo73

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Re: I still have my hearing!!!
« Reply #14 on: May 20, 2009, 04:01:07 am »
Marci, My best wishes for this WONDERFUL news!   :D
Enjoy the sites and sounds of Italy and everything else around you!

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W
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