Author Topic: Eye Care Video  (Read 8622 times)

Debbi

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Eye Care Video
« on: June 03, 2009, 04:09:19 pm »
I thought I would post this link to a video I just put up on YouTube on eye care.  I did this for a friend of my parents who woke up recently with bells palsy - I thought it was easier to demonstrate than explain in writing.  Then I thought - hey, this might help some folks here out too.  So, here it is (about 3 minutes)

http://www.youtube.com/watch?v=MXq0WW__e1g


Debbi
Also I am getting to post my new profile picture with my NEW HAT!!!  (Thanks Steve - you're the champion Knitter!)
« Last Edit: June 03, 2009, 04:13:47 pm by Debbi »
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: Eye Care Video
« Reply #1 on: June 03, 2009, 04:11:20 pm »
Debbi~
Just like I told you on Facebook - I think this is a great idea!!  So great to see you in "action!"

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

epodjn

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Re: Eye Care Video
« Reply #2 on: June 03, 2009, 04:58:22 pm »
Debbi,
What a good idea. And it was so fun to SEE you. You are a beautiful (inside and out).
Julie
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

texsooner

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Re: Eye Care Video
« Reply #3 on: June 03, 2009, 07:16:09 pm »
Great job Debbi. I wish someone had done that when I was starting out on the AN journey. For any newbies with dry eye, I can tell you that I do exactly as Debbi does with exactly the same products. I am almost 10 months post op and still do not produce tears in my AN side eye. I tried many different drops before settling on these.

I just had to show this to my family....it was good to get confirmation from someone else to see that I'm not the only one doing this every day.

Another thing to mention is that inside all of the boxes of Refresh Celluvisc that I've bought over the last 9 months, there's been a $3 coupon for the purchase of 2 future Refresh products. I always use these to buy more drops and lube.

Thanks again Debbi.

Patrick
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Joef

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Re: Eye Care Video
« Reply #4 on: June 04, 2009, 05:24:11 am »

Great Job!!
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Debbi

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Re: Eye Care Video
« Reply #5 on: June 04, 2009, 08:45:04 am »
Thanks for the comments!

Patrick, I agree - I wish I had found out the "magic" combination of drops and gel a lot sooner.  Seems that I spent the first few months buying endless eye care products that just didn't work for me.  I do still try some of the lighter drops from time to time, but they just don't work for more than about 10 minutes.

Well, hopefully this will help some of the newbies to find a solution that works. 

BTW, the Refresh website also has some down loadable  coupons.  The drops aren't cheap, so I always use coupons when I am stocking up. 
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Jim Scott

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Re: Eye Care Video
« Reply #6 on: June 04, 2009, 03:14:54 pm »
Debbi ~

Good job!   :)

It's encouraging to see you stepping out and attempting to spread useful information via Youtube.  You look good and your video is interesting and definitely informative for anyone dealing with dry eye, be they AN post-op patients or otherwise.  Kudos for your effort!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sgerrard

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Re: Eye Care Video
« Reply #7 on: June 05, 2009, 07:54:55 am »
Well, I enjoyed the eye drop video as much as I could, although for some reason eye drops don't get me very excited.

I do, however, like your new picture, Debbi. The hat looks great!  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Debbi

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Re: Eye Care Video
« Reply #8 on: June 05, 2009, 01:22:14 pm »
Steve - well of course the hat looks FANTASTIC!!  It was knitted by an extremely talented guy - maybe you know him????

Jim - thanks for the kind words.  I am still a newbie to YouTube, but was surprised how easy it actually was.  I even posted the video on my AN blog - I'm feeling like quite the computer geek these days!
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

epodjn

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Re: Eye Care Video
« Reply #9 on: June 05, 2009, 07:00:23 pm »
I bought the celluvisc and like it. Just one question though, can you put the already opened and then resealed vials in your pocket or do they leak?? Woudn't want that to happen, they ar a little pricey!
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

texsooner

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Re: Eye Care Video
« Reply #10 on: June 05, 2009, 09:10:21 pm »
I carry a few in my pocket every day(for the last 9 months)....no leaks yet. Just make sure it's snapped back on really well.

Patrick
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

epodjn

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Re: Eye Care Video
« Reply #11 on: June 05, 2009, 09:30:57 pm »
Thanks, good timing. We are going away for a few days and I will be outside a lot and you know what that does to your eye. I do have a disposable moisture chamber that I use to but hate the stares so I only wear it when I have to. But we are going to an outdoor theater so that might not be a choice. Does anyone know where I can get more. I've looked online at the moisture chambers but they are always for both eyes. Also, I wear glasses (can't wear contacs without a blink, darn it) so I like the disposable one because it fits under my glasses. Or does anyone else have anything that works for them???
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

saralynn143

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Re: Eye Care Video
« Reply #12 on: June 06, 2009, 06:17:49 am »
Thanks, good timing. We are going away for a few days and I will be outside a lot and you know what that does to your eye. I do have a disposable moisture chamber that I use to but hate the stares so I only wear it when I have to. But we are going to an outdoor theater so that might not be a choice. Does anyone know where I can get more. I've looked online at the moisture chambers but they are always for both eyes. Also, I wear glasses (can't wear contacs without a blink, darn it) so I like the disposable one because it fits under my glasses. Or does anyone else have anything that works for them???

epodjn -

The "clear pirate patch" that my facial nerve specialist gave me came in a box marked Pro-Optics, Inc., 317 Woodwork Ln, Palatine, IL 60067.  I could not find a website, but their phone is 847-991-2020 and their fax is 847-991-9696.

Alternatively, you might look at the dry eye goggles at 7eye (www.7eye.com). I believe that you can have your own prescription lenses put into some of these frames. Alternatively, visit a local Harley shop and see if some of their motorcycle goggles will fit over glasses.

Good luck.
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

nancyann

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Re: Eye Care Video
« Reply #13 on: June 06, 2009, 08:11:40 am »
Wonderful video Debbi - thank you for sharing !
Always good thoughts,  Nancy

ps:  I never knew you can recap the vial !(I just did it).    I would hang it over my tissue box at work, my end table at home,
much easier with the cap back on - & I can put it in my suit pocket or jeans ! !
« Last Edit: June 06, 2009, 03:05:20 pm by nancyann »
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

wendysig

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Re: Eye Care Video
« Reply #14 on: June 07, 2009, 11:50:31 pm »
Debbi - 

Truly a very helpful video and so nice of you to share yoiur knowledge through experience with everyone else.  I'm sure it will help many people avoid the trial and error phase you went through.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!