Author Topic: Fingers crossed I "MAY" get my surgery date moved up.  (Read 18132 times)

SML

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #30 on: June 13, 2009, 11:38:35 am »
Hi Bob,

Rich and I also want to send our good wishes your way. It will be good to have the surgery behind you with only thoughts of clear sailing/paddleboarding days ahead!

Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

stoneaxe

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #31 on: June 14, 2009, 10:58:26 am »
Thanks all, I can't wait to have this behind me.

Keri...the 15 miles was put aside in favor of 4.5 hours of some of the best surfing I've seen in awhile. I was hoping for some good surf before surgery for the last two weeks but its been poor to mediocre at best. The forecast for yesterday was more of the same with small waves and onshore winds predicted. I decided to go down to the Cape anyway since a long paddle along the coast means seeing seals and whales which adds to the enjoyment.

I was very enjoyably surprised when i called my friend Shawn while on the way down and he said to get my butt down there...the surf was firing, shoulder to head high waves and glassy perfection. I surfed Nauset beach until I couldn't paddle anymore....absolute blissful exhaustion. To top it off because the forecast was off there were no crowds. I lost count of how many waves I surfed. And to really put the icing on the cake...for about an hour i was out all alone, just me and the seals, and for some reason the seals are way more curious than ever before. I had one pair following me for awhile. I thought for sure the male was going to grab my leash. I also had a pod of about 30 pilot whales swim by just outside the break...a couple of them coming within 50' of me. A great day to think back on over the next couple of months.

Days like yesterday are what my mantra is all about... ;D

Thanks again,
Bob
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

Keri

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #32 on: June 14, 2009, 11:06:50 am »
What a great time! I'd be a little bit freaked out at first with all those things in the water with me, but it does sound amazing and fun. I'm so glad you got to have such a great time / experience before you're surgery. That's hard to beat!

Keri

1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Adrienne

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #33 on: June 14, 2009, 01:23:37 pm »
Wow, how incredible Bob!  That sure IS a day to remember!

Adrienne
3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

CHD63

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #34 on: June 14, 2009, 03:36:50 pm »
Bob .....

That sounds almost surreal ...... and what a wonderful gift to you just before surgery!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

stoneaxe

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #35 on: June 14, 2009, 11:21:12 pm »
The seals are always there but the last couple of times out they have been more curious than normal. The whales I see occasionally..although I saw that same pod of pilots just the day before (one of them had a very distinct chunk missing from his dorsal). Must be a lot of food in the water. I also saw a seal catch a fish right next to my board in about 3' of crystal clear water. I saw him coming from about 30' away and moving fast then I noticed the fish just before he caught it about 4' from the side of my board...good sized fish too...I think it was a bluefish or maybe a schoolie striper. The seal made a sharp 90 degree turn just leaving scales in his wake.

As if all that wasn't enough...I'm not sure anyone has done this before. I just posted this as a question on a standup forum I belong to. The first time it happened was by mistake. It's a sand bar break about 100 yards off a steep beach. After catching one of the bigger waves, head high or so, I was paddling back out and all of a sudden I was on a wave....going in the wrong direction! I was on the rebound of the wave I had surfed in. It caught me by surprise so when it met with the wave coming in I was launched...5' in the air. After that I started looking for it on the bigger waves that I rode in close to the beach. I managed to catch 3 more and was flying over the reform and whitewater. I could actually ride it over 2 or 3 incoming waves depending on how big they were. What a blast!.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

NancyMc

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #36 on: June 15, 2009, 09:53:37 am »
I thought I told you to be careful out there, Bob.  You're gonna make us all crazy with worry!  ;)
Had a bear here yesterday and saw a bull moose and snapping turtle on the side of the road Friday.  Twin eagle chicks are getting ready to fledge.  I'll PM the bear photo so this doesn't become a wildlife thread.
Getting close, kiddo.  When's pre-op again?  Or did you do it last week?
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Keri

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #37 on: June 15, 2009, 11:52:03 am »
gee, and i used to get impressed that i saw deer and squirrels everyday out my back door!

nancy that was funny what you said about the wildlife thread!

and bob, you're scaring me a little too! do you ever get scared of sharks?

1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

elliemae

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #38 on: June 15, 2009, 12:11:05 pm »
Hi, Bob
Wow ... Bob, you never stop! 

Wishing you the best of luck on Wed! 
You'll be out with the surf and seals and what-not soon hopefully!
Elaine

stoneaxe

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #39 on: June 15, 2009, 02:13:12 pm »
Nothing really to worry about...lots of fun and a fall is just a big splash....well maybe a couple of bruises here and there too... ;)

Your worried about me and you're taking pictures of bears.....you know...you only have to be able to run faster than the person your with.... ::)

I'm more worried about the people driving cars while I'm going to and from the beach than I am of sharks.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

stoneaxe

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #40 on: June 15, 2009, 04:13:20 pm »
Ooops...missed your question earlier. Pre-op is actually tomorrow.

Hehe...I've been exercising my face.....only alone of course... ;D. Trying to help hardwire things...figure it can't hurt.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

moe

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #41 on: June 15, 2009, 05:46:12 pm »
Good luck with pre op.
You're getting there, and what a treat you had with the water and seals!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jeepers

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #42 on: June 16, 2009, 04:47:11 am »
Good luck, tomorrow, Bob!  I'm looking forward to your post-op report  :)
Diagnosed 2003-right side-1cm AN
Wait and watch for 6 yrs; 2009 showed growth w/balance issues
Translab 7/9/09 - Drs. Battista/Kazan (Hinsdale IL); SSD
Recovering well!

leapyrtwins

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #43 on: June 16, 2009, 05:55:47 am »
Good luck, Bob.

My thoughts and prayers are with you.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

NancyMc

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Re: Fingers crossed I "MAY" get my surgery date moved up.
« Reply #44 on: June 16, 2009, 09:28:38 am »
Good luck!  What did you . . . oops . . . Sue bake?
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness