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Author Topic: Stoneaxe's Update  (Read 48796 times)

stoneaxe

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Re: Stoneaxe's Update
« Reply #210 on: September 23, 2009, 06:50:23 am »
Hehe...my ears are always ringing...does that mean someone is always talking about me?... ::)

I'm happy my recovery has inspired some folks. I just wish everyone could have the same good fortune. I understand all to well how the bad days can get you down.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

Keri

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Re: Stoneaxe's Update
« Reply #211 on: September 24, 2009, 06:34:16 am »
Hi Bob,
Glad to hear things are good and always getting better!
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

leapyrtwins

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Re: Stoneaxe's Update
« Reply #212 on: September 24, 2009, 06:39:50 am »
Incredible profile picture, Bob.

Is this pre or post op?

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Stoneaxe's Update
« Reply #213 on: September 24, 2009, 07:39:32 am »
Hehe...that picture is pre-op and its also photoshopped. It's a combination of a drawing I did of Hokusai's "Great Wave of Kanagawa" and a picture of me. That said, I am surfing again, was out last Friday and had a blast....haven't had a chance to get on any really big waves yet but that's only because there hasn't been any since the docs said I could get back on the water. I did a 10 mile paddle yesterday in heavy winds and felt great. Life is good.... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

leapyrtwins

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Re: Stoneaxe's Update
« Reply #214 on: September 24, 2009, 08:07:47 am »
Actually you changed the picture!  Although I love this one, the one I was asking about was you with water crashing down all around you - looked like you were inside a huge wave.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Stoneaxe's Update
« Reply #215 on: September 24, 2009, 07:02:55 pm »
Oh!...you mean this one.


That is pre-op last Feb. in Maui. Nice 4-5' waves with my brother at Kanaha beach. Very fun day.
« Last Edit: September 24, 2009, 07:04:38 pm by stoneaxe »
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

NancyMc

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Re: Stoneaxe's Update
« Reply #216 on: September 25, 2009, 06:23:21 am »
That's crazy.  How'd you do dat?
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Adrienne

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Re: Stoneaxe's Update
« Reply #217 on: September 25, 2009, 01:11:18 pm »
That is an AMAZING picture!  LOVE it.  Hope you have it up somewhere in your house.  If it were me, I'd love to look at it!
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3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

nancyann

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Re: Stoneaxe's Update
« Reply #218 on: September 25, 2009, 04:21:15 pm »
I couldn't have stood up to that wave, I'd have dove under it ! !
I've been afraid to brave the ocean - maybe I'll give it a try !   I loved body surfing.
Now it's swimming in the condo pool, but exercise is exercise !

Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

leapyrtwins

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Re: Stoneaxe's Update
« Reply #219 on: September 25, 2009, 09:39:31 pm »
Yep!  That's the picture!  ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Stoneaxe's Update
« Reply #220 on: September 25, 2009, 10:02:15 pm »
You'll notice the horizon is in the bottom right corner. I have a Go Pro camera attached to my paddle. It shoots a picture every 2 secs. You're bound to get some that are pretty interesting. I remember that fall well. I was flying along and caught the edge at the top of the wave....did a half sumersault into the water.....notice the nice hole my head is making.... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

4cm in Pacific Northwest

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Re: Stoneaxe's Update
« Reply #221 on: September 26, 2009, 08:14:14 am »
You'll notice that this post is now over 3000 reads. 8)

I think you inspire others!!! ;)

Keep enjoying life... more photos?...

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

stoneaxe

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Re: Stoneaxe's Update
« Reply #222 on: October 19, 2009, 10:44:46 pm »
5 months post-surgery. Went to see Dr McKenna today. He's very pleased with the progress of my face. Getting better all the time. He did suggest I make an appointment with facial therapy to help mitigate potential for synkenisis that is showing up (tears instead of saliva when eating) no muscle synkenisis yet but then I don't have much movement yet, just return of tone.
Other than the minor facial issues everything is great. Also went paddlesurfing today in wild wind and waves (6'+ waves with 2-3' chop mixed in and 15-20 mph winds) and had a blast. Quite a few falls but even folks with full function would have had a hard time of it today.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

ppearl214

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Re: Stoneaxe's Update
« Reply #223 on: October 20, 2009, 05:57:40 am »
Bob

Me thinks we need to celebrate your follow up! :)  "Day by day, inch by inch...."....... and you still be riding them waves! Well done!

See ya Sunday!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

another NY postie

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Re: Stoneaxe's Update
« Reply #224 on: October 20, 2009, 07:45:46 am »
Bob, that photo is unbelievable!  You should enter it in a photo contest.  I wanted to add that I read your other 15 page post on paddleboarding under Balance the other day and was blown away by it.  I watched the videos....I showed my children...truly inspiring.  I actually went and found a place that gives lessons near Cape May, NJ where we vacation and am planning on trying it next summer.  I also live right next to to two rivers - one being the Hudson River which I don't think I will try but the other is small and we all swim in it and I think I can do this there!  So I am yet another ANer truly inspired by you and your balance post surgery! Keep posting those photos for us to enjoy.
Cheryl
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'
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