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Author Topic: this week (6/21) in the dichotomic week of AN  (Read 3735 times)

Keri

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this week (6/21) in the dichotomic week of AN
« on: June 21, 2009, 10:31:58 pm »
Hello,
Happy Father's Day to all papas!

I'm running a bit late as usual (I like to post this before the stroke of midnight, EST). Guess I'll now turn into a pumpkin.

This week's adjective credit goes to Rich56 (Scarlett's other half). Jim can explain it, because he inspired it. It's a good word. Thank you, Rich!

Here's what's up:
MONDAY is a busy day for surgery - there are 3:

MissMolly is at MGH (I think she went on a steroid induced baking spree for her doctors under advisement from Nancy Mc and Stoneax Bob's wife). Her husband, Steve will update.

Donna R is having retro in Philly at Jefferson Hospital. Her husband, Pat will be updating.

Best wishes to you both! We look forward to hearing from you as posties.

Cindy (clr) has posted a couple of threads about her daughter, Betsy. Betsy is 23 and will be having her 3rd surgery tomorrow (Pittsburgh). She had a very large tumor (4 cm+) and we hope and pray for complete removal tomorrow. I hope this will be the last.... Please keep us updated on Betsy's status, Cindy.

MRI's - Wendy will have her 1 year MRI - we hope it's all clear, Wendy!

TUESDAY:
Susan will have her MRI review. Again, we hope all is clear.

WEDNESDAY:
Melissa778 BAHA - now I"m not sure which stage of BAHA... surgery? Processor? I also hope all is well after the episode of gauze in her ear.  We wish you the best, Melissa.

THURSDAY:
Patty (alwaysthere) will be having retro in Rochester, MN. She is travelling now (early this week) and may not get to post before surgery. I hope it goes really well, Patty!

Julie (epodjn) will have lateral tarsorrhaphy. We hope this is successful for you, Julie (I'm not very familiar with this).

Greg (grega) will have a MRI follow up (post 4 1/2 years). We hope there's no problems, Greg.

FRIDAY:
cin605's 1 year surgery anniversary. Happy anniversary!

From last week's surgery's:
I think Bob (stoneaxe) is home and recovering and contemplating when he's going to go paddle boarding / surfing again. Everyone agreed that he looks better than Brad Pitt in his post op pics!

Greg M has posted about his GK in the radiosurgery section. We hope you both have good continued recoveries.

Have a good week.
Keri
« Last Edit: June 21, 2009, 11:02:56 pm by Keri »
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

stoneaxe

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Re: this week (6/21) in the dichotomic week of AN
« Reply #1 on: June 21, 2009, 10:58:02 pm »
Wow...busy week. Best of luck all. Good job Keri.

Sorry for the short post...a little tired. Very happy father's day though... ;D ;D ;D

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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

Keri

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Re: this week (6/21) in the dichotomic week of AN
« Reply #2 on: June 21, 2009, 11:01:47 pm »
why are you up so late, bob? you're supposed to be tired!

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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Rich56

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Re: this week (6/21) in the dichotomic week of AN
« Reply #3 on: June 21, 2009, 11:08:06 pm »
The word, dichotomy comes from our own Jim.  Donna R wrote “Well, here I am six days until the 22nd...I'm very anxious, nervous, scared...but at the same timeâ€? and Jim’s response was “The dichotomy between AN patient's pre-surgery anxiety and a sense of relief is common and quite naturalâ€?.  As usual, Jim sent me back to the dictionary ;D

Our thoughts and prayers are with you and your families MissMolly, Donna R, Betsy, Brian, Patty, and Julie.  Best wishes for successful surgeries.

Best wishes to Wendy, Susan, Greg on clear MRI results,

Melissa, best wishes on your BAHA procedure.

Congratulations to cin605 on your one year anniversary.

Welcome home Bob!

Thanks again Keri for this weeks review.

Our best to LADavid!

Rich and Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

sgerrard

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Re: this week (6/21) in the dichotomic week of AN
« Reply #4 on: June 21, 2009, 11:26:04 pm »
Quote from: Keri on June 21, 2009, 10:31:58 pm
Here's what's up:
MONDAY is a busy day for surgery - there are 3:

Actually 4: Brian (BBrock) posted that he has surgery tomorrow at U. of Washington (he is in the Coast Guard there).

Best to all,

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

suboo73

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Re: this week (6/21) in the dichotomic week of AN
« Reply #5 on: June 22, 2009, 04:27:22 am »
Keri, 

Thank you for the update - what a busy week!

Prayers and best wishes for those having surgery:  Molly, Donna, Betsy, Patty, Julie and Brian.
And to their families - stay strong and remember the first three days after surgery do not count.

Greg & Susan - good luck in the TOG.  May your MRIs be clear!

Melissa - best wishes with your BAHA!

Sincerely,
Sue


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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

tenai98

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Re: this week (6/21) in the dichotomic week of AN
« Reply #6 on: June 22, 2009, 05:09:56 am »
I'm glad I keep a dictionary by the pc.

Good luck to all those facing treatment.

Best Wishes for those going in the TOG

JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

ppearl214

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Re: this week (6/21) in the dichotomic week of AN
« Reply #7 on: June 22, 2009, 05:39:34 am »
A very busy week indeed.  I send my wellness wishes and healing hugglez to all those having treatments and follow ups this week... I'd also like to add another to the list as well. "Amy" is having Chiari surgery this Thursday, so special wellness wishes her way as well. She has family that participates on this forum.  My pirate sox will be on Thursday for her as well as for everyone else.

Be well, all!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Melissa778

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Re: this week (6/21) in the dichotomic week of AN
« Reply #8 on: June 22, 2009, 06:15:14 am »
BAHA delayed until October, I forgot to update the calendar * ;) 

Well wishes to all having procedures this week!  :)

Melissa


* I removed your scheduled BAHA event from the calendar.  J.S.
« Last Edit: June 22, 2009, 01:39:52 pm by Jim Scott »
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1.6cm X 1.6cm diagnosed Jan 30 2008
Translab Surgery scheduled for May 15th with Surgery went well, got ALMOST all of it.
GK to zap the rest on 10/22/08
2010 MRI showed no new growth tumor measuring at that time at 1.1 x .4
2011 Holding steady
2012 new growth 1.7 x .7 :( :(

Kaybo

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Re: this week (6/21) in the dichotomic week of AN
« Reply #9 on: June 22, 2009, 06:23:01 am »
Good luck & prayers to everyone!  Wonderful job, Keri!  Melissa - how are you feeling these days??

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Keri

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Re: this week (6/21) in the dichotomic week of AN
« Reply #10 on: June 22, 2009, 07:26:16 am »
Best wishes to Amy and Brian, who I didn't add to the list of surgeries this week. Thank you to Steve and Phyl for adding them to the list.

Also, when I was giving a quick update on Bob Stoneaxe's progress and also Greg M's GK, I didn't mention Pam (her husband is BSharpintexas). I just read up on them; Pam unfortunately had a CSF leak but is doing better and hopefully going home Tuesday!

Keri

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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

CHD63

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Re: this week (6/21) in the dichotomic week of AN
« Reply #11 on: June 22, 2009, 07:27:07 am »
WOW, it seems like June is the month for AN treatments!  Best wishes for all having procedures done this week.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: this week (6/21) in the dichotomic week of AN
« Reply #12 on: June 22, 2009, 07:56:53 am »
Keri ~

Thanks once again for this weeks update.  Dichotomy is a useful word to describe conflicting emotions, i.e. excited but scared.  It also describes some of this weeks AN events, I guess.

My thoughts and prayers go out to all of the surgery patients.  May you each have a successful, uncomplicated surgery and a swift recovery.  I'm sure Wendy's MRI will be clear and I'm equally sanguine about Susan's MRI review.  I'm quite confident Bob (stoneaxe) will continue his recovery at full bore.  I also trust that Greg M.'s radiation recovery will continue apace.  My very best wishes to Julie on her lateral tarsorrhaphy and for Grega's follow-up MRI scan results.  Oh, and happy 1-year anniversary, cin605!  :)  Sorry if I overlooked anyone. 

My son made my Father's Day quite pleasant, as I expected he would.  I hope all the other fathers had a similar experience. 

Jim
« Last Edit: June 22, 2009, 01:34:30 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NancyMc

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Re: this week (6/21) in the dichotomic week of AN
« Reply #13 on: June 22, 2009, 08:22:51 am »
Best wishes to all!
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

grega

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Re: this week (6/21) in the dichotomic week of AN
« Reply #14 on: June 22, 2009, 12:40:34 pm »
Thanks Keri for staying up so late to assemble that list!  Means a lot!

And thanks for all the well-wishes on my upcoming visit to the TOG.  Gee, this is better than having your name in lights, which, if that ever happens, I'll think of this day and all you fine folks as a more memorable experience :D

All the best to those on this week's list!

Greg
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1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"
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