« previous next »
Pages: 1 ... 3 4 [5] 6

Author Topic: If you are on Facebook..............  (Read 27098 times)

Cheryl R

  • Hero Member
  • *****
  • Posts: 1824
Re: If you are on Facebook..............
« Reply #60 on: August 23, 2009, 12:25:36 pm »
Very good idea,Steve!     Plus somehow at a time where all could come and not among the small sessions where we are here and there and not wanting to miss some info.                               Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

  • Hero Member
  • *****
  • Posts: 3235
  • Life is good again!!
Re: If you are on Facebook..............
« Reply #61 on: August 23, 2009, 12:34:19 pm »
This is probably "off topic" for this Facebook thread, but ..... I agree that there was much miscommunication on when the "forumites" were gathering at the symposium, mainly because of all of our hearing deficits.  I, as well, vote for a specific gathering of Forum participants next time ...... in as quiet a place, as possible.  Background noise, such as "quiet" music, other conversations, or even air conditioning systems are deadly for me.

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: If you are on Facebook..............
« Reply #62 on: August 23, 2009, 12:46:07 pm »
I think that on the "OFF" year for the Symposium, that we should all meet up somewhere, just to have fun...like maybe Lori's at the beach!!

K   ;D
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: If you are on Facebook..............
« Reply #63 on: August 23, 2009, 12:52:44 pm »
Quote from: sgerrard on August 23, 2009, 11:18:31 am
I think we should try and get a forum workshop scheduled at the next symposium. It would a chance for the forumites to gather, and also for other attendees to come see what the forum is about. We might even get a doctor or two to come and see that the Internet is not all bad.

Steve -

this is an excellent idea.  Perhaps the moderators could approach Judy V @ the ANA about this for 2011?  We could even offer to have the forum members sponsor it - if there is enough interest.  I was a sponsor of the 2009 symposium - mainly because I felt it was a great cause and it was in Chicago - but I'm also giving serious thought to sponsoring in 2011 also.

Kaybo -

count me in on the beach idea - I'll start saving my money for airfare now.  Think Lori has enough room for all of us???  :D

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Migoi

  • Full Member
  • ***
  • Posts: 116
  • Loving life as a hill dweller.
    • Migoi's Mumblings
Re: If you are on Facebook..............
« Reply #64 on: August 23, 2009, 06:02:24 pm »
I could go for a trip to the beach.

..take care... tim b
Logged
Arkansas Support Group Leader
The wild places are where we began. When they are gone, so are we. - D.B.
AN's only affect the smartest, most interesting people in a population.
On a hill in Onda, AR
http://www.facebook.com/migoi

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
Re: If you are on Facebook..............
« Reply #65 on: August 23, 2009, 08:22:56 pm »
Beach! Beach! BEACH!!

Captain Gidget
Logged
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: If you are on Facebook..............
« Reply #66 on: August 23, 2009, 09:48:50 pm »
Captain Gidget!  LOL  :D  :D   :D
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

  • Hero Member
  • *****
  • Posts: 1025
Re: If you are on Facebook..............
« Reply #67 on: August 23, 2009, 09:53:49 pm »
I too could go for a forumite get together. Especially around the mid Atlantic part of the country!

Logged
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

grega

  • Sr. Member
  • ****
  • Posts: 318
Re: If you are on Facebook..............
« Reply #68 on: August 26, 2009, 07:11:35 am »
Ditto to Keri, Capt Gidget, Tim, Jan & Kay !!!!!!!!!!!!!!!!!  ;D ;D ;D ;D

Greg
Logged
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

cindyj

  • Hero Member
  • *****
  • Posts: 1434
Re: If you are on Facebook..............
« Reply #69 on: September 08, 2009, 02:37:48 pm »
Hey, all!  As some of you have seen, 'cause we're now "friends" I am finally on FB.  However, I don't know what I'm doing, don't understand most of it and haven't taken the time to figure it out.  I will, though!  But, in the meantime, sorry if I'm ignoring anyone or anything that you have sent to me.  I'm overwhelmed at the moment :o  Farmthings, pillow fights, hearts, food fights!  What in the world!  Crazy!  I'll consult the boys about it at some point  ;D  they, of course, do know what they're doing!

See you over there,

Cindy

PS - count me in for any beach trip...
Logged
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: If you are on Facebook..............
« Reply #70 on: September 08, 2009, 02:44:36 pm »
I'm with Cindy on this one... I'm on FB (against my better judgement) and mostly family and AN'ers and yes, my school chums from yearrrrrrrrrrrrs gone by have me as friends there.  Have no clue how to poke, play Mafia Wars, pass a drink/flower/game, etc.  Don't ask to "chat" with me there cuz it blows up my home computer but if you post on my wall/webpage, whatever they call it, pls keep it clean..... the youngins in my family see it.

Barely there but some of you have found me there..... oy. :)

Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Joef

  • Hero Member
  • *****
  • Posts: 1345
  • ** I rather be Kayak Fishing **
Re: If you are on Facebook..............
« Reply #71 on: September 08, 2009, 02:53:23 pm »

Actually.... I've been playing the Pirate game..... ;)... darn addicting....
Logged
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: If you are on Facebook..............
« Reply #72 on: September 08, 2009, 03:05:43 pm »
Quote from: Joef on September 08, 2009, 02:53:23 pm

Actually.... I've been playing the Pirate game..... ;)... darn addicting....

link please.. for the Captn since she's out there as well. :D
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Joef

  • Hero Member
  • *****
  • Posts: 1345
  • ** I rather be Kayak Fishing **
Re: If you are on Facebook..............
« Reply #73 on: September 08, 2009, 03:12:15 pm »

try this: http://apps.facebook.com/piratesrule/

of course you have to be in FB for this to work....
Logged
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

mindyandy

  • Hero Member
  • *****
  • Posts: 681
  • Loving Life
Re: If you are on Facebook..............
« Reply #74 on: January 26, 2012, 11:10:08 am »
My FB is Mindy Todd  ;D
Logged
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012
Pages: 1 ... 3 4 [5] 6
« previous next »