or maybe just a bit depressed ... sometimes I'm not sure anymore
I have my headaches under pretty good control since starting lyrica and working to get the dose and timing right and
thought once that happened I would be able to cope with everything else ... the ringing in deaf ear the roaring in hearing
ear dizzy spells etc ... and most of the time I do and function well ... I just finished a week of directing Girl Scout Day Camp
with no major issues arising ... my kids seem well adjusted to the little changes we have made in routines since my surgery
almost 2 years ago (2 years on Thursday)
but lately I am at loose ends when things aren't right ... I went a little nuts last year when I met my one year anniversary
and I am hoping that this is just an anniversary bump I have hit ... my memory sucks ...I used to have a dozen lists in my
head and get everything on each one done ...now I write a list and forget to carry it or lose it all together... and I am so
easily distracted I almost burnt the House down last week ... I can't stay on task without someone else around that knows
what I am suppose to do to push me back in line ...I got through Day Camp with an assistant that made the schedule and
posted copies everywhere so I would always be where I was suppose to be ...most of my time was spent in the craft area
since that is my specialty and didn't have many problems there...
Tuesday when we got home I had several things do get ready for the next day ...I had made list during camp of request
people had so I could run by Walmart before camp started and pick stuff up since I have the one and only check book for camp...
I put the list on the fridge ...
one thing was someone asked if I had found her something to make a
SWAPS (
S pecial
W hatchamacallits
A ffectionately
P inned
S omewhere ) that looked like a record ...we had a music theme ...anyway , she needed
them by Friday ...I bought a pack of poker chips and was going to spray paint them black and give them those little reinforcements
for holes in paper to stick to the center as labels and a pin back ...I had everything she needed and just had to paint the poker chips ...
I had put a pan of Chinese dumplings on the stove ... the were simmering ... I go out front door and head out back to get a scrap of
plywood to lay on the porch to paint them ... as I am headed for wood scrap pile the chickens ran to the fence wanting fresh mowed
grass ...I have an area that is just outside the yard boundary that I mow strips from and feed them grass a couple times a day... so I am
distracted and go cut some strips ... the girls are raking it to toss to the chickens and I look at lawn that has not been mowed due to
me not being able to hold out long enough to do it all and Bo has been in hay every spare moment of his time ... so I had just been
mowing right around the house ...but it was the coolest day we had last week and the sun was low enough to be throwing shade on
the back yard ...so I start cutting ...and cutting and cutting ...
then my stomach growled and I remembered the dumplings ... I abandon the mowing and run for the house ...fell because I don't run
anymore because fast movement and me don't get along .....pick myself up and go again at a steady fast pace but not running , up the
steps and open door coming out of my bedroom ... black smoke billows out ...no alarms are going off ..we put batteries in them when
time changed ...usually you can see from that door down the hall through dining room and kitchen and out the kitchen door 65 feet
away ... but I can see nothing ...the only clear air was about 18 inches or so from floor up ...I slide the thing to hold the storm door
open and crawl to the kitchen ... get a lid from the pan cabinet stand up and put it over flaming dumplings ... take pan and go out kitchen
door and set it inside the grill ...back to door to open it up ... then go around the house to open front door ...
the girls had followed me into the house even though I told them not to ...they crawled around opening windows then got out ...
I let some smoke clear and then went back in to turn on all the ceiling fans ....came out and watched smoke come out the windows
and wanted to puke ... the girls were treating it like a big adventure ... they were not scared enough if you ask me ... I was scared
out of my mind at what could have happened ... what if it had been at night
and I had left something going and we all suffocated ...
I have forgotten things on the stove and have gotten into the habit of setting the timer on the microwave so that it buzzes and
reminds me ... didn't set it that day and wouldn't have mattered since I was too far way to hear it ...
I am so easily distracted and have almost zero concentration since surgery that I leave a trail of half done things behind me every
where I go ... and for most part it is just a nuisance ... but this was serious ... Bo was like don't worry about it , it could happen
to anyone and I know it could ...but it is happening to me all too often ... this time it was just almost devastating ...
only casualty was my pan that warped and the house smelled smoky .... I got to it before overhead cabinets caught fire ... smoke
killing sprays and elbow grease to get some smoke off the kitchen walls and house is almost back to normal ... had it been something
frying things would have turned out alot different... luckily they were in water and took a awhile to boil that out before they turned
into little charcoal bricks and flamed up ...
I am tired of feeling bad and forgetting things and losing things and not being able to concentrate long enough to walk from front
door to shed and back a 2-3 minute trip at most ... I have laughed some things off because I have survived this whole AN trip through
humor ... but I am not laughing anymore ... I feel scared and the confidence I had gained that things were getting better is shot to
pieces ...
I told my husband the other night that I wish I had just left the tumor in my head til it did me in ... something the doctors estimated
it would do in 8 months to a year at rate of growth ... I would just stop breathing ... the end ... but before surgery I functioned better ,
felt better and was just more me ...now I don't feel like myself anymore and I fear I will really mess up worse than last Tuesday ... I
really want to be alive and see my last two kids grow into adults ... but I am greedy and want my old self back ... I scared Bo with my
comment ... he picks up slack of things I have not finished and never complains ...he is always trying to get me to take a nap like
a nap will cure everything ... he doesn't know what to do and I make it worse cause I am stubborn and tell him to leave me alone
I will do things my way ...
I don't want any advise really ...just venting the only place I know I am understood ... my I will be 10 years old in 31 days child ( she is
counting down)came by a little bit ago as I was typing this and asked why I was crying ... I told her my eyes were itchy ... I feel so
not understood here ... they are just glad I am breathing and can't see or feel what I do ... so what if I can't ride a bike anymore ...I
can walk along behind them ... so what if I can't bounce on the trampoline anymore ...I can take goofy pictures of them flipping around
... so what if I watch TV with light on because in dark rooms the flickering makes me nauseated ... the show comes out the same ... they
don't see the little things that drive me insane and think all is right with the world because Mom / wife is alive and breathing
the dismissal of the near house burning as something that could happen to anyone bugs me ...they excuse all the mistakes I make and
I feel like I should be made accountable someway ... not so much punished but it shouldn't be just excused ... I know what I am
trying to say but not finding it ...
just want to say thanks for being here ...I need this place badly some days ... I come often and read and glean tidbits of wisdom ...it
gets me through the bad days knowing I am not alone ... things will get better ... they always do when I fall into these funks ... this is
just a bad one ...knowing I could have cost us our home or in another scenario killed one or all of us with a night time snack gone wrong...
I am going to get myself an anniversary cake and present and celebrate Thursday as a new beginning ...I thought by now things would
be over as far as recovery and even though most days I do great (well good) I know that
recovery may be the wrong word ...
living with would be a better phrase ... reading the things I have written here in full confidence then having that shattered
has done something to me ... I have told people to be comfortable with their new self and thought I was but now wonder if I ever will be
and this has run on too long ... I have to go to town and get dog food that I forgot Saturday ... the dogs are starting to meow as they
have ate cat food since Friday ...and I guess I need to get cat food too or the cats will be eating dog food in a day or two and will be
barking
thanks for being here