ANA Discussion Forum

General Category => AN Issues => Topic started by: tatianne on January 08, 2008, 09:40:19 am

Title: Annual follow up MRI was done with no contrast ?????
Post by: tatianne on January 08, 2008, 09:40:19 am
is that normal practice ? The tech says its because the doc already knows what hes looking for and the point of the MRI is to see changes....doesnt contrast help that ??
Has this occured with anyone else ??
Thank you
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: OMG16 on January 08, 2008, 12:37:54 pm
I just replied on your other thread and just came across this one.  So I'm going to send you on a wild goose chase to find my answer to your question.  This should be fun since you are still feeling the after affects of your pre meds (lol).  If you can't find it just post again on this thread and I will repost.  Anyways take good care of yourself today.  16
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: lori67 on January 08, 2008, 03:09:43 pm
Well, I go for my one year follow up MRI post translab, and my doctor ordered it with and without contrast.

I don't know what the norm is, but it seems to me it would make more sense to do it with contrast since nothing will show up without it, right?

Lori
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: mema on January 08, 2008, 03:11:37 pm
Tatianne,                                                                                                                                                                                       



My first MRI  was done without contrast.  Showed nothing.  18 months later was done with contrast and showed a 8mm x 6mm AN.           




                                                                           mema
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: kat on January 08, 2008, 05:16:57 pm
Hi Tatianne

My last MRI was done without contrast although I had asked for it . It did show that my AN was shrinking which made me happy but I thought that an MRI with contrast would have shown if there was any necrosis . This time when I finally get my appointment I will insist on having contrast since this MRI 3 years after my GK is a very important one . All my MRI s were done on the NHS here in UK and I suppose with contrast might have been more costly ???  So far the only MRI with contrast that I have had was the one on the day of my GK .

Best regards Kat
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: summer on January 08, 2008, 09:40:47 pm
hi there,  actually every MRI follow up i have had was done with contrast.  I thought that was needed to see the complete picture....i hadnt heard of or it was never mentioned to me of doing one without contrast.....

Trish
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Boppie on January 08, 2008, 11:15:11 pm
My follow-up MRI's have each been with contrast.  However, this last MRI (December 2007) required a blood draw and lab reading, something about creatinene level.  I had to meet the clearance standard before I could go into the MRI room.  The nurse explained the blood test is now required by my doctors for any gladolinium contrast application.  This extra test only took an extra 20 minutes.

Some people have had a negative reaction to the contrast solution.   
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: tatianne on January 09, 2008, 07:12:58 am
this is bothering me a lot, i didnt sleep well last night....Its the same tech who did my first two MRIs..he remembered me. He was putting me in the machine and I asked him "what about the IV for contrast"  He said my doc didnt order it and its because they already know what i have and this was a follow up MRI to check for any changes...
The worst part is I took meds to relax and I guess I kept falling asleep and moving so he had to do the whole thing twice............so I stayed in there just as long anyway..he seemed annoyed with me.
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: ppearl214 on January 09, 2008, 07:50:14 am
(Trish, GREAT to see you hear and participating! :) )

tatianne, one thing I have learned is that if I am in any test (ie: MRI, blood work, PET scan, etc) and if I am not comfortable or question what is occuring, I note it to the technician involved and have them asap contact the dr that ordered the test. With all the scans I have endured in the past years, there are those times, based in previous tests or knowledge of tests, I have learned to speak up and insist on the phone call to the dr's office to have them double check or to answer my question on the spot.  Maybe a thought for next time as I hate to hear you lost sleep over this.....

Phyl
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: tatianne on January 09, 2008, 08:29:28 am
I did ask him right away and told him that I was sure contrast was always needed in the case of ANs...he toldme the doctor didnt order it and he does what the doctor requests...and that they know what i have and this was just a follow up for changes so the contrast wasnt necessary...i think he was wrong...then he told me he had to do it twice because I was moving and I felt like i didnt move at all but i thought I may have been falling asleep and not noticing the movement.
Im going to contact my doctor today, tks everyone for answering me...
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Richey on January 09, 2008, 08:41:38 am
I am having my one year MRI today. It will be done with and without contrast as all the previous ones have been done. This is my sixth one since 12/04 and they have all been ordered that way. I have noticed in discussions with the doctor that you can see the AN either way but it is much easier to see with the contrast. Not sure why they do it without too. I need to ask that question this time.
I'm hoping to see less of the thing this time.
From mid 05 to early 07 it had been stable, no growth but no decrease either.
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: OMG16 on January 09, 2008, 11:27:55 am
I'm sorry to hear you had a rough night.  I think your right you should call your doctor and ask, they do sometimes mark the wrong box.  That is the only way you will know for sure.  16
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Jim Scott on January 09, 2008, 04:27:41 pm
tatianne:

I've had numerous follow-up MRI scans and every single one was with contrast.  The pre-scan blood test is now mandatory but I can have it done locally and the results faxed to the MRI center a few days before the MRI, making it easy.  Once the blood test results didn't get sent to the MRI center so they just called the hospital for the results and had them within minutes via fax.  While I wouldn't lose sleep over a non-contrast MRI, as Phyl mentioned, I would have questioned the order and insisted your doctor be contacted for verification.

If this is a major concern for you - and it appears to be - I would strongly suggest you contact your doctor and confirm his original order and the explanation the MRI tech gave you.   You can always have another MRI.  Unlike some tests, multiple MRI scans have no deleterious effect.  I should know.  I've had 8 in the past 20 months.  Fortunately, all is well; the AN is shrinking and in necrosis.  I wish the same results for you.

Jim

Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Featofclay on January 09, 2008, 09:42:10 pm
Jim,
You stated "the pre-scan blood test is now mandatory"...my first MRI since my surgery 2/16/07 is scheduled tomorrow at 9:45 A.M.  My doctor has not ordered any blood test.  The hospital sent me a reminder and written across the bottom was "MRI with and without Brain".  Someone was in a hurry when that was written!  My ENT who originally found my AN has now closed his office here and moved home to Canada.  My Endocrinologist ordered the MRI at a local hospital where the radiologist will read it and then I will send it out to House in LA to read also.  Can I just get a CD to send out there or do I need copies of the films? 

It has been some time now since I posted but I have been reading the posts. 

Jean in MS
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: 1wareagle on January 09, 2008, 10:03:48 pm
Jean,

I had my first MRI since my surgery Dec. 6 and they did not take a blood test on me. It may be something new that Mississippi has not picked up yet!

Good Luck on your MRI!!!!
Ellis
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: OMG16 on January 09, 2008, 10:13:22 pm
We have not had to have blood work either but my son has to have blood work all of the time for his multiple problems the tumor is causing with all of his body systems.  You know now that I've thought about it we have never had to take copies of the labs with us.  So I guess I am of no help.  We have always had to take the actual films with us to each appt.  Does anyone know why this is?  I'm just wondering.  Hope this helps you.  I know I have confused myself.  16
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: lori67 on January 09, 2008, 10:22:53 pm
I'm supposed to go for my MRI this week or next.. no mention of a blood test yet.  I'm curious to see if they do them here or not.

Jean, the "with and without brain" is too funny!  You need to show that to the person who wrote it - I'm sure they'll get a kick out of it!  You should send that one in to Reader's Digest!

Lori
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: aardvark on January 09, 2008, 11:45:30 pm
I've always had to sign a release for the Gadolinium injection , but this past September (MRI #5) the form included a section where I had to state that I have no known kidney disease.  Because I was able to show them current labwork, I never learned if the MRI would have been denied without a kidney function test. 

Here's a link to the Mayo Clinic website that explains why such a test might be recommended.

http://www.mayoclinic.com/health/gadolinium/AN01637

Adrienne

Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Featofclay on January 10, 2008, 08:01:57 am
Thanks to all who answered my post so quickly.  Will post again when I get my results.  Everyone be sending out positive vibes my way today.  It is always good to have others who understand exactly how we feel waiting for results.
Jean
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Mtn Gal on January 10, 2008, 09:48:12 am
Since my first MRI in 2003 for diagnosis, I have had at least four more MRI's, all with contrast.  I have not had to have bloodwork prior to any MRI's.  My last MRI was in August, 2007 and that time they injected the gladolinium with a machine which was a new practice for them.  It seemed to have injected faster than if a person were doing it, and it was very uncomfortable.  My arm ached and hurt for the rest of the day.
I assume that my MRI's are done with contrast since my tumor was removed, and any remaining tumor cells would be easier to see with the contrast.
When I have a MRI, to keep my mind off of all that is going on around me, I pray for everyone I can possibly think of, especially my fellow AN'ers.  That keeps me busy for a long while and I forget why I'm there. 

Best wishes to all,

Mtn Gal
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Jim Scott on January 10, 2008, 02:53:49 pm

Jim,
You stated "the pre-scan blood test is now mandatory"...my first MRI since my surgery 2/16/07 is scheduled tomorrow at 9:45 A.M.  My doctor has not ordered any blood test.  The hospital sent me a reminder and written across the bottom was "MRI with and without Brain".  Someone was in a hurry when that was written!  My ENT who originally found my AN has now closed his office here and moved home to Canada.  My Endocrinologist ordered the MRI at a local hospital where the radiologist will read it and then I will send it out to House in LA to read also.  Can I just get a CD to send out there or do I need copies of the films? 

It has been some time now since I posted but I have been reading the posts. 

Jean in MS

Jean: 

When I stated that a blood test was now mandatory prior to having my MRI scan performed, I should have said that this was my experience at the hospital where I have my scan.  Obviously, the pre-MRI blood test requirement may not apply to every hospital regarding MRI scans performed with Gadolinium injections for contrast.  I have no idea if a blood test it is a state regulation or not.  I suspect it is simply a hospital protocol to guard against the chance of possible liver damage and of course, to ward off lawsuits should a patient receiving multiple MRI scans, as I have, develop liver problems.  No problems, so far.  As it is a benefit to my longterm health, I don't object to the pre-MRI blood test and my future MRI scans will be limited to annually, so it becomes a non-issue for me, now. 

Jim
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: OMG16 on January 10, 2008, 03:04:00 pm
Jim thank you for your post it has made me aware of some potential problems that I did not know were possible.  My son has so many medical problems related to his tumor and I am very glad you have this info.  If I can help prevent any future problems related to his many MRI's then I believe I am a step ahead.  I have also found through this forum that allot of you know more than the experts.  I thank my lucky stars everyday that I have found all of you!!  16
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Sheryl on January 10, 2008, 08:40:11 pm
As in the link Aardvark posted above, it has been discovered that patients who already have kidney damage may get worse if injected with gadolinium contrast (most common used for head MRI's) .  I've read more on the subject and do not think it has to do with the liver.  Both hubby and I have brain tumors and with our recent MRI's, we were asked about our kidney function.  Most people in our situation and even healthy people have yearly blood work which would show up possible kidney problems.  Facilities that are asking for blood work ahead of time are being cautious or just covering their a--.  Either way, it may become more and more common as this becomes more publicized. 
Sheryl
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: mema on January 11, 2008, 09:50:05 am
Tatianne,                                                                                                                                                                                 



My last MRI I went to the same facility that has taken all my MRI"s.  There was a different tech there though.  I had a really bad cold and coughed a few times during the MRI.  He would come over the speaker phone and say are you done?  Do you have to cough?  It took longer to do  the MRI and he also was very mad at me.  I always waited for the films and when I asked him, he got really nasty and said he didn't have time because I took up so much of his time.                                                                                                             


                                          mema
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: tatianne on January 11, 2008, 12:56:58 pm
thanks everyone who answered, I guess a pretty good discussion developed out of this....thats good.
I tried to reach my doctor but its a little confusing...
Main doc is the Neurotolist who ordered the first two MRIs with contract, after the second one he decided a consult with the neurosurgeon would be a good idea...Hes suggestion was to continue to wait and watch for another year and hes the one who sent in the paperwork to the MRI department requesting the MRI, I never even say it...This neurosurgeion is very busy and hard to reach so I have just gotten an answering machine all week..I will try again next week, maybe hes on vacation or something.
Im in wait and watch, maybe thats why he didnt request contrast because the MRI was basically to check for growth and change, thats what the tech told me...would they be able to see those changes without the contrast ??
Not sure how much of a deal to make out of this or to request another MRI, frankly I hate the entire process and would rather not if I knew the results will be accurate in order to show changes.
Next time, I will make sure contrast is requested.
and
at the hospital I go to in Montreal Canada they still dont require blood tests before the injection, at least not that i know of but it sounds like a responsible thing to do.
thanks again everyone, i will let you know what happens.
For some reason Im having extreme anxiety about the results this time and imagining all kinds of things...hate this.
T
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: OTO on January 11, 2008, 07:10:38 pm
To All:
I went onto WebMD.com.   I'm paraphrasing...  Gandolinium is the predominate dye or contrast agent they use during MRI scans.   However, apparently in 2000, they now have recognized a medical condition (kidney damage resulting in other problems) which can be cause by gandoliinium, and the FDA has issued guidance regarding checking kidney function prior to using gandolinium.     I'm guessing since we ANers are getting MRIs more often than the general population, maybe our doctors (and radiologists) are getting conservative by not ordering MRI's with contrast....   
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: Featofclay on January 19, 2008, 04:39:16 pm
My MRI was negative and I am sooooo glad it is over and done with at least until next year.  Dr. Rick Friedman at House in LA called me to give me the results and said he wanted me to have another MRI in one year.  I posted a message in another place earlier today because I could not find this thread but accidentally found it a few minutes ago. 
Jean in MS
Title: Re: Annual follow up MRI was done with no contrast ?????
Post by: tatianne on February 04, 2008, 02:40:11 pm
I asked the neurosurgeon why he didnt request contrast....he said that it was unecessary because they new exactly what they were looking for and where to find it, he also said that because my AN is small the contrast doesnt make it show up that much more...he said they used weights ??? Im not sure what that it. Maybe they are just using contrast when its really needed due to the potential health risk discussed in this thread..