Author Topic: 1st ANnirversary  (Read 3402 times)

tenai98

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1st ANnirversary
« on: April 06, 2010, 06:40:18 am »
Can't believe it will be a yr tomorrow..time did go by fast...
I can say I am 99% back to normal with a few deficiencies..
SSD being one and it can be frustrating at tmes..Looking forward to having my own BP100 on Monday
My balance slips up every now and then, but not a biggie...I just tend to stumble a little or at times there seems to be this invisible force pulling me to the right..AN left.
I try to exercise my balance daily...I dont pass the chance of walking on a fallen log, or walking in a darkened room.
I still have some facial numbness on left side...NO tinnitus, yippeeee, no soreness at either surgical sites (translab and baha)
I do have at times actually alot of time but not daily that awful metallic/copper taste in my mouth and bad breath.
there seems to be a few holes in my memory that I like to blame on the AN but could be from old age...lol....
I still tire easily and have cut my work hours from 8 a day to 5-6 a day...it isnt so much as tiring easily but just needing more sleep hours.  My job is not physical draining but mentally draining.
There is residual tumor left which is stable at the moment...AT the first signs of growth, the plan is to zap the critter. And now that ck will be in Ottawa, Ontario shortly, it will be my choice of radiation.
so all in all, life is back to normal if one can define normal and life is good.
JO ;D
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

cindyj

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Re: 1st ANnirversary
« Reply #1 on: April 06, 2010, 07:33:55 am »
Hey, Jo!  I can't believe it's been a year either...weren't we just sitting and talking down in Jax the other day?!?  You've done so well and had a great attitude through it all - congrats on your one year and your return to "normal" life!

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Brendalu

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Re: 1st ANnirversary
« Reply #2 on: April 06, 2010, 08:57:11 am »
Happy ANniversary, Jo!  Congratulations on putting your first year behind you...celebrate!

Hugs,
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Pooter

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Re: 1st ANnirversary
« Reply #3 on: April 06, 2010, 12:49:20 pm »
Congrats Jo...  Definitely a milestone worth celebrating!  Treat yourself and have a ball!

Regards,
Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Jim Scott

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Re: 1st ANnirversary
« Reply #4 on: April 06, 2010, 01:46:21 pm »
Jo ~

Congratulations on your 1-year AN surgery 'anniversary'.  You seem to be enjoying a solid recovery and I hope that continues for you.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Lizard

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Re: 1st ANnirversary
« Reply #5 on: April 06, 2010, 02:54:56 pm »
So happy you are past the 1 year mark and it seems doing pretty well  ;D  I am slightly jealous at your lack of tinnitus, but also ecstatic that you don't have to deal with it.  Hopefully the other tumor remains the same size for ever and ever!

Congrats again,
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Soundy

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Re: 1st ANnirversary
« Reply #6 on: April 06, 2010, 03:53:13 pm »
happy anniversary and continued good healing ...
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

leapyrtwins

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Re: 1st ANnirversary
« Reply #7 on: April 06, 2010, 04:36:08 pm »
Jo -

I like to think that life isn't about all the crap you encounter, it's more about how you handle it and the people you meet along the way.

Congratulations on this wonderful milestone! 

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

saralynn143

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Re: 1st ANnirversary
« Reply #8 on: April 06, 2010, 08:38:12 pm »
Jo - Best wishes to you for health and happiness in the year ahead . . . and all the years to come.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

ppearl214

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Re: 1st ANnirversary
« Reply #9 on: April 08, 2010, 07:36:39 pm »
Jo!

MAJOR continued wellness wishes to you... with a hearty congrats on your ANniversary!

well done! Congrats! :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

yardtick

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Re: 1st ANnirversary
« Reply #10 on: April 09, 2010, 07:25:23 pm »
Yeah my Canadian AN'ner sister  :-* :-*

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games