Author Topic: Veteran AN patient needs support  (Read 10102 times)

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: Veteran AN patient needs support
« Reply #15 on: November 08, 2010, 06:40:59 pm »
Hey Deb what are the 15 different causes of headaches?  I see the neurologist tomorrow, I am armed and ready to do battle.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
Re: Veteran AN patient needs support
« Reply #16 on: November 25, 2010, 04:59:36 pm »
Dr Leonetti referred to about 15 causes in his ANA Notes article, which is an almost direct transcript of his headache workshop presentation.  Am away from home right now with no access to the hard copy I have at home--will list them after I get home if you still want them!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Rc Moser

  • Full Member
  • ***
  • Posts: 179
Re: Veteran AN patient needs support
« Reply #17 on: December 02, 2010, 05:59:23 pm »
Your not alone, I am 8 years out and have the exact same symptoms. Noise above 80 Deciles.  starts the migraine process. I also have severe tooth aches which is the precursor of migraines. Nothing wrong with my teeth I go to the dentist twice a year. I have come to the conclusion that majority of AN'er will have the symptoms the rest of their lives. I just hope my problems don't get worse. I also worry about strokes with all the migraine's I get. Just when I think I got it bad I see others that have it worse! God bless us all cursed with the after effects.
9/17/03, 4.5CM, Translab, OU Medical Center, Dr. (the ear man) Saunders and Dr. B. (the BrainMAN) Wilson  along with about 4 other Doctors that keep me going for 18 hours.

Mei Mei

  • Hero Member
  • *****
  • Posts: 1278
Re: Veteran AN patient needs support
« Reply #18 on: December 02, 2010, 11:43:16 pm »
Yes,  I feel the same way.   Somewhere on the Forum they said that they get cracked teeth on the non AN side.   I find myself grinding my teeth and clenching my jaw.   Am getting a night guard next Tuesday and hope that helps.
Hang in there.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cakulmom

  • New Member
  • *
  • Posts: 45
    • My Son-My Inspiration
Re: Veteran AN patient needs support
« Reply #19 on: December 11, 2010, 08:10:12 am »
When I read what you, as a 23-year-old, went through, I feel so badly.  At least I've had 60 good years of fairly decent health.  My heart goes out to you and I will keep you in my prayers.
Age: 61 on Jan. 4.  Retrosigmoid for 2.2 cm AN on Nov. 30, 2010. Loyola-Leonetti & Anderson.
SSD left AN side.
There is nothing "benign" about this tumor.