Author Topic: 4.5 yrs post op and a new discovery  (Read 3775 times)

Pembo

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4.5 yrs post op and a new discovery
« on: February 18, 2009, 05:26:55 pm »
I've noticed that my tinnitus is less in the last few months however Monday night my ear was roaring very loud. It was very distracting. Tuesday morning I woke up to a runny nose that hasn't stopped in two days. (It's just one side of my nose, which is an added bonus of the AN). However the tinnintus is less again but my hearing in the good ear is muffled by congestion.  I am a teacher and I do not think I can go back to work until the hearing returns. I'd be yelling at everyone and constantly having people repeat themselves. My husband said my voice is louder than normal and I have the tv turned up VERY loud. The BAHA doesn't help.

So my discovery - tinnitus worsened before the onset of my cold. First headaches that predict weather changes, now tinnitus that predicts colds. All this for only the cost of an AN surgery. :) I still have to look for the humor.
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

wcrimi

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Re: 4.5 yrs post op and a new discovery
« Reply #1 on: February 18, 2009, 06:07:43 pm »
If I didn't feel bad for you, I'd be laughing out loud.
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Keri

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Re: 4.5 yrs post op and a new discovery
« Reply #2 on: February 20, 2009, 02:27:35 pm »
regarding looking for the humor in this...
i'm 3 weeks post op with left side facial weakness.
let's see - i can now raise one eyebrow (i've always wanted to do that)
when i play poker, i can have the ultimate 'poker face.'
i can walk around a bit tipsy without having a drink.

sorry... hope i havne't made anyone mad! i'm just trying to keep the good attitude!

keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

JudyT

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Re: 4.5 yrs post op and a new discovery
« Reply #3 on: February 21, 2009, 09:21:40 am »
Keri............not to worry about mad.....I got a good chuckle from your good attitude reasoning. It means a lot if one can maintain a good, positive attitude.....a "poker face" can be a good thing.......Keep'em guessing girl!!!!

Judy

nancyann

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Re: 4.5 yrs post op and a new discovery
« Reply #4 on: February 21, 2009, 09:27:27 am »
I continue to find humor dealing with the facial paralysis.   The other day I went to blow out a candle & realized when I puckered my lips & blew, the air went to the side.
We all got a good laugh from that !
Gotta keep (1/2) smiling !
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Pembo

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Re: 4.5 yrs post op and a new discovery
« Reply #5 on: February 24, 2009, 03:35:09 pm »
My kids love it when I have to ask them to blow out candles or matches. One of my exercises from facial therapy was blowing up a balloon. It was tough to hold the balloon and my lips and try to blow.

I also find the facial paraylsis to come in handy....just the other day a co-worker was telling me all her financial problems, it was much easier to keep that look of horror off my face. :)
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

cin605

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Re: 4.5 yrs post op and a new discovery
« Reply #6 on: February 24, 2009, 05:22:05 pm »
lol.. ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

wendysig

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Re: 4.5 yrs post op and a new discovery
« Reply #7 on: March 09, 2009, 11:37:16 pm »
Keri,

Yu can find the humor in the situation or collapse in a puddle of tears -- laughing is better!

Sending healing thoughts your way,

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ROMY

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Wow! I can whistle!
« Reply #8 on: November 19, 2009, 03:50:37 pm »
 :) 4.5 years post translab in England and I can whistle!! For so long I could only blow to one  side and my mouth is still lopsided when I  speak but I  can whistle.  I can also blow down my AN side nostril  again and  it  has opened up  quite a lot. I'm still a bit teary in my eye when I  eat but no-one seems  to  notice it. Things are still improving so don't  think that 2  years is the limit of improvement.  ;D

Keri

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Re: 4.5 yrs post op and a new discovery
« Reply #9 on: November 19, 2009, 09:12:01 pm »
i miss whistling! can't do it yet. glad to know there's hope!
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

moe

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Re: 4.5 yrs post op and a new discovery
« Reply #10 on: November 19, 2009, 10:17:44 pm »
Glad you see the humor, Pembo!
You can predict a cold coming, so dose up on all the good stuff before it hits!
Airborne! vitamin C! echinacea! Zinc!

3.5 years post op,I can slightly whistle! And slightly breathe in through my left nostril. Amazing what excites us..... ;)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty