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Author Topic: Caringbridge Page to keep you updated  (Read 6125 times)

skamper

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Caringbridge Page to keep you updated
« on: March 30, 2010, 10:14:32 pm »
Hello all,
Well only 2 more days and then my surgery.  It's starting to get a little more frighting each day.  I have tomorrow and Thursday off to be with my girls, I think we are doing the zoo tomorrow.

I have created a caring bridge page to make easy for husband or girls to update everyone at once.    Here is the info:

To keep you up to date on my health condition, I created a CaringBridge website. You can follow my progress and show your support.

Visit my website in two easy ways:

    1. Visit my CaringBridge website by clicking the link below.
        http://www.caringbridge.org/visit/supportsusan

    2. Enter my website name, supportsusan, at www.CaringBridge.org.


To visit you’ll need the website password, because I’ve chosen to keep the site private.
Website Password: susansinfo

I'm hoping you all will go to this and keep up with my progress.
Wish me lots of luck, at least it's Good Friday!!
"Life is what it is, so live it!"
Susan
Logged
Diagnosed 12-09
AN right side 2.3 x 2.6 x 1.9
97% balance loss, minimal hearing loss
Surgery 4-2-10 at Methodist Hospital, Dr. Long and Moore
1.5 cm tumor left on 7 nerve.  Gamma knife 1-2013

jaylogs

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Re: Caringbridge Page to keep you updated
« Reply #1 on: March 31, 2010, 12:29:19 am »
Thanks for the info Susan...I'll definitely be watching your progress.  Good luck, it'll be over before you know it! Just remember, the first three days don't count!
Jay
Logged
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

leapyrtwins

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Re: Caringbridge Page to keep you updated
« Reply #2 on: March 31, 2010, 06:24:23 am »
Good luck, Susan.

See you as a postie!

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

grega

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Re: Caringbridge Page to keep you updated
« Reply #3 on: March 31, 2010, 06:43:33 am »
Hi Susan ..... thanks for sharing your fun website ..... it's impresssive, and I'm sure your family will have lots to say for your support.

BTW .... let Bill worry a bit about the cleaning  ::)..... he needs to worry bout that .... cause you might not feel like cleaning for a while ......... which is totally OK!

Keep  ;D -ing!

Greg
Logged
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

mandy721

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Re: Caringbridge Page to keep you updated
« Reply #4 on: March 31, 2010, 07:23:57 am »
Susan,

Lots of good thoughts for a successful surgery and smooth recovery.

Miranda


p. s. The titanium mesh doesn't pose a problem at airport security!  Ken was concerned about that too.
Logged
Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems

Lizard

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Re: Caringbridge Page to keep you updated
« Reply #5 on: March 31, 2010, 09:16:59 am »
Good luck Susan!  I'll pray for a successful surgery and a speedy recovery...
Thanks for setting up the site  ;)
Talk to you on the other side!
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

sues1953

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Re: Caringbridge Page to keep you updated
« Reply #6 on: March 31, 2010, 09:21:29 am »
Good Luck Susan!!!!!!!

Will be checking the website.

Sue in Michigan
Logged
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

moe

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Re: Caringbridge Page to keep you updated
« Reply #7 on: March 31, 2010, 10:03:08 am »
Susan,
God speed to you. I'll keep posted on the caringbridge site!
I'll be over before you know it, and you'll be a postie. It WILL be a Good Friday :)
Maureen
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

skamper

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Re: Caringbridge Page to keep you updated
« Reply #8 on: April 01, 2010, 11:41:54 am »
Thanks gang, this will still always be my first and foremost site to update.  I will be giving my husband Bill and daughter Dani my password and all to let everyone how I do tomorrow.

All of you have always been there for me and I really appreciate it.

Keep me in your prayers tomorrow, and yes it is GOOD FRIDAY!

See you all on the other side unless a post one more time tonight!

"Life is what it is, so live it!"
Susan
Logged
Diagnosed 12-09
AN right side 2.3 x 2.6 x 1.9
97% balance loss, minimal hearing loss
Surgery 4-2-10 at Methodist Hospital, Dr. Long and Moore
1.5 cm tumor left on 7 nerve.  Gamma knife 1-2013

knakag01

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Re: Caringbridge Page to keep you updated
« Reply #9 on: April 01, 2010, 05:38:26 pm »
Best of luck Susan! You are in my prayers.

Kim
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Kim
1.9cm x 1.2cm AN Right side
Diagnosed 11/09
Translab with Dr. Jackler @ Stanford on 5/20/10
Facial Paralysis (temp) & SSD Right side, some balance issues but not as bad as I thought :)

Mickey

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Re: Caringbridge Page to keep you updated
« Reply #10 on: April 01, 2010, 07:50:22 pm »
Good luck Susan with many prayers this holiday season. Mickey
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moe

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Re: Caringbridge Page to keep you updated
« Reply #11 on: April 03, 2010, 10:41:30 am »
Susan,
Read the  caringbridge and you sailed through surgery.! Only 6 hours too, so everything appears to have gone well. Congratulations!
Out of ICU too. Yea! Prayers for no complications.
maureen
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

bell

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Re: Caringbridge Page to keep you updated
« Reply #12 on: April 05, 2010, 06:09:25 pm »
Congratulations and I wish you the best of recovery.  Listen to your body and rest. Keep us posted.  Bell
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