was hoping to never find myself here again...

[lora]

Was here 3 years ago and after 2 open head surgeries and a GK, I was hoping to put it all behind me.  Well, I finally followed up with the neurologist after I had a grand mal seizure (and finally figured out why my tongue was always sore   He is sending me to the neurosurgeon again as it appears the little bugger didn't go away as much as they wanted.  It is now 2 cm x 2. cm--smaller than I started out, but "still a significant tumor".  I don't know if I have the strength to go thru another surgery.  I am really just feeling like I got over the last 3 (my hair has grown back!)  I might could do another GK, but those open headed ones were not fun!!!   I guess I won't know the plan until after I see the surgeon, but I am sure feeling disheartened...

[lori67]

Lora,

I can't say I blame you for the way you're feeling!  Sounds like you have a persistent little (not-so-little, actually) bugger there.

I hope the surgeon has some good treatment options for you and you can find one you feel comfortable with.  I know you'll find the strength to get through whatever you decide on - and for the times when you can't seem to find it - we'll be here to help you through

Keep us posted and good luck at your appointment.

Lori

[CHD63]

Lora .....

You have certainly had WAY more than your share of trouble with a very pesky acoustic neuroma.  As Lori said, I pray you will find the right doctors to direct the path of treatment at this point.

Many thoughts and prayers.

Clarice

[jerseygirl]

Lora,

Sorry you have been through so much. As a person who also had a huge tumor and then regrowth, I would advise you to actually contact a few neurosurgeons to get different perspectives because what is difficult for one is not very difficult for another. I learned it from experience. Some neurosurgeons , like at HEI, offer consulting services for free. You don't have a tiny new tumor that anybody can successfully operate on.  Your situation sounds like a tough one but not impossible if you get necessary expertise. Honestly, I would ask point blank your original neurosurgeons what options they can offer since they have already done two different surgeries without taking the tumor totally out. I hope whatever it is you decide works out for you. Good luck and keep us posted. Meanwhile, many hugs to you!

                                         Eve

 

[Jim Scott]

Lora ~

I won't type 'welcome back' because, although you certainly are welcome, I'm sorry that you have a medical reason for posting here.  Two surgeries plus radiation should be enough but apparently, your AN is a tough, stubborn little bugger that is refusing to die, as it should have, by now.  I trust that radiation will still be an option for you when you finsh your doctor consultation.

Please keep us updated on your situation and know that we'll support you 100%, whatever you decide to do.

Jim

[Syl]

Lora:

That's alot to go through. One surgery took alot out of me. Where does one find the strength to keep going? I guess the best we can do sometimes is take it one day at a time. I'll keep you in my prayers. And, please keep us posted.

Syl

[moe]

Lora,
 OH I'm so sorry to hear about your circumstances. You know there are people here who care  and know what you've been through (not the multiple surgeries, but the anguish).

Keep posting and let us know what different options you have. Hopefully like Jim said, it can be zapped with GK.

Hang in there, one day at a time.
Maureen

[skamper]

Wow Lora, that is a lot to handle.  I had one surgery and I'm still tring to get over it.  Keep us posted as to what you find out.  We will be here to help you.
Good luck and you will be in my prayers!
Susan

[Vivian B.]

Hi Lora,

A lot to handle, but keep strong just like you have in the past. My prayers are with you.

Vivian

[satman]

Lora, how are you doing ?
your in my thoughts and prayers.

[Sonja]

Iora:

I am very sorry to hear that darn AN will not stay down. PLease be strong and keep the faith. You are in my prayers. I wish you the best. Stay positive.

Sonja

[Mei Mei]

I'm so sorry this is happening to you.   You need all the strength and concentration in the world to make major decisions.   You know you have us here to support you 24/7.

Mei Mei

[Jeanlea]

Lora,

So sorry to hear about your very persistent AN.  I'll bet that you have even greater strength.  I'm sending out good thoughts that it will be totally removed once and for all and that you have a quick recovery.

Jean