Got a call from Stanford (Dr. Chang's office) today. Quite good news - he feels tumor has not changed and all is stable since the MRI done before CK. He also feels that as long as we are finally decreasing the Decadron, if no symptoms develop such as before (loss of speech which was a focal/partial seizure) that hubby can continue on without surgery necessary at this time!! We were quite pleased considering that being a neurosurgeon and a doc who would recommend CK, his opinion is unbiased. The nurse (?) who called - Ami - was wonderful and very informative, taking the time to answer questions and encouraged us to e-mail or call back if we needed. Even gave recommendation that follow-up MRI in three months would be the choice of Dr. Chang as long as hubby remains symptom free. Given that we are 1500 miles away from where we would want surgery done, this is a relief too that we don't have to get on the phone and call the airlines.
So, Steve, it looks like April Fool's Day MRI/follow-up will be put off
Sheryl
