Author Topic: Dr. McKenna in Boston  (Read 14037 times)

lholl36233

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Dr. McKenna in Boston
« on: August 07, 2009, 03:02:10 pm »
Hi,

My next MRI is 8/11 and the followup is 8/19.  If surgery is recommended, I think I need to go see Dr. McKenna.  Boston is not that far for me to travel for experience.  Any information on Dr. McKenna would be greatly appreciated.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

NancyMc

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Re: Dr. McKenna in Boston
« Reply #1 on: August 07, 2009, 03:03:27 pm »
He's the best!
He has followed my acoustic neuroma since September 2001 and removed it in April of this year.
Good luck!
Nancy
« Last Edit: August 07, 2009, 03:04:58 pm by NancyMc »
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Jim Scott

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Re: Dr. McKenna in Boston
« Reply #2 on: August 07, 2009, 03:11:10 pm »
Hi,

My next MRI is 8/11 and the followup is 8/19.  If surgery is recommended, I think I need to go see Dr. McKenna.  Boston is not that far for me to travel for experience.  Any information on Dr. McKenna would be greatly appreciated.

Your wish is our command.  :)  http://www.facialnervecenter.org/team_physicians.html  I hope this helps.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lholl36233

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Re: Dr. McKenna in Boston
« Reply #3 on: August 07, 2009, 03:35:19 pm »
Thanks Jim.

Has Dr. McKenna done anyone's BAHA implant?  I need a doctor who understands this isn't a conventional hearing aid.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

NancyMc

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Re: Dr. McKenna in Boston
« Reply #4 on: August 08, 2009, 05:51:44 am »
Someone else in his department does them.  He's not real big on BAHAs but did give me the brochure at my request pre-op.
My three-month follow-up appointment was canceled, and I was planning to approach the subject with him then.  It will have to wait until September when things slow down again.
Scarlett had Dr. Lee at MEEI instead of McKenna.  He might be more amenable to the BAHA.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

ppearl214

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Re: Dr. McKenna in Boston
« Reply #5 on: August 08, 2009, 06:15:24 am »
Dr. Quinton Gopen did a talk at the ANA Boston support group meeting last year specifically on hearing devices and BAHA. He also does cochlear implants as well. He is affiliated with MEEI as well as the Brigham.  You can find him here:

http://www.harvardotolaryngology.org/faculty.html

Here is his MA License info, showing his education, awards, hospital affiliations, etc:

http://profiles.massmedboard.org/MA-Physician-Profile-View-Doctor.asp?ID=83562


He may be the man to speak.

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

lholl36233

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Re: Dr. McKenna in Boston
« Reply #6 on: August 08, 2009, 06:30:23 am »
Why doesn't Dr. McKenna like the BAHA?  Anything to help us here on the bad side sounds like a godsend to me.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

SML

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Re: Dr. McKenna in Boston
« Reply #7 on: August 08, 2009, 08:22:55 am »
I thought Dr. Lee at MEEI was fabulous. I’ve never discussed BAHA’s with him, so I’ don’t know how he feels about them, but I’m sure if he doesn’t do them he could refer you to someone who does. To me, it’s just as important to find out why some doctors don’t like them as well as why some doctors do. The more informed you are the better. That goes for anything. Good luck with whatever you decide.

Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

NancyMc

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Re: Dr. McKenna in Boston
« Reply #8 on: August 08, 2009, 08:50:41 am »
I'm not sure why McKenna doesn't like the BAHA.  My sense was that he thought they are gimmicky, over-marketed, and wouldn't benefit the patient enough to make it worth the expense.  I'll find out when I see him next time.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

lholl36233

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Re: Dr. McKenna in Boston
« Reply #9 on: August 08, 2009, 10:45:26 am »
From what I've read on this board from people with BAHAs, while not as good as perfect hearing, the BAHA helps greatly.  I can't have a doctor do my surgery who thinks BAHA is a conventional hearing aid.  I'm going to call my primary care doctor to try to get a referral to Dr. McKenna.  Wish me luck.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

krbonner

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Re: Dr. McKenna in Boston
« Reply #10 on: August 16, 2009, 09:32:29 pm »
Sorry I'm so late to reply.  I've been seeing McKenna since June 2005 and he did my surgery in Sep 2006.  I'm going back to see him for a 3 year follow up in a few weeks.  I have nothing but positive things to say about him, his skill and experience, and his office.

Katie
diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

lholl36233

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Re: Dr. McKenna in Boston
« Reply #11 on: August 17, 2009, 02:53:23 am »
Thanks Katie.  Ignore my other post.  I read that one before this one.   ;D
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

MLB57

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Re: Dr. McKenna in Boston
« Reply #12 on: September 05, 2009, 08:25:34 am »
Hi Laura,

You mentioned UMass so I presume you mean UMass Med Ctr in Worcester MA? Just wondering because in Jan of 2001 I had a 1 cm rt AN removed there when they a Skull Base team of surgeons--surgeons both left and I had follow-up w/a Dr Lee--handsome young, personable doctor who eventually referred me to MGH and Dr Barker as my AN had not been totally removed (contrary to what the suregons reported) and was growing more... I met w/Barker and eventually Dr Loeffler and I had LINAC radiation over several weeks in Fall of 2007.   Dr Lee was a proponent of the BAHA --he said it was (my words)  offerred wherd he previously came from didn't know why it hadn't been offerred at UMassMed at the time...but I decided not to bother at that time as I could have it anytime as no change was possible in my hearing anyway... So I wouldn't be surprised if that is the same Dr Lee--he probably left UMass Med Ctr and went to Boston.

MGH has a great team of surgeons and radaition specialists so I'm sure you will be in great hands whatever treatment you choose!!!

Best always,

Mary (aka GrammyMary).... (one of Phyl's Maxwell Silverman's Brunch bunch!!)...
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

lholl36233

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Re: Dr. McKenna in Boston
« Reply #13 on: September 05, 2009, 04:09:55 pm »
Hi Mary,

Glad to hear from you.  I'm not sure how many of my posts you have read to get my full story.  It is the same Dr. Lee.  I saw him at UMASS in Worcester in May 2008.  By June, he was at Mass Eye and Ear.  He told me I had an AN after my first MRI but it turned out to be a hemangioma.  I was on watch and wait until last month when my word recognition went down to zero in my left ear.  The right ear is 110%.  That prompted my new doctor to suggest surgery.  I asked this doctor about the BAHA who explained it to me like it was a traditional hearing aid which I understand won't help me.I wanted a second opinion so I referred myself to Dr. McKenna who told me surgery to remove the tumor would likely result in facial nerve damamge.  Dr. McKenna referred me to Dr. Loeffler who I will see 10/7 about proton beam therapy.  After that, Dr. McKenna agreed I could get the BAHA.   I feel like there is no better place for me than MGH/MEEI.

How did the radiation turn out for you?

PM me anytime.

Laura
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

lholl36233

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Re: Dr. McKenna in Boston
« Reply #14 on: September 05, 2009, 04:26:35 pm »
Sorry Mary.  I missed your signature that showed your good outcome with radiation.  I hope I have the same luck.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!