Author Topic: NYC/NJ Area Brunch at Brendans  (Read 21495 times)

wendysig

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Re: NYC/NJ Area Brunch at Brendans
« Reply #60 on: November 10, 2009, 06:12:05 am »
Joe,

I like the way you think -- now there's an idea!   Grin

Wendy

P.S.  I had a great time and it was great to see everyone -- I'm looking forward to our next get together!!
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NYC/NJ Area Brunch at Brendans
« Reply #61 on: November 10, 2009, 08:15:32 am »
I agree with Nancy - it seems like only really nice people get ANs!  And, Joe - good idea on the bar (Willie agrees!)  I guess Wendy and I will have to work on this for the next one.   ;)

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: NYC/NJ Area Brunch at Brendans
« Reply #62 on: November 10, 2009, 05:17:35 pm »
Am I going to have to come up there and get all of you drunken lushes home??  Might give me a good excuse to come!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Mickey

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Re: NYC/NJ Area Brunch at Brendans
« Reply #63 on: November 11, 2009, 11:29:30 am »
Joe, thats why your the" MAYOR"! haha You got my vote always, Mickey

ppearl214

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Re: NYC/NJ Area Brunch at Brendans
« Reply #64 on: November 11, 2009, 11:45:43 am »
sheesh folks...right on the heels of the NE Apple Dumplin' gang in numbers! :) Well done! Looks like everyone had a terrific time... great to "see" everyone and thrilled you all enjoyed! Well worth it, eh? :)

Congrats on a terrific time had by all!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Debbi

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Re: NYC/NJ Area Brunch at Brendans
« Reply #65 on: November 11, 2009, 04:05:05 pm »
Well, Phyl, we should be thanking you for setting the bar high with the Apple Dumplin' Gang!  It was seeing your posts about brunch gatherings that first gave me the idea last year of getting together.    So, mmmmwwwwhhhhhaaaa (that's a virtual kiss)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseyboy

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Re: NYC/NJ Area Brunch at Brendans
« Reply #66 on: November 11, 2009, 08:04:07 pm »
Hi Wendy,
I got the results of my follow up MRI today, and my tumor is unchanged!  Great news!  But, I need to find out why I have so much dizziness for a 4mm AN.  I expect to talk with HEI in a day or two, Dr. Kwartler of Summit Medical Group next Wednesday, Dr.Choe of Mount Sinai next Thursday and then Mayo Clinic in three weeks.  I feel like Sherlock Holmes!
Jeff
Watch and wait since May 2009.

JerseyGirl2

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Re: NYC/NJ Area Brunch at Brendans
« Reply #67 on: November 11, 2009, 09:37:46 pm »
Jeff,

We'll all be anxious to find out what you learn from your upcoming consultations -- hopefully someone can provide you with good answers.

Keep up that optimistic attitude you showed at our get-together last week!

Best wishes,

Catherine (JerseyGirl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

ppearl214

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Re: NYC/NJ Area Brunch at Brendans
« Reply #68 on: November 12, 2009, 06:45:03 am »
Well, Phyl, we should be thanking you for setting the bar high with the Apple Dumplin' Gang!  It was seeing your posts about brunch gatherings that first gave me the idea last year of getting together.    So, mmmmwwwwhhhhhaaaa (that's a virtual kiss)

MWAH!  Back to you as well (and one for Willie too!)
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

wendysig

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Re: NYC/NJ Area Brunch at Brendans
« Reply #69 on: November 12, 2009, 03:00:48 pm »
HI Jeff,

I'm glad to hear your MRI showed no growth -- that's always good news.  It sounds like you're going to be very busy getting to the bottom of the cause of your extreme dizziness.  You do kind of sound like Sherlock Holmes -- following all leads available in such a methodical way.  I'm sure you're anxious to get some answers and I'm sure you will.  My best guess is the location of your AN is to blame -- I'm no expert, but perhaps this is a question you should ask.   Good luck and be sure to let us know what you learn.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

jerseyboy

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Re: NYC/NJ Area Brunch at Brendans
« Reply #70 on: November 13, 2009, 03:56:34 pm »
Wendy,
I posted this about 30 minutes ago, but since it didn't seem to take am repeating it.

Today I received a telephone call from Dr. John House of HEI.  He said that given that (1) my AN is so small at 4mm, and (2) I have no hearing loss to speak of, he suspects my serious and variable dizziness might even be unrelated.  He suggested getting a video nystagmagram (VNG) to measure my balance function.  I will pursue this.  He was really nice and thoughtful, and said certainly don't jump into surgery until I know what I've got.

Jeff
Watch and wait since May 2009.

Debbi

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Re: NYC/NJ Area Brunch at Brendans
« Reply #71 on: November 13, 2009, 04:26:48 pm »
Hey Jeff-

I also talked to Dr. House - he was my first consult.  Really nice and very forthcoming.  I liked him a lot.  Interesting what he said about the dizziness. (As if having a brain tumor isn't enough!!)

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

JerseyGirl2

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Re: NYC/NJ Area Brunch at Brendans
« Reply #72 on: November 13, 2009, 07:51:15 pm »
Jeff,

I'm glad you're getting some answers -- or at least suggestions on what to pursue next -- as you continue your research. And I'm glad that you received your consult from Dr. John House. He's extremely nice and thoughtful on the phone ... and even better in person! He's the surgeon who performed my translab and is very much one of my heros!

Catherine (JerseyGirl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ