Author Topic: UPDATED Brain Tumor and Fatigue Brochure online location (Read 5249 times)

ppearl214 · « **on:** September 23, 2009, 09:43:16 am »

Hi all

Back in April, 2007, I shared with everyone here a link for a brochure called "Brain Tumor and Fatigue", written by Nancy-Conn Levin and Dr. Peter Black (NS, Brigham Womans Boston).

Please note that the link in this previous thread no longer works:

http://anausa.org/forum/index.php?topic=3462.0

If anyone needs reference to this brochure (which I highly recommend ALL AN'ers, regardless of treatment option should read) can now be found at:

http://www.brainsciencefoundation.org/Portals/0/Uploads/documents/public/bt_and_fatigue.pdf

It looks like its been updated since my last posting... and hope it helps.

Phyl

4cm in Pacific Northwest · « **Reply #1 on:** September 23, 2009, 10:04:57 am »

Thanks Pearly Whites!

Printed and on my coffee table for my family to read... re caregivers.

(The family who cannot understand why I do not want to stay up and watch a movie with them ... but would rather hit the hay and get shut eye instead

)

DHM
(the Mom driver)

ppearl214 · « **Reply #2 on:** September 23, 2009, 01:04:39 pm »

Most welcome my Dazy Hazy Mazy.. great that is is helpful to you (and yes, those not understanding why earlier bedtime hours are sometimes a necessity.......) and hoping others find it helpful as well.

xoxoxoxo
Pearly White

followingHim · « **Reply #3 on:** September 23, 2009, 01:14:45 pm »

Thank you for the link. I think we will all find it useful as a family.

ppearl214 · « **Reply #4 on:** September 23, 2009, 01:19:52 pm »

Glad to share!

Hope Rob is feeling ok.. and hope the brochure helps.

cheers!

xo
Phyl

Debbi · « **Reply #5 on:** September 23, 2009, 01:59:38 pm »

Thx so much, Phyl - I hadn't seen this before and it definitely explains some things that have been bothering me of late. Really great info!

Debbi

ppearl214 · « **Reply #6 on:** September 23, 2009, 02:29:56 pm »

Glad to hear its helpful, Debbi. Hugglez to you and Willie!

Phyl

Buzzy1 · « **Reply #7 on:** September 24, 2009, 05:23:53 pm »

I saw the earlier message in April mentioning Bark at MGH and Black at Brigham. Have any of you had experience or heard which doctor/place might be better to go for surgery?

Lizzy · « **Reply #8 on:** October 04, 2009, 09:05:40 pm »

Thank you for the link, I knew there was a connection with fatigue and removal of the tumor. Its like a ton of bricks hits you suddenly, your energy drains and your done, atleast I am. Gonna make it to the link now before I run out of energy

MMH747 · « **Reply #9 on:** April 16, 2010, 01:56:35 pm »

Thank you for the link to the brochure. The fatigue has been overwhelming at times, and this information helps to explain why and that it is common. That alone is comforting and reassuring.

CHD63 · « **Reply #10 on:** April 16, 2010, 07:53:02 pm »

Thanks for the new link, Phyl. I am printing it out and will keep it readily available so I do not feel so guilty for succumbing to the fatigue.

Clarice

sues1953 · « **Reply #11 on:** April 18, 2010, 07:44:03 am »

Thanks Phyl, I printed it up as well. Sue

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