Author Topic: Headache side effects from Retrosigmoid approach?  (Read 8073 times)

annac

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Headache side effects from Retrosigmoid approach?
« on: September 29, 2009, 06:46:02 pm »
Has anyone recently had the retrosigmoid approach? Side effects?
2000 -Right side 1.2cm AN FRS w/ Dr. Lederman, Staten Island University Hospital
2009 - 2.4AN - some hearing loss, mild right ear pain, mild tinnitus
looking for options

msmaggie

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Re: Headache side effects from Retrosigmoid approach?
« Reply #1 on: September 29, 2009, 07:54:47 pm »
 Hi there,
I had a retro in Dec., and yes I do have the occasional brief migraine type headache.  It responds to OTC meds and never lasts longer than 30-45 minutes.  It's bearable, but I'd be a liar if I said it didn't hurt during that time period!  That seems to be my only ill effect so far.  Does that help?

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

CHD63

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Re: Headache side effects from Retrosigmoid approach?
« Reply #2 on: September 29, 2009, 09:02:18 pm »
I had retrosigmoid approach 19 months ago at Duke U. and had absolutely no headaches.  I had 80% hearing in the AN ear pre-surgery, 20% post-op.  Minor nausea upon waking up, quickly resolved within the first 24 hours.  My main issue is one of balance, but my case is a little different, in that I have no vestibular nerve function on either side due to having had two retrosigmoid surgeries (see signature below), but I have learned to compensate so is mainly a problem when I am too tired, on uneven ground, or in the dark.  The tinnitus is ever-present but can re-focus most of the time except in noisy environments.

Life is good.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Adrienne

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Re: Headache side effects from Retrosigmoid approach?
« Reply #3 on: September 29, 2009, 09:25:42 pm »
Retro end of May this year.  No side effects.  Headaches for about 7 weeks after surgery, but now-none.
3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

leapyrtwins

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Re: Headache side effects from Retrosigmoid approach?
« Reply #4 on: September 29, 2009, 09:27:02 pm »
I had retrosigmoid in May 2007.

I woke up with double vision, but that only lasted a day or two.  I had balance issues, dry mouth, metallic mouth, and dry eye for a couple of months - that that all went away.  I had slight facial paralysis for about a day post op (steroids took care of it).  I had no headaches - don't now either.

My only long-term, permanent side-effect is SSD (single-sided deafness) - but I have a BAHA implant and that helps a lot.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: Headache side effects from Retrosigmoid approach?
« Reply #5 on: September 30, 2009, 02:30:21 pm »
Anna:

I addressed this on another thread of yours but I think it's worth repeating, here, since you've posed a direct question.

I underwent Retrosigmoid Approach AN surgery in June, 2006 (see my signature).  My neurosurgeon assured me that I wouldn't experience post-op headaches - and I did not.  He said that he uses a method ('sticky patches' + constant suction) to avoid leaving bone dust behind that can cause headaches.  He also claimed that he only moved my cerebellum a 'tiny bit', to further help avoid post-op headaches.  Of course, this is one AN specific patient's experience with one specific neurosurgeon.  I have to add the usual caveat - your results may vary. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

texsooner

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Re: Headache side effects from Retrosigmoid approach?
« Reply #6 on: September 30, 2009, 02:43:01 pm »
Retrosigmoid for me in Aug-2008 and no headaches so far.....knocking on head(simulating wood) and hoping it doesn't give me a headache.

Patrick
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Kathy M

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Re: Headache side effects from Retrosigmoid approach?
« Reply #7 on: October 01, 2009, 06:53:05 pm »
Hi there!

I'm a retro gal too, and I had headaches a few days after I got home from the hospital that were pretty intense.  My surgeon put me back on steroids again for a week and I have not had the first headache since!!!!!

Kathy
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

ombrerose4

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Re: Headache side effects from Retrosigmoid approach?
« Reply #8 on: October 03, 2009, 06:00:09 am »
One week post op retosigmois approach. Having headaches and facial pain mostly in evening that becomes pretty intense at night. I see the neurosurgeon on Monday and hope there is relief ahead because I can't get a good night's sleep.
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

AMD

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Re: Headache side effects from Retrosigmoid approach?
« Reply #9 on: October 07, 2009, 10:17:38 pm »
Retrosigmoid in Nov. 2008, no headaches until about 6 months post-op, then I get occasional weekend headaches.  some only for a few hours and others for most of the day.  i think neck strain is a common factor.  Tylenol usually helps.  If not, i try to sleep it off.  These headaches are different than normal headaches though.  They start out like sinus pressure behind my eyes, and then rotates around my head.  crazy, i know.  but i feel lucky that those are my only issues at this point given my other non-AN related complications.
Left side 1.7 cm AN diagnosed 7/30/08
Misdiagnosed for 8 + years
Surgery, Sub-occipital, 11/17/2008 at Indiana University Hospital
Left SSD
Tumor much larger than expected. Facial nerves intact, but had RARE swelling resulting in brachial plexus injury and tracheostomy after surgery.

mll

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Re: Headache side effects from Retrosigmoid approach?
« Reply #10 on: November 06, 2009, 05:37:26 pm »
nine days post retrosigmoid and no headaches---knock on wood

HeadCase2

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Re: Headache side effects from Retrosigmoid approach?
« Reply #11 on: November 10, 2009, 09:33:45 am »
  I also had the retrosigmoid approach, and have not had problems with headaches.  :)
Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

nteeman

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Re: Headache side effects from Retrosigmoid approach?
« Reply #12 on: November 10, 2009, 12:11:33 pm »
Retrosigmoid in January '09,  no headaches.

Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

4cm in Pacific Northwest

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Re: Headache side effects from Retrosigmoid approach?
« Reply #13 on: November 29, 2009, 10:23:54 am »
Had the r/s... no headaches for 2 years after surgery... now these are starting up...

My concern is that the muscle has now started to grow into the titanium mesh that was placed over the craniotomy hole.  :-\

I am curious as to "how many R/S  people got the headaches later on ... down the road also?"

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

leapyrtwins

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Re: Headache side effects from Retrosigmoid approach?
« Reply #14 on: November 29, 2009, 04:45:00 pm »
DHM -

I hope I don't jinx myself by posting this, but I was 2 years post op in May 2009 and I still don't have headaches.

I also had titanium mesh with my craniotomy.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways