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Author Topic: No headaches  (Read 9010 times)

stoneaxe

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No headaches
« on: September 29, 2009, 07:40:23 pm »
I'm headache free! I'm almost afraid to even say it. I haven't had a single AN headache since surgery. No meds at all.

BIG sigh of relief... ;D ;D ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

ppearl214

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Re: No headaches
« Reply #1 on: September 29, 2009, 08:33:13 pm »
BIG is an understatement.......... congrats!  Keeping those wellness wishes coming to ya.. .and looking forward to seeing you and the boss in a few weeks!

Well done....  keeping fingers crossed this path continues....
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: No headaches
« Reply #2 on: September 29, 2009, 08:47:34 pm »
Amazing - congrats!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: No headaches
« Reply #3 on: September 30, 2009, 08:34:43 am »
Great news with all you have been through!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

yardtick

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Re: No headaches
« Reply #4 on: September 30, 2009, 09:06:06 am »
That is just about the best news I have had in a long time.  Loved your pictures Stoneaxe.

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Nani

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Re: No headaches
« Reply #5 on: September 30, 2009, 09:29:27 am »
Congrats!
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- AN surgery 3-17-09. 3.8 x 5.1cm tumor.  1 month in the hospital and a couple in ST, OT and PT.

*People are always going to be behind you telling you you can't.  The important thing is to turn around and say 'watch me'.

cindyj

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Re: No headaches
« Reply #6 on: September 30, 2009, 11:54:53 am »
Glad to hear it, Bob!  Happy paddling to you!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: No headaches
« Reply #7 on: September 30, 2009, 02:22:53 pm »
Bob ~

I won't bore you with a lot of words.  Well, just one: congratulations!  :D

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Syl

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Re: No headaches
« Reply #8 on: September 30, 2009, 07:50:07 pm »
No headaches? How'd you manage that? Congratulations!!

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

iamjlee

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Re: No headaches
« Reply #9 on: October 01, 2009, 11:05:07 am »
i am happy for you :D
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doctorb

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Re: No headaches
« Reply #10 on: October 01, 2009, 02:53:43 pm »
Quote from: stoneaxe on September 29, 2009, 07:40:23 pm
I'm headache free! I'm almost afraid to even say it. I haven't had a single AN headache since surgery. No meds at all.

BIG sigh of relief... ;D ;D ;D

You don't know how lucky you really are.  Eight weeks after Surgery and Headaches are still my worst enemy...medication does little to help...only bed rest really helps me.
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joebloggs

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Re: No headaches
« Reply #11 on: October 01, 2009, 04:33:09 pm »
Wooo hooo Stoneaxe... rocking it so hard! 

P.S. (and this has nothing to do with headaches...) I'm thinking of paddling across Scotland along the Caledonian Canal for charity.  How do you feel about that?  It's 60miles/95km and part of it is paddling the entire length of Loch Ness.  I think next May will be the inaugural trek/reconnaissance mission - after that I might think about taking it big aka CCBC.  If it happens I think you should come over for it!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

mellowrama

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Re: No headaches
« Reply #12 on: October 01, 2009, 04:40:59 pm »
great news!   ;D
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22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

stoneaxe

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Re: No headaches
« Reply #13 on: October 24, 2009, 04:01:17 pm »
Oops...forgot about this post. Thanks all...still headache free...well one small one but I think it was a need for caffiene.

JB...that's a heck of a challenge. Twice as long as the CCBC...I assume not just a one day event? At a good pace it would still take 15 hours or so. It would be awesome to get on the water together someday.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

joebloggs

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Re: No headaches
« Reply #14 on: October 24, 2009, 05:32:50 pm »
Gosh no!  I think Loch Ness alone is about 23 miles!  Think it'll be a few day challenge.  Rumour has it there's a pub along the route you can just paddle into.  I'm feeling that!  Shall let you know how the plans get on!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!
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