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Author Topic: 8 yr anniversary  (Read 6097 times)

Cheryl R

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8 yr anniversary
« on: November 01, 2009, 10:14:17 am »
Today is the 8 yr anniversary of my first AN surgery!        Hard to believe it has been that long and what would be happening in the future when became NF2 in time.         Just had to add this as is something I do not forget.         It has made life quite a roller coaster ride.       I do feel very lucky in spite of the ups and downs!
                                                                   Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

DR

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Re: 8 yr anniversary
« Reply #1 on: November 01, 2009, 12:04:23 pm »
Congratulations on your anniversary!

- Dennis
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

Cheryl R

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Re: 8 yr anniversary
« Reply #2 on: November 01, 2009, 05:34:56 pm »
Thank you Donnalynn and all.             I am just grateful that this forum is here to  to let people know that that there is life after finding an AN!          There was almost nothing being said back then that one can recover welll in time.
    My excitement of the day was doing a Target and Walmart run.   Much more fun than  spending the day in an OR and ICU.           Target now has their Pepperidge Farm TimTams out!
I did not buy any  but good to know they are available for the holiday season.           Cheryl R   
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

saralynn143

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Re: 8 yr anniversary
« Reply #3 on: November 01, 2009, 06:40:27 pm »
Hi Cheryl, I'm glad it was a good day and hope that your whole year is blessed.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

mimoore

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Re: 8 yr anniversary
« Reply #4 on: November 01, 2009, 06:55:12 pm »
Wow look how far you have come.
Your kind words and lovely personality are something we all cherish.
Here's to health.
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

yardtick

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Re: 8 yr anniversary
« Reply #5 on: November 01, 2009, 08:53:23 pm »
Wow 8 yrs.  All the best Cheryl  :-*

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: 8 yr anniversary
« Reply #6 on: November 01, 2009, 10:19:16 pm »
Cheryl -

eight years?!  What a milestone.  I had no idea your first AN was so many years ago.

Life is short.  Buy some of those Tim Tams and have one for me - I've never had one.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: 8 yr anniversary
« Reply #7 on: November 01, 2009, 10:29:35 pm »
Eight years? For some reason I had no idea it has been that long. Well done, you are a great example of how to keep on living life in the face of an AN - or two!

Have I knit you a hat yet?

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Debbi

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Re: 8 yr anniversary
« Reply #8 on: November 02, 2009, 07:45:05 am »
Congratulations, Cheryl!  Sending you a big hug!

I will never forget how touched I was when you mailed me your leftover eye patches last year.  It was an act of complete kindness that I'll always remember. 

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

tenai98

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Re: 8 yr anniversary
« Reply #9 on: November 02, 2009, 09:13:22 am »
Congrats on reaching this milestone...
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

ppearl214

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Re: 8 yr anniversary
« Reply #10 on: November 02, 2009, 09:16:55 am »
Cheryl, congrats on the 8th ANniversary... I know its been a difficult road but as you note.... you are VERY lucky and I am blessed to have been able to give hugglez in person!  :)

xo
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Cheryl R

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Re: 8 yr anniversary
« Reply #11 on: November 02, 2009, 10:17:11 am »
Steve,    Doesn't seem like should have been that long.        Plus Kate B is also as I was done at the first of Nov 2001 and she was the last of the month.          But then I went on to have the facial neuroma surgery in March 2006 with the CSF leak 2 weeks later  and the April 2008 AN on the other side.                        I so hope this is it.                 I doubt if I would have hung around here with just the one as did well in time after it.         Now I have more of which annoyance of the day is it going to be.     LOL!  That is more if go some where and deal with the hearing some people or walking in certain places.   
No hat, as think mentioned it right at first and then didn't say any more about it.              Any pastel is fine though!
                                                  Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Kaybo

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Re: 8 yr anniversary
« Reply #12 on: November 02, 2009, 10:57:13 am »
Cheryl~
A little late, but big hugs to you none the less!  I am glad that you had a good day spent at 2 of my favorite places!!

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: 8 yr anniversary
« Reply #13 on: November 02, 2009, 04:22:13 pm »
Cheryl ~

Please accept my slightly belated congratulations on achieving the 8th anniversary of your original AN surgery.  Your attitude is infectious (in a good way) and your presence on these forums much appreciated.  I'm sorry you've had to deal with NF2 issues but glad you chose to be a part of our 'family'.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: 8 yr anniversary
« Reply #14 on: November 02, 2009, 04:39:51 pm »
Cheryl .....

You are truly a survivor in the best sense of the word.  I cannot imagine having gone through all of the things you have and still have such a caring, compassionate attitude!  You help us all on a daily basis!  Congratulations on 8 years out!!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011
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