Paper on Occipital Neuralgia

[Captain Deb]

I was snooping around on the web and ran across this.  It has a lot of medspeak in it, but really explains a lot of my own symptoms.  A lot of good info on nerve blocks and Botox as well.

www.painmanagementrounds.org/crus/painmgt_07.pdf

Capt Deb

[Captain Deb]

I also found two Occipital Neuralgia groups on facebook.

http://www.facebook.com/group.php?gid=44913483837

http://www.facebook.com/home.php?#/group.php?gid=165457894202&ref=mf

The latter has a lot of information about docs doing surgery and the Medtronic stimulator implant for this condition. Here are a few articles on the stimulator

http://wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1214482108297

http://www.neurotechreports.com/pages/occipitalnerve.html

and a you tube video of a guy who had one:

http://www.youtube.com/watch?v=j_STzpWLSHA

http://www.youtube.com/watch?v=T2TvRL8BXpk&feature=related

(Cheese on bread, this looks like a post from  our own dear sweet Daisy Head Maisey AKA Hilary AKA 4cm!)

There has to be a cure for this crap out there somewhere that will work for me and others like me that won't force me to sell my house!--research, research, research!!!!

Capt Deb

[Static]

Hey Deb!  LTNS!!  Still here and still going crazy with the headaches.  I'm just really tired of it all and am ready for a cure.  Enough already!!!  BTW, thanks for posting the interesting articles...... things I have been trying to tell my doc for quite some time   Hope you and Sadie are well )

[Captain Deb]

Hey Karen!

Good to see you here.  Or rather, too bad I have to see you here, I should say.  Still in headache-land, huh?  That sucks.  I am having Botox in 5 weeks and can't wait!  Have you ever had an occipital nerve block?  They worked pretty good for me for a year, but the doc says no more cortisone in the noggin for a while.  Researching my options for a surgical cure at the moment. I think I've got some scar tissue that is irritating the nerves in my head.  Maybe I can find a doc that can untangle that mess!

Hig big hugs to the pups and the kids for me.

Captain Deb