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Author Topic: Newly Diagnosed  (Read 2266 times)

sues1953

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Newly Diagnosed
« on: January 10, 2010, 10:22:36 am »
Hi I'm Susan, I am soooo anxious to talk to someone.  Anybody out there????  Im not sure I am getting through.
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3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

lawmama

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Re: Newly Diagnosed
« Reply #1 on: January 10, 2010, 10:39:13 am »
Hi Susan,

You are getting through!  How are you?

Lyn
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9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

leapyrtwins

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Re: Newly Diagnosed
« Reply #2 on: January 10, 2010, 11:21:47 am »
Sue -

I just replied to your other thread.

http://anausa.org/forum/index.php?topic=11529.0

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Dan

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Re: Newly Diagnosed
« Reply #3 on: January 11, 2010, 03:37:41 am »
Susan,
You are getting through.  If you want to talk to someone (telephone) go to subject and type in WTT (Willing-to-Talk) there are alot of people you can call and talk to if that is what nyou want.  I'm not on the list because I live in germany.  Good Luck.

Dan in Germany
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

Lynn Mc

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Re: Newly Diagnosed
« Reply #4 on: January 11, 2010, 03:44:21 am »
Hi Susan,

We are here. 

Lynn
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

leapyrtwins

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Re: Newly Diagnosed
« Reply #5 on: January 11, 2010, 07:02:35 am »
Susan -

I'm on the WTT list that Dan mentions.  The list is not posted on the Forum - it's given out by the ANA along with their informational literature - but if you'd like to talk, please PM or email me and I'll give you my phone number.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

msmaggie

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Re: Newly Diagnosed
« Reply #6 on: January 11, 2010, 03:13:08 pm »
Hey Susan,
Where are you located?  You have come to the right place to get encouragement and support.  Don't be afraid to ask any and all questions.  We are very user friendly!
Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Jim Scott

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Re: Newly Diagnosed
« Reply #7 on: January 11, 2010, 05:20:58 pm »
Hi, Sue - and welcome!

Your message received...'loud and clear'.  We're all here for you.  Just let us know what you need.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kiwi Don

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Re: Newly Diagnosed
« Reply #8 on: January 11, 2010, 10:55:49 pm »
Hi Sue,
Heard and ready to respond, You now have the ears, and screens, of a great bunch of folks that are willing to answer most questions and if they can't they will point you in the right direction.
Sorry that you have had to join this club, but welcome.

Hang in there, we are here to help.

Don
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24July09 Diagnoised with Left AN 2.0cm x 1.9cm
Translab Scheduled 7April10

"Received the Ticket, Boarded the Train, and now the Journey has begun??"
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