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Author Topic: I did a no-no!  (Read 14764 times)

Lynn Mc

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Re: I did a no-no!
« Reply #15 on: January 19, 2010, 06:58:31 pm »
That was not a no-no, that was a yipeee!  Good for you.  Can't wait to see what your DR's say.  I am sure you are reading the right.  I also get my MRI & report ASAP (usually before the Doctors!)

Happy Trails,
Lynn
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

yardtick

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Re: I did a no-no!
« Reply #16 on: January 19, 2010, 07:02:52 pm »
Very good news!

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

lori67

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Re: I did a no-no!
« Reply #17 on: January 19, 2010, 07:50:10 pm »
The doctors know we look at these things!  How could you not look?  It's your head!

Anyway, happy for the darkening of the "blob" and I am confident your doctor will second your opinion!   ;D

Looks like I'm not the only halo-dropper around here though!  Tsk, tsk....
Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

msmaggie

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Re: I did a no-no!
« Reply #18 on: January 19, 2010, 08:13:09 pm »
Consider all appendages crossed, just for you!  Good news for all of us who think so highly of you!  God luck wishes coming your way ;)

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Sheryl

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Re: I did a no-no!
« Reply #19 on: January 19, 2010, 09:05:06 pm »
Hey you  ;D  We are two peas in a pod - I always "peek" or get info ahead of time!!  Glad to hear good news so far.  We are going strong in 2010 with much better medical info so far (sent you a PM via e-mail).  Busy watching the Massachusetts Senate race from Florida - it's proving verrrrrrrry interesting.

Sheryl & Larry
Spouses with brain tumors  :o
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

Mickey

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Re: I did a no-no!
« Reply #20 on: January 20, 2010, 09:12:44 am »
Great news! It so nice to see positive outcomes from the course of actions we take. Very inspirational to see how all the treatments can have a good result to our AN problems. Here`s one for cyberknife and the terrific person who made that decision, Phyl! Best wishes, Mickey
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ppearl214

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Re: I did a no-no!
« Reply #21 on: January 20, 2010, 02:14:40 pm »
I did a double no-no!  :o  :o 

Original post in "Radiation" instead of "Post Treatment"  :o  :o

Had to move my own thread... go figure.   ::)  Musta' been  too excited over what I saw on the MRI films!

thanks for the wishes all.. and Sheryl, will check email later.  Life has stunk for me lately but will check.

Will keep you all updated for the appt on 2/5.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Seal

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Re: I did a no-no!
« Reply #22 on: January 20, 2010, 03:30:50 pm »
Excellent news Phyl !!    So does this mean that you will be doing the century ride with me in September????????? :o
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Diagnosed 1/14/09 - 2.4cm AN right side --- about 70% cycstic
Retrosigmoid wiih McKenna & Barker - total removal successful on April 13th. 
Issues: balance, facial & mouth numbness, hearing loss right side
Results:   numbness gone, balance is good, SSD right side. Great results.

ppearl214

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Re: I did a no-no!
« Reply #23 on: January 20, 2010, 05:03:42 pm »
Quote from: Seal on January 20, 2010, 03:30:50 pm
Excellent news Phyl !!    So does this mean that you will be doing the century ride with me in September????????? :o

Hey Seal! Long time no see! :)  Century Ride?  Um......  will let ya know! :D


UPDATE:

Got the written MRI report... and to sum it up....

"... there is no significant interval change to the previously identified (doh!) 8mm (TV) x 7mm (AP) x 4.5mm (SI) homogeneously enhancing lesion along the medial aspect of a mildly expanded left internal acoustic canal, consistent with the patients's known acoustic neuroma..."


... and the docs STILL haven't seen the films or report yet! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: I did a no-no!
« Reply #24 on: January 20, 2010, 09:21:25 pm »
Well it certainly sounds like the radiologist agrees with you Dr. Phyl  ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Larry

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Re: I did a no-no!
« Reply #25 on: January 20, 2010, 11:51:01 pm »
I reckon you should go for a career change Dr Phyl - geesh, next we'll be seeing you on Oprah!


laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

tsl

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Re: I did a no-no!
« Reply #26 on: January 21, 2010, 12:22:44 pm »
Phyl,
Based on your extensive research an personal experience, my money would always be on you on the subject of acoustic neuromas.  

I am very happy for you and will wait patiently (not really patiently) for the official announcement.

Take care,
Theresa
« Last Edit: January 21, 2010, 01:15:48 pm by tsl »
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AN diagnosed Dec 2006
Approx. size 9 x 6  x 4 mm
Proton Beam radiosurgery wtih Dr. Jay Loeffler (radiation oncologist) and Dr. Paul Chapman (neurosurgeon) at Mass. General on Nov.2, 2007

Pooter

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Re: I did a no-no!
« Reply #27 on: January 21, 2010, 12:47:18 pm »
Okay, so I'm late to the party.. Congrats on the good news, Phyl!  Now, let's make official with your appointments.  Yea!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

b91221b

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Re: I did a no-no!
« Reply #28 on: January 22, 2010, 10:43:47 am »
Wow!!  What encouragement to the rest of us CK posties...Thanks, Phyllis!!!
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Barbara

ppearl214

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Re: I did a no-no!
« Reply #29 on: January 22, 2010, 11:26:45 am »
you're welcome, Barbara (great to see you!) :)

As for the rest of ya.... :) :) :) ...... couldn't handle this without the scurvy scallywag and wenches...... truly! :)

MRI done... written MRI report.... hearing test and NS follow up Feb 5... almost done.... celebration for post-CK 4 yr.... ready to rawk! :)

Thanks all for the encouragement.  Been an amazing ride. Let's see what the Pro's say.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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