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Author Topic: Off to the hospital - fix csf leak  (Read 4860 times)

kenneth_k

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Off to the hospital - fix csf leak
« on: May 25, 2010, 11:04:33 am »
Hello everyone.

I'm off to the hospital tomorrow to have my csf leak fixed. We will start with a lumbar drain and observation for a week. If that doesn't work, it's surgery again.
Wish me luck. ;)

I'll be back in one or two weeks.

Kenneth
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Jim Scott

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Re: Off to the hospital - fix csf leak
« Reply #1 on: May 25, 2010, 12:05:03 pm »
Kenneth ~

I'm not certain that you'll see this but our thoughts and prayers are with you.  Looking forward to good news when you next post.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

moe

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Re: Off to the hospital - fix csf leak
« Reply #2 on: May 25, 2010, 01:06:48 pm »
Kenneth,
Our thoughts and prayers are with you to get this csf leak behind you.
Hang in there. Get medicated as best you can for the headaches, as I hear it hurts!
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

CHD63

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Re: Off to the hospital - fix csf leak
« Reply #3 on: May 25, 2010, 03:53:47 pm »
Kenneth .....

Many thoughts and prayers for a successful and uneventful procedure to stop that ole CSF leak!  Not fun!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: Off to the hospital - fix csf leak
« Reply #4 on: May 25, 2010, 05:48:12 pm »
Good luck, Kenneth.

Hope they get you patched up quickly!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

jennifer7

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Re: Off to the hospital - fix csf leak
« Reply #5 on: May 25, 2010, 06:37:10 pm »
Kenneth
Hope all heals quickly and you are back to gardening soon
Jennifer
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kiwi

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Re: Off to the hospital - fix csf leak
« Reply #6 on: May 25, 2010, 07:50:11 pm »
Hi Kenneth

Good Luck, I hope it goes well and they manage to patch it up asap.  Hopefully you won't have to have surgery.

Jacqui
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3.6cm AN Left side diagnosed Dec 09.
Translab surgery 16th March 2010
Left SSD, Facial Paralysis
CSF Leak surgery 11th May 2010

Tracy Lynn

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Re: Off to the hospital - fix csf leak
« Reply #7 on: May 25, 2010, 10:03:20 pm »
Good luck Kenneth, oy what a mess.

Prayers are with you.
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Right ear, 3.5 cm  Diagnosed 3-23-10 pre-op symptoms: 90% loss of hearing, headaches, Tinnitus.
Translab surgery 5-18-10
Post-op symptoms: SSD, Tinnitus, wonky-head
BAHA implant: 9-2-10

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opp2

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Re: Off to the hospital - fix csf leak
« Reply #8 on: May 26, 2010, 06:50:32 am »
Thinking of you Kenneth. Best wishes.
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

Lizard

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Re: Off to the hospital - fix csf leak
« Reply #9 on: May 26, 2010, 09:16:45 am »
Hope everything goes well and you are home and recovering with no incident...
Thinking of you, please let us know how everything turns out  :)
Take care,
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

kenneth_k

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Re: Off to the hospital - fix csf leak
« Reply #10 on: June 03, 2010, 09:45:34 am »
I'm back after 8 "wonderfull" days in the hospital.
The good news is, the lumbar drain actually worked :D
I have stopped leaking, so I guess I dodged a bullet this time.
I also had a MRI and it's clean.

Doctors orders are, take it slow for 2 weeks and call him, if I get into trouble.

Golly, it feels great to be home again.

Thanks for all your support.

Kenneth
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4cm in Pacific Northwest

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Re: Off to the hospital - fix csf leak
« Reply #11 on: June 03, 2010, 09:52:03 am »
Great new! Welcome home! :)

What a journey you have been through  ::)   Oy ya ya.

Wellness Wishes. :)

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

moe

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Re: Off to the hospital - fix csf leak
« Reply #12 on: June 03, 2010, 10:07:13 am »
Kenneth,
Welcome Home!
Wow, 8 wonderful memorable days. I'm sure that  felt like eternity! Hopefully you didn't suffer with headaches through the ordeal, and so glad everything is ok now.
 Follow doctor's orders now! Take it slow, let us know how you continue to do :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Lizard

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Re: Off to the hospital - fix csf leak
« Reply #13 on: June 03, 2010, 11:06:47 am »
That's great and please listen to your Dr's, I'm sure you wouldn't want to go through that all over again...
Rest and relax,
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jim Scott

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Re: Off to the hospital - fix csf leak
« Reply #14 on: June 03, 2010, 11:26:07 am »
Hi - and welcome back, Kenneth!

I'm pleased to learn that all went well and the CSF leak was stopped without any drama.  Rest, regroup and get on with healing - and your life.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.
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