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Author Topic: Good News instead of Bad  (Read 4660 times)

kiwi

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Good News instead of Bad
« on: July 15, 2010, 03:20:04 pm »
I'm just over 4 months post op from my original surgery and 2 months post op from my CSF surgery and at 38 I have just found out I am pregnant with my first child!!  After all this bad AN stuff and leaks it is finally great to have some positive news.

There is definately life after a brain tumour.

Jacqui
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3.6cm AN Left side diagnosed Dec 09.
Translab surgery 16th March 2010
Left SSD, Facial Paralysis
CSF Leak surgery 11th May 2010

Jim Scott

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Re: Good News instead of Bad
« Reply #1 on: July 15, 2010, 03:35:10 pm »
Congratulations, Jacqui!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

nancyann

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Re: Good News instead of Bad
« Reply #2 on: July 15, 2010, 04:53:14 pm »
WONDERFUL NEWS !!!  WE LIKE HAPPY HERE !

Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

CHD63

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Re: Good News instead of Bad
« Reply #3 on: July 15, 2010, 05:55:11 pm »
Jacqui .....

How wonderful!!  Congratulations and all that stuff.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

nanramone

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Re: Good News instead of Bad
« Reply #4 on: July 15, 2010, 06:03:43 pm »
How nice to have this good news!
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Jackie

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Re: Good News instead of Bad
« Reply #5 on: July 15, 2010, 06:09:46 pm »
From one Jackie to another Jacqui,

Very best wishes, for a healthy happy baby, and many more blessings in your future!!
How very very exciting!!!
Jackie in oregon
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

sues1953

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Re: Good News instead of Bad
« Reply #6 on: July 15, 2010, 06:24:13 pm »
Jacqui...What great news....congratulations.

Sue
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3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

iluuvpups

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Re: Good News instead of Bad
« Reply #7 on: July 15, 2010, 06:42:27 pm »
Congratulations!  That's wonderful news!!
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Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

free2be

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Re: Good News instead of Bad
« Reply #8 on: July 15, 2010, 06:55:21 pm »
Jacqui,

CONGRATULTIONS, that truly is great news.

Take care of yourself; best wishes and prayers,
Connie
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Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

tenai98

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Re: Good News instead of Bad
« Reply #9 on: July 15, 2010, 08:13:47 pm »
Congrats
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

leapyrtwins

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Re: Good News instead of Bad
« Reply #10 on: July 15, 2010, 09:03:34 pm »
VERY exciting news!!! 

Congratulations  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

yardtick

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Re: Good News instead of Bad
« Reply #11 on: July 15, 2010, 09:40:53 pm »
Oh I love babies!!!  Such wonderful news, you must be dancing on cloud 9.

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

opp2

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Re: Good News instead of Bad
« Reply #12 on: July 15, 2010, 11:45:33 pm »
I am so pleased for you. I was just thinking how much I miss my babies since I've been away. I've never been away from them for this long before. You are going to embark on a fantastic journey. Enjoy every moment.
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

leapyrtwins

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Re: Good News instead of Bad
« Reply #13 on: July 16, 2010, 07:29:45 am »
Almost forgot.

As Anne Marie - and others have said - we just LOVE babies.

It's probably a little early to say this, but don't forget to post a picture when the baby is born  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lizard

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Re: Good News instead of Bad
« Reply #14 on: July 16, 2010, 09:00:48 am »
Jacqui,
I'm so happy for you!  How exciting to have gone through this and come out the other side, and now you are becoming a Mom!!! What a year you've had.

Congrats, Mom!!!!

Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt
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