Hi All,
I have not posted in quite some time, but could really use some input from those with knowledge or personal experience. I just had my two year MRI that related to my Aug. 2008 GK treatment. My neurosurgeon (not the doctor who actually did the treatment) told me that the tumor had grown between 1 and 2 mm, approximately 1.8 mm's, to be exact. He said it measured 12.8 mm's. My history of the last anniversary MRI in Aug. 2009 showed a "possible, but not completely sure" amount of shrinkage with a very tiny amount of necrosis. I lost 50% of hearing recognition suddenly in Dec. 2009. They ran another MRI at that time and it seemed to be the same size as Aug. 2009. The neurosurgeon said that my tumor's growth was not considered "common", but he has seen it happen. He wants to run the MRI again in four months.
I am very disheartened. Should I be extremely concerned? I feel especially disturbed because I was told I was not a good candidate for surgery due to autoimmune problems. The neurosurgeon also told me it would be way too early for another GK treatment and they do not have enough data on a second GK treatment and a possible cancerous outcome.
Thank you for any input you can provide! I am really feeling anxious and pretty down about the news.
