Author Topic: Donnalynn's Husband - Please Pray  (Read 77319 times)

Cheryl R

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Re: Donnalynn's Husband - Please Pray
« Reply #105 on: September 12, 2010, 06:17:34 am »
Donnalynn, ramble all you want here because right now you need a place and way to help you cope with what your family is going thru.          It is horrible to hear what the dr has put you thru and to know some is worse due to his poor care.   It just makes me sick to know you kept asking about the heparin dose and was told you were wrong.          That is something pretty basic and he should have known!                 This has to be so hard to know that what can happen is  not known!        You have been in my thoughts and prayers and hope your guardian angel is working overtime to keep Jim safe.                        Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

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Re: Donnalynn's Husband - Please Pray
« Reply #106 on: September 12, 2010, 06:44:47 am »
Oh, Donnalynn ..... my heart aches for what you are having to go through ..... and then to find out the medical "professionals" have botched his treatment is beyond belief.

Many many thoughts and prayers and much love coming your way.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

iluuvpups

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Re: Donnalynn's Husband - Please Pray
« Reply #107 on: September 12, 2010, 07:01:07 am »
Wow.  I can't believe all you're going through Donnalynn.  Jim sounds like a wonderful man and you're lucky to have each other.  I hope he makes it through this!  Much love and hugs.  --Carol Ann
Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

leapyrtwins

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Re: Donnalynn's Husband - Please Pray
« Reply #108 on: September 12, 2010, 07:37:16 am »
Donnalynn, I believe in miracles and the power of prayer, too.

Continuing to believe - and to pray - for both you and Jim.

Hang in there  :-*

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sues1953

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Re: Donnalynn's Husband - Please Pray
« Reply #109 on: September 12, 2010, 08:42:29 am »
Dear Donnalynn,

I am late in reading about Jim and I am so sorry about what is going on.  You were such a support to me when I needed it and I want you to know that I am praying for you and Jim.  This is a nightmare.  God bless you.

Sue in Michigan
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

Kaybo

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Re: Donnalynn's Husband - Please Pray
« Reply #110 on: September 12, 2010, 08:54:15 am »
Donnalynn-
My heart, too, is breaking over all the you are having to endure. It is certainly more than enough! However, look at all you have overcome & all that Jim has overcome also. I think he must be like me - if you tell me I can't do something, I'm going work even harder to prove you wrong...even if it is just the will to make it thru a week! Thank you for taking the time & energy to keep us so well uPdated - we really do care. I would hate that we might have to meet under these circumstances, but know that if it comes to it, we would welcome you with open arms to Houston & take great care of you!

Try to rest...
Love you,
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

ombrerose4

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Re: Donnalynn's Husband - Please Pray
« Reply #111 on: September 12, 2010, 09:43:26 am »
Donnalynn,

You truly are an amazing woman. Taking care of Jim, Vanessa and yourself, reaching out to all of us in our times of need, keeping us updated on Jim's progress- this is why there is such an outpouring of love and support for you and your family. Our prayers continue! :)
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

free2be

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Re: Donnalynn's Husband - Please Pray
« Reply #112 on: September 12, 2010, 10:10:50 am »
Donnalynn,

My heart goes out to you and Jim. You are both in my prayers. I can't believe the doctor messed this up even under your protests. That is so....I don't know the word. If the medicine made the leg clot multiple in the lungs would that not mean all the clots we because of the medicine mess up and that it probably isn't cancer? Maybe I'm not following it all, but just wondered. No reply needed, obviously. I just hope the new doc can get it under control and he will get better. Sounds like he is a tough one, as are you! So, with his spirit and all the prayers, he has to get better! Praying and thinking of you both.
Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

msmaggie

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Re: Donnalynn's Husband - Please Pray
« Reply #113 on: September 12, 2010, 11:11:38 am »
Donnalynn,
We are standing firm in our offer to help here in Houston. In tne meantime, we are holding you and your family close in prayer as you move through this medical nightmare.  You are doing a remarkable job of handling all of this, and I pray that God will continue to strengthen and uphold you as only He can!   
Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

MLB57

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Re: Donnalynn's Husband - Please Pray
« Reply #114 on: September 12, 2010, 03:41:59 pm »
Hi Donnalynn,

Haven't been here for a few days--I am glad to hear your hubby is still hanging in there and that's certainly a good thing. It sounds like he will have a long road ahead of him but we can only keep positive and hope for the best.

You and hubby are in my thoughts..

Best always,  Mary (Grammie "Mimi")
1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!

jaylogs

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Re: Donnalynn's Husband - Please Pray
« Reply #115 on: September 12, 2010, 05:33:38 pm »
Oh Donnalynn, I too am just now catching up on all this! I am just in utter disbelief at how badly the initial treatments went!  My thoughts and prayers are with you!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Kathy M

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Re: Donnalynn's Husband - Please Pray
« Reply #116 on: September 12, 2010, 06:38:45 pm »
I am so very concerned for you, your wonderful husband, and your daughter.  I feel like I've known you all for such a long time...that's what happens when you touch people through caring hearts, no matter the distance.  Prayers for you all.  Thank you so much for updating us.

Much love,

Kathy
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

moe

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Re: Donnalynn's Husband - Please Pray
« Reply #117 on: September 12, 2010, 10:19:36 pm »
Donnalynn,
What to say? Prayers continue, I'm sooo sorry to hear about this. Makes me feel ill, I can only imagine what you are going through.

You are so strong, and you and JIM WILL get through this. Thank for the update. He sounds wonderful, just like you :-*
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #118 on: September 13, 2010, 01:09:00 pm »
Donnalynn, how are you and Jim this morning? I hope that you were both able to rest up this weekend and feel ready to proceed with Jim's treatment test and additional testing. I'm so sorry about the circumstances that led Jim to this point, and I'll keep praying for his recovery.

Sending love,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Soundy

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Re: Donnalynn's Husband - Please Pray
« Reply #119 on: September 14, 2010, 09:07:15 pm »
Continued prayers winging their way north
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery