Hello Everyone.
Today marks the one year anniversary since I had my mid fossa surgery! I’ve been post-op for a year now – wow! What a nice milestone to hit.
The surgery was a success however, the wonderful doctors at House were not able to save my hearing, which of course resulted in SSD. I am happy to say that aside from that, I am basically back to normal. I do get a little ‘foggy / wonky’ in my head once in a while, but not often anymore. My tumor was small (on my left side about 7mm) and hadn’t yet affected my balance. After the surgery that was my biggest challenge. I remember waking up, opening my eyes, and the entire room looked like it was tipped on its side. Very freaky! It took a good month before I felt like I could safely walk around without needing to hold on to something, about 2 months before I even wanted to drive again, and about 6 months before I could run on a treadmill without feeling that I was going to fall off. Now, I’m back to my normal active self, working-out, lifting weights, biking, swimming and being active. I am even impressed how well my scar healed. Its up in my hairline, and even when I have my hair short on the sides, it’s hardly noticeable. When my hair grows in for a week or so, it’s totally invisible. I actually sported a mohawk for a while just to show it off
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I thought I would have a hard time dealing with SSD. Yes, it is frustrating especially when I’m in loud places or where there’s a lot of echoes, and I’m trying to have a conversation with someone; or even when I want to lay on the couch on my left side and watch TV! However, I was amazed how quickly you adjust. You sit and stand in strategic spots to keep your SSD side away from the action. When I’m walking with someone, I walk so they’re on my right side. In normal day to day activity I don’t really notice the SSD, although at work every now and then I still try to hold the phone up to my left ear.
I wouldn’t wish SSD on anyone but the truth is, it is not as bad as I thought it was going to be.
To anyone who is faced with an upcoming surgery, first of all, I’m sorry you have to go through this… it’s scary, not fun, and is life changing. Just know that you will get through it a stronger person inside. Surround yourself with family and friends. Don’t hesitate to reach out to anyone on this forum (including me). Before my surgery I did a lot of reading and research, but I found it helped to talk with someone who has gone through it. Their understanding of what you’re going through isn’t something that your family and friends can offer.
To all of you sent me encouragement before and after my surgery, I want to thank you again! It has meant a lot to me.
Jay
