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Author Topic: Update on GramaSuby!  (Read 20310 times)

CHD63

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Re: Update on GramaSuby!
« Reply #15 on: October 06, 2010, 07:07:01 am »
Whew, that's a relief.

Prayers continue.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Lizard

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Re: Update on GramaSuby!
« Reply #16 on: October 06, 2010, 09:35:19 am »
Great news!  A reaction sounds like a totally rational explanation. 
Thank you again for the updates.
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

moe

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Re: Update on GramaSuby!
« Reply #17 on: October 06, 2010, 09:43:51 am »
Thanks Cindy for the updates, and so glad to hear it isn't meningitis.
I was impressed though that she was walking the hall and not falling over :o so her balance seems to be doing ok!
Well wishes continue,
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

cindyj

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Re: Update on GramaSuby!
« Reply #18 on: October 07, 2010, 04:27:41 pm »
Just got to talk to Sue herself on the phone a bit ago...she sounded good, but will be in the hospital for 3 more days.  Turns out she does have an infection, though not meningitis.  They tell her it's an infection related to/due to pneumonia (?)  She must stay to complete the course of antibiotics.  Has been very rough due to the infection - she had to be restrained/strapped into the bed as she was so out of it (dementia type stuff, apparently).  Has had to endure many pokes and prods, including shots in the stomach :-[

Other than that, the AN related issues are some facial weakness and the normal things that come along with that.  The docs tell her it is temporary so, I assume the facial nerve was only stressed.  She is relying on a walker at the moment, but can get around. 

I will let her give you a full report when she returns to the forum...hopefully won't be too long for her.

Cindy

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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: Update on GramaSuby!
« Reply #19 on: October 07, 2010, 04:31:14 pm »
Thanks for that update, Cindy.  I'm glad to learn that Sue is going to be O.K. and that her recovery seems to be back on track.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

skamper

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Re: Update on GramaSuby!
« Reply #20 on: October 07, 2010, 09:33:38 pm »
Thanks for the update, I've been thinking of her lately!  I will continue to pray and send only good thoughts her way. 
Susan
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Diagnosed 12-09
AN right side 2.3 x 2.6 x 1.9
97% balance loss, minimal hearing loss
Surgery 4-2-10 at Methodist Hospital, Dr. Long and Moore
1.5 cm tumor left on 7 nerve.  Gamma knife 1-2013

GramaSuby

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Re: Update on GramaSuby!
« Reply #21 on: October 11, 2010, 11:43:59 am »
Hi all :) finally home this am 8) thiugh I was bracing for the worst
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Diagnosed Nov 08  w/ 14x13x14mm left AN. Translab on 9/30/10 w/ Dr's Mattox & Olson at Emory University Hosp. in Atlanta.  Post surgery complications were meningitis & pneumonia. Hospitalized for 12 days, zero memory for the first 5.

Tod

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Re: Update on GramaSuby!
« Reply #22 on: October 11, 2010, 11:47:49 am »
I'm glad to read that you are home! I hope you are feeling well and on the upturn.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

GramaSuby

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Re: Update on GramaSuby!
« Reply #23 on: October 11, 2010, 12:08:30 pm »
 :)I'm back today though very different :'( :'. I'm sorry to say at the moment not for the better. I cant say Anymore yet cuz of how emotional i am getting right now just  thinking about it :'( this is all i can deal w/  today :(  Thanks to cindyj for a lifeline & to ALL of your prayers  Sue
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Diagnosed Nov 08  w/ 14x13x14mm left AN. Translab on 9/30/10 w/ Dr's Mattox & Olson at Emory University Hosp. in Atlanta.  Post surgery complications were meningitis & pneumonia. Hospitalized for 12 days, zero memory for the first 5.

leapyrtwins

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Re: Update on GramaSuby!
« Reply #24 on: October 11, 2010, 12:15:05 pm »
Hang in there, Sue, and take things day by day.

Recovery takes time and things will get better.

Hugs,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

moe

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Re: Update on GramaSuby!
« Reply #25 on: October 11, 2010, 01:27:09 pm »
Sue,
You are home and that is good so just take it easy. Do yo have someone who can help you and wait on you hand and foot?

One day at a time, things will hopefully get better.' Fluids if you have no appetite are important. Eat what sounds good, even it if it ice cream shakes, jello, whatever.

Just sleep/rest/as much as possible, and walk as well as you can. Peaceful music on CD's is also helpful or books on tape to take your mind off of things.

It is  crucial to not to  try to do anything, especially bending over, for now. Just let yourself be, OK?
Peaceful thoughts going your way,
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jim Scott

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Re: Update on GramaSuby!
« Reply #26 on: October 11, 2010, 01:56:06 pm »
Welcome back, Sue.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cindyj

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Re: Update on GramaSuby!
« Reply #27 on: October 12, 2010, 03:12:51 pm »
Welcome back, Sue!  Got your message...will talk to you soon!  Walk and nap, nap and walk, nap, nap, walk  :)  Hang in there!

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Lizard

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Re: Update on GramaSuby!
« Reply #28 on: October 13, 2010, 11:25:40 am »
Hi Sue,
Please know that I am thinking about you, try to rest as much as possible especially since you have just come home.  This is a very emotional journey and you need to let yourself feel it.  I was also very emotional for many months after my surgery, what you are going through is completely normal.
hang in there and remember we are here for you,
Liz
Logged
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

GramaSuby

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  • "Lost my muchness have I"? ALICE IN WONDERLAND
Re: Update on GramaSuby!
« Reply #29 on: October 13, 2010, 07:41:46 pm »
feelling better/ did have meningitis and pneumonia / lost 5 days time, woke up worried I had missed surgery & desperate to tell the Dr's I might miss surgery LOL/ tied down for 2 days then sent to private room on neuro floor/ still trying to put time in order with help of family, friends who visited on my journey through madness and back/ truly horrifying /still need your prayers
« Last Edit: October 19, 2010, 04:42:18 pm by GramaSuby »
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Diagnosed Nov 08  w/ 14x13x14mm left AN. Translab on 9/30/10 w/ Dr's Mattox & Olson at Emory University Hosp. in Atlanta.  Post surgery complications were meningitis & pneumonia. Hospitalized for 12 days, zero memory for the first 5.
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