Author Topic: Odds your next door neighbor has a AN  (Read 6193 times)

Raven

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Odds your next door neighbor has a AN
« on: October 30, 2010, 03:48:30 pm »
What do you think those odds are? Actually our boats are side by side at the same marina. I was talking to him the other evening and my AN detector was going off, since then he had the MRI. Maybe he will post and we can give him a warm welcome, really a good guy, doesn't deserve this.

Hopefully everyone here is doing o.k.

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

luvzmutt

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Re: Odds your next door neighbor has a AN
« Reply #1 on: October 30, 2010, 10:29:03 pm »
John,

What marina is your boat docked at.   My dad and my sister in law dock theirs at the Baltimore Marine Center.  Not sure if you are in Baltimore,  but thought I'd ask (I have a small AN,  9mm x 7mm and NF1).

Leslie
Right side AN diagnosed 7/10 - 6.1 mm x 7.8 mm
1st follow-up MRI 1/10/11 - 0.9 x 0.3 x 0.4 cm
2nd follow-up MRI 7/11/11 - 1.0 x 0.7 x 0.6 cm
Follow-Up 12/20/11 - no noticeable change
MRI 11/26/12 - .5x1.0x.6 cm
MRI 10//21/13 - 0.8 x 1.0 x 0.7
Some hearing loss AN side and tinnitus
NF1 & optic glioma

leapyrtwins

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Re: Odds your next door neighbor has a AN
« Reply #2 on: October 31, 2010, 08:56:10 am »
No boat here, but I wish I had one.

I'm hopeful your neighbor doesn't have an AN, but if he does, he's lucky to have you as a resource and as someone who will support him.

He's also lucky that you know enough about the Forum to direct him here.  I've found that sometimes newbies have no idea that the Forum even exists.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Raven

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Re: Odds your next door neighbor has a AN
« Reply #3 on: November 01, 2010, 06:36:16 am »
Leslie,

We are members of the Baltimore Yacht Club.

Hi Jan........turns out he does have a AN, 1cm.

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

grega

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Re: Odds your next door neighbor has a AN
« Reply #4 on: November 01, 2010, 09:27:46 am »
Hi John and Leslie ..... best to you with your AN decisions.

And hello Jan!  Hope you're doing well!  Been away for a couple months & haven't visited forum .... just lollygagging and thoroughly enjoying my baha.

John, what caught my eye on your thread was your moniker "Raven" .... and then, without reading much further, I knew you are from this area cause of your mention of Dr. Eisenman at UMMC.  Spoke with him back in 2004 re my AN .... but opted for Hopkins for my Nov 04 surgery.

I only chime in here to introduce myself ..... the forum is definitely a terrif place for advice and support.  So I too encourage you to mention this place to your next-slip friend.  It's also good to know others in your area, for a time when an AN get together is formed, as you might have read about from others in diff parts of the US.

Keep smiling ....... Greg
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

lori67

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Re: Odds your next door neighbor has a AN
« Reply #5 on: November 01, 2010, 12:16:48 pm »
Seems we are not as rare as we used to be!  I was talking to the mom of one of my daughter's classmates last week and found out her husband was just diagnosed with an AN.  I guess everyone wants to be just like us!!   ;D

And on the boat subject, my aunt and uncle used to belong to Bodkin Bay Yacht club in the Baltimore area.  Is that near you, Raven?  I don't remember exactly where it is since the last time I was there was many years ago.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Raven

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Re: Odds your next door neighbor has a AN
« Reply #6 on: November 02, 2010, 07:16:41 pm »
Hi Lori,

I've been to Bodkin Yacht Club a few times. It is on Bodkin Creek off the Patapsco River, and yes it is in the Baltimore area. Fairly close to where I'm at.

Greg, I highly recommended the forum to my friend, I'm pretty sure he has checked it out. I did attend one of the AN get togethers for the Baltimore area, very informative.

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

leapyrtwins

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Re: Odds your next door neighbor has a AN
« Reply #7 on: November 03, 2010, 08:45:38 pm »
Hi Jan........turns out he does have a AN, 1cm.

John

Well, please ask him to join us here, John.

Hi, grega  ;D

Good to see ya.  The lollygagging sounds fun.  Glad you're liking the BAHA - likewise here.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Raven

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Re: Odds your next door neighbor has a AN
« Reply #8 on: January 24, 2011, 09:43:17 am »
Hi everyone,

Tom is having surgery tomorrow at Johns Hopkins.........I plan on paying him a visit on Thursday, should have an update that evening.

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

annamaria

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Re: Odds your next door neighbor has a AN
« Reply #9 on: January 24, 2011, 10:53:15 am »
I (with my husband's help) had posted before that the odds of a person developing a AN and/or meningioma over a lifetime are aound

1-in-200

(that being computed by accumulating the posted yearly rates over a lifetime of, say, 80 years)

That means that is a marina with 100 boats (say with two people per boat), then there will be a person with AN at the marina.

If the marina has 200 boats, then two people at that marina will have an AN [does your marina have at least 200 boats?]

if the marina has 400 boats, then four people at that marina will have an AN.

Etc.

Annamaria

leapyrtwins

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Re: Odds your next door neighbor has a AN
« Reply #10 on: January 25, 2011, 09:46:10 pm »
John -

looking forward to your update on Tom. 

Hope things went well for him. 

He's lucky to have your support; please give him our best.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

grega

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Re: Odds your next door neighbor has a AN
« Reply #11 on: January 26, 2011, 08:58:46 am »
Hi John, et al,

Thanks for keeping us posted on Tom at JHH.  Which docs?  Tell him a plethora of fine folks wish him well with his re-coop.

Annamaria .... hoping for calm seas for all those boaters  8)

Greg in Arnold
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

questions?586

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Re: Odds your next door neighbor has a AN
« Reply #12 on: January 27, 2011, 01:03:05 pm »
Maybe not the same dock but we are all in the same boat!   ;D  Trust all goes well!
AN 1.4 cm x 1.7 cm x 1.0 cm
fair amount of hearing loss right ear
diagnosed 7/29/10

I'm a fun and reasonable RN, now living far from appropriate medical care. Feeling overwhelmed!

Raven

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Re: Odds your next door neighbor has a AN
« Reply #13 on: January 28, 2011, 07:15:46 am »
Update on Tom.................. I saw Tom yesterday at Hopkins. Dr. Tamargo performed retrosigmoid and all went well, the operation took about six hours. I could not believe how good he looked, no facial issues or eye problems. The bandage had been removed, I never seen a retro incision before, live and in person, definetly different then middle fossa. Tom said he could hear the Dr. snap his fingers near his ear, so hopefully some hearing was saved, time will tell. He should be going home soon.

Take care everyone,

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

lori67

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Re: Odds your next door neighbor has a AN
« Reply #14 on: January 28, 2011, 12:01:50 pm »
Great news!!  WAY TO GO,TOM!!!!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.