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Author Topic: My brother is dying.  (Read 24999 times)

leapyrtwins

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Re: My brother is dying.
« Reply #15 on: January 07, 2011, 12:10:37 am »
Oh, Anne Marie  :'( 

I'm at a loss for words and that's just not like me at all.

Prayers and kisses  :-* to you and yours.

Please know that we are all thinking of you.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

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Re: My brother is dying.
« Reply #16 on: January 07, 2011, 07:06:49 am »
Anne Marie,
I agree with everyone who has spoken their concern for you and your family. Words can't express how sad I am for you and these difficult times you are going through. I am praying for you too.
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

moe

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Re: My brother is dying.
« Reply #17 on: January 07, 2011, 09:22:29 am »
Anne Marie,
Does NOT seem fair that you have to deal with so much grief at the same time. Praying for peace and serenity, courage and strength to you and your family through this time.
Hang in there :-*
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Captain Deb

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Re: My brother is dying.
« Reply #18 on: January 07, 2011, 11:23:44 am »
So sorry to hear this sad news, Anne Marie.  I am praying for peace for your brother and your family.  It is a wonderful thing, this AN family we have formed through a common personal difficulty.  It extends not just through our own personal health difficulties, but gives us support in all aspects of our lives.  We all love you soooo much.

Blessings to you, Danny, and your family,

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

yardtick

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Re: My brother is dying.
« Reply #19 on: January 07, 2011, 01:35:21 pm »
The love that pours out from my AN family has touched me deeply.  I am blessed to have your support.

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Brewers7

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Re: My brother is dying.
« Reply #20 on: January 07, 2011, 02:16:22 pm »
Anne Marie,
  praying for you down south.  Your brother sounds like a wonderful guy. Susan
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

pjb

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Re: My brother is dying.
« Reply #21 on: January 07, 2011, 03:33:31 pm »
I am so sorry for you and your family that is the most difficult thing in the world and there is nothing that you can do but to wait and watch your love one in this last stage of life... But try to focus on all the memorable moments you had with him to try and get you through it .. My prayers and thoughts are with him and his family...

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

dalern

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Re: My brother is dying.
« Reply #22 on: January 07, 2011, 04:22:15 pm »
Anne Marie,
I just saw this post.  I am so sorry for what you are going through.  You have had an awful lot to endure in a short period of time.  I am sending love and prayers, and hope that all the good memories can provide you with some comfort.
Thinking of you,
Dale
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Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

Sue

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Re: My brother is dying.
« Reply #23 on: January 07, 2011, 09:02:32 pm »
My condolences to you and your family, Anne Marie. 

Sue in Vancouver, WA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


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The only good tumor be a dead tumor. Which it's becoming. Necrosis!
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ombrerose4

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Re: My brother is dying.
« Reply #24 on: January 07, 2011, 09:04:38 pm »
Anne Marie,

I am so sorry to hear about your brother's illness. I know this must be very difficult for all of you. I lost my brother 6 years ago, and then my mom three years later. It is never easy, but time does make it hurt less. Your brother will always be a part of your life, your memories and will always live on in your heart. Try to take solace in that he will no longer be in pain and that he has you and all of his family there with him, loving him. You are all in my prayers,
Lauren
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Tod

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Re: My brother is dying.
« Reply #25 on: January 07, 2011, 10:03:55 pm »
Anne Marie, you are in my thoughts and prayers for all the sorrow you are facing.

tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Angel-1

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Re: My brother is dying.
« Reply #26 on: January 07, 2011, 10:22:25 pm »
Anne Marie,

You and your family are in my thoughts and prayers.  I also wanted to thank you for adding me as a friend on Facebook.  I'm Angela Hardy Vincent on facebook and I see you on the AN facebook site.

Hugs,
Angela
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Tanslab on 7/8/2010
Total tumor removal
SSD, facial weakness (but facial nerve still intact),
balance issues getting better
Duke University, Dr. David Kaylie, Dr. Allan Friedman & Dr. Fukushima
Age:  44

suboo73

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Re: My brother is dying.
« Reply #27 on: January 08, 2011, 06:34:49 am »
Anne Marie,

My thoughts and prayers are also with you, Danny and your extended family.

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Soundy

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Re: My brother is dying.
« Reply #28 on: January 08, 2011, 05:48:24 pm »
Sorry to read such sad news ... my prayers are with you all in the coming days ...
sending hugs from tennessee
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: My brother is dying.
« Reply #29 on: January 08, 2011, 07:12:51 pm »
Anne Marie,

I didn't have time to say everything I was thinking the other day when I first read your post. I understand how overwhelming it is to experience multiple losses having lost my father-in-law, brother-in-law and father within a year's time. Your brother's situation seems very similar to my father's. I wanted to let you know that once my father made his decision to stop treatment, he was able to stop struggling so hard and it was easier on both him and the rest of us. I'm afraid I am not articulating this very well, but Dad's passing was gentle and painless at the end, I think largely in part because he finally accepted it and made the decision himself.

I will keep you and Danny in my prayers. God bless.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13
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