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Author Topic: My 8 year ANniversary!  (Read 9113 times)

Captain Deb

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My 8 year ANniversary!
« on: January 17, 2011, 07:38:06 pm »
Around this exact time 8 years ago I was lying in a hospital bed in California watching the room spin around and puking my guts out! Boy am I glad that's behind me!  Still having headaches, but nothing like before, and I have since found a whole world of new friends out here in the Interwebs who have had a similar experience. Met up with quite a few of them, too and have even cyber-cruised with a whole motley crew o' wonkyheads.

Just saying thanks for all your support throughout these past years and to all you who are new to this AN business, stay in touch with the folks you meet here, you will get more help than you can imagine, and a few laughs, to boot.

Cheers, everyone!

Yer Dear,

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Kaybo

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Re: My 8 year ANniversary!
« Reply #1 on: January 17, 2011, 08:16:18 pm »
LOVE YOU CAPT'N DEB!!!!!

K ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Sue

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Re: My 8 year ANniversary!
« Reply #2 on: January 17, 2011, 08:40:36 pm »
And smooches, too!!!!
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

G_Man

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Re: My 8 year ANniversary!
« Reply #3 on: January 17, 2011, 11:11:15 pm »
Even though I'm W+W and I hope to always remain that way, it gives me great relief and hope that you have gone through all of this and can tell about it 8 years later w/a warm spirit, fine attitude and grace.  I hope to be half way to where your spirit lies 8 years from now whether I'm watch and wait or not.
Thank you Capt Deb.
G
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

yardtick

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Re: My 8 year ANniversary!
« Reply #4 on: January 18, 2011, 01:01:19 am »
Here's to you Cap't  :-* :-* :-*  :-*   My hero!

Thank you for all of the love, support and info,
Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Brendalu

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Re: My 8 year ANniversary!
« Reply #5 on: January 18, 2011, 04:29:50 am »
What a ride this has been!  Probably parts of it like surviving Hugo!  You have brought us to laughter and tears and I'm so glad that I have been along for the ride....for almost six years.  Your insights, advice and research has helped so many, including me.  Happy ANniversary and many more to come.
Hugs,
Wench Brendalu
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

ppearl214

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Re: My 8 year ANniversary!
« Reply #6 on: January 18, 2011, 06:46:10 am »
LOVE AND SMOOCHIES!!!!!!!!


Congrats, Capt, on achieving this wonderful ANniversary!


xoxoxoxooxoxoxxoo and all that good stuff!
Your cursed Cruise Director... whatever the heck 'er name is!
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: My 8 year ANniversary!
« Reply #7 on: January 18, 2011, 07:15:28 am »
Congratulations, Capt!   ;D

I had the room spinning/gut puking experience too, although it's kind of a distant memory now.

Hope it's that way for you too.

Party on!!!   ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: My 8 year ANniversary!
« Reply #8 on: January 18, 2011, 07:49:58 am »
Congratulations, Deb!  WOW, 8 years out.  The next 8 years simply have to be better for you ..... you've had a wild ride.

Besides, I'm still waiting to see some great post-AN wonderful art that I know you can do!!  Also, sure hoping you will be in Cincinnati to reconnect in person again.

Best wishes, Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Cheryl R

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Re: My 8 year ANniversary!
« Reply #9 on: January 18, 2011, 07:56:42 am »
Capt Deb,  Our anniversaries are big deal and congratulations on yours.        I wish you didn't have so many other surgery painful anniversaries and hope for a better life with getting the help you need now!      Keep us smiling and laughing as you do on here!
                                              Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Jim Scott

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Re: My 8 year ANniversary!
« Reply #10 on: January 18, 2011, 02:22:06 pm »
Deb ~

Congratulations on achieving your 8th AN post-op anniversary!  Your indomitable spirit, creativity and ironic sense of humor have been much appreciated on these forums.  Even though we hope your post-op issues are finally resolved, we also look forward to your continued presence here (as a supporter of AN patients) for some time to come. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

staypoz

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Re: My 8 year ANniversary!
« Reply #11 on: January 18, 2011, 03:10:50 pm »
What a journey, Capt. Deb!!

Cheers and continued healing,

staypoz
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Keri

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Re: My 8 year ANniversary!
« Reply #12 on: January 18, 2011, 03:47:21 pm »
even though i've been around here just a bit over two years (my anniversary is coming up too!) i can tell you've been a source of encouragement, help and humor to fellow AN'ers for a long time!

thank you and congrats!!!
keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Larry

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Re: My 8 year ANniversary!
« Reply #13 on: January 18, 2011, 04:07:53 pm »
What a journey huh Deb,

An amazing person you are - notwithstanding that you and Dr Luuuurrrrvvvvv have had one or two medical issues to do battle against but you have also been a great inspiration and help to all.

here's to ya deb.


Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
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Captain Deb

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Re: My 8 year ANniversary!
« Reply #14 on: January 20, 2011, 08:22:37 pm »
Thanks so much all ye scallywags and wenches and wonkyheads!!!

Wishing continued improvement for ALL of us!!!

Love you all!!!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW
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