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Author Topic: Potential new treatment for NF2  (Read 6077 times)

jerseygirl

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Potential new treatment for NF2
« on: April 16, 2011, 11:04:03 am »
It is absolutely wonderful to read about a potential new treatment target for NF2, a cruel disease that results in so much morbidity and mortality. I am glad research on it continues. Read on:

http://www.medicalnewstoday.com/articles/222617.php

Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Mickey

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Re: Potential new treatment for NF2
« Reply #1 on: April 18, 2011, 08:51:17 am »
Hi Jerseygirl! This is a great article for the possible near future of AN treatment. At the last NYU NYC support meeting we went over alot of this with Dr`s and they were very excited with the possibilities. Wishing for the best. Mickey
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nftwoed

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Re: Potential new treatment for NF2
« Reply #2 on: April 18, 2011, 12:37:25 pm »
Wow!
  Great article. Thank you, jerseygirl.
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Mark241

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Re: Potential new treatment for NF2
« Reply #3 on: April 21, 2011, 11:28:25 am »
Lets' hope this leads' to some help!  Thank's for finding it.
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

leapyrtwins

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Re: Potential new treatment for NF2
« Reply #4 on: April 21, 2011, 04:01:19 pm »
Very interesting article, Eve.

Thanks for posting it,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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