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Author Topic: The dread call back for another MRI  (Read 24454 times)

yardtick

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The dread call back for another MRI
« on: April 21, 2011, 01:17:35 pm »
I went for my annual MRI early Tuesday morning and this morning I received the dread phone call.  I go back for round two this coming Tuesday at 1:15 pm.  I'm going to need a sedative this time around, because I have nerves on top of nerves.  I'm also battling brutal headaches that never seem to go away.  It's time to review the medication I'm on when I see the neurologist in May. 

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Brewers7

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Re: The dread call back for another MRI
« Reply #1 on: April 21, 2011, 01:22:03 pm »
Praying in Mississippi.  Susan
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

kareno

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Re: The dread call back for another MRI
« Reply #2 on: April 21, 2011, 02:26:14 pm »
You will be in my thoughts and prayers.    Karen
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Caregiver:  Husband 3.0cm diagnosed 1/10, Retrosigmoid Surgery 4/10 Tufts Medical CTR Boston, Dr. Carl Heilman-Exceptional Surgeon

Jim Scott

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Re: The dread call back for another MRI
« Reply #3 on: April 21, 2011, 02:45:00 pm »
Anne Marie ~

I'm certainly dismayed to learn that you've been asked to have your recent MRI scan repeated.  I hope that it may just have been flawed in some way and they need better resolution or something  - but of course I'll pray that (a) you get through this without any more stress than you already have and, (b) that the MRI shows nothing you'll have to be concerned about.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: The dread call back for another MRI
« Reply #4 on: April 21, 2011, 03:55:47 pm »
Anne Marie -

I'm hoping for good news in the end. 

Is it possible that they just didn't get enough "pictures" or that the pictures they did get were blurry or something? 

Did they give you a reason why you had to return?

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

mk

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Re: The dread call back for another MRI
« Reply #5 on: April 21, 2011, 07:45:05 pm »
Hi Anne Marie,

I am sorry to hear this, this is so nerve wracking. I know that with the holiday approaching it will be probably impossible to get an explanation as to why they need to do another MRI. It may very well be some sort of error on their part, i.e. they might have missed something. I know exactly how you feel , having gone through the rollercoaster recently, only to find out that there was some miscommunication between the radiologist and the GP. Hang in there. Try to have a good Easter weekend with your family and not to think too much about it.

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Mickey

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Re: The dread call back for another MRI
« Reply #6 on: April 21, 2011, 08:51:39 pm »
Wishing you the best, thinking positive. Prayers are with you, Mickey
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CHD63

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Re: The dread call back for another MRI
« Reply #7 on: April 21, 2011, 09:34:25 pm »
Oh Anne Marie ......

I so hope it was a technical problem and not an issue.

Many, many thoughts and prayers.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Keeping Up

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Re: The dread call back for another MRI
« Reply #8 on: April 22, 2011, 12:09:24 am »
Crossing my fingers for you - hoping for a technical glitch.

Truly unfortuante with a long spring weekend ahead - unneeded stress in your life.

Thinking of you.

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

lauralynn

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Re: The dread call back for another MRI
« Reply #9 on: April 22, 2011, 12:13:14 am »
Anne Marie,

You know I will be praying for you and will be anxiously waiting to hear how it went. 

Laura Lynn
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4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

Jackie

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Re: The dread call back for another MRI
« Reply #10 on: April 22, 2011, 12:33:29 am »
Anne Marie,

You'll be in my thoughts and prayers also! Take a deep breath, and try not to worry, but enjoy Easter's true meaning, which should be a great comfort to you.
Blessings coming your way,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

kenneth_k

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Re: The dread call back for another MRI
« Reply #11 on: April 22, 2011, 01:32:02 am »
Thinking of you and praying all goes well.
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opp2

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Re: The dread call back for another MRI
« Reply #12 on: April 22, 2011, 08:21:03 am »
I'm sorry to hear this Dear Heart....You know I'll keep my fingers crossed for you. I wish you could take an ipod in to listen to music or something. When I went in Buffalo, they piped in music, whatever I wanted. And when the selection ended they asked me what else I wanted. We could learn from our American friends.
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

Sue

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Re: The dread call back for another MRI
« Reply #13 on: April 22, 2011, 03:09:31 pm »
It is going to be okay.   We will all be with you in spirit.   A cheering squad over in the corner.   See us?  I am waving...

Hugs, 

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
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Ellenmn

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Re: The dread call back for another MRI
« Reply #14 on: April 22, 2011, 06:47:00 pm »
I know that it's nerve racking but we're all here and praying for you.
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