Author Topic: MeiMei is coming for a visit  (Read 9827 times)

cin605

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MeiMei is coming for a visit
« on: June 27, 2011, 09:59:21 am »
Yay!!! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Kaybo

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Re: MeiMei is coming for a visit
« Reply #1 on: June 27, 2011, 10:09:55 am »
WHERE??

 K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Denise S

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Re: MeiMei is coming for a visit
« Reply #2 on: June 27, 2011, 11:13:16 am »
Cindy, Mei Mei coming to your place I take it?   Sounds great!!!   Hopefully if she hasn't figured out the posting of pics on here maybe you can help her  ;)     I don't know the east coast well at all, but how far apart are you guys?    Hope you are both having good days too so you can feel comfortable and enjoy your time together!   

Denise  :)
W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

cin605

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Re: MeiMei is coming for a visit
« Reply #3 on: June 27, 2011, 01:21:20 pm »
MeiMei is coming to N.H....July  7th...We are going to spend an afternoon touring my little town.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Kaybo

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Re: MeiMei is coming for a visit
« Reply #4 on: June 27, 2011, 01:34:18 pm »
Awesome - I LOVE it when I get to meet other ANer's!!   ;)

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Rivergirl

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Re: MeiMei is coming for a visit
« Reply #5 on: June 27, 2011, 07:22:06 pm »
Where in New Hampshire?
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

leapyrtwins

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Re: MeiMei is coming for a visit
« Reply #6 on: June 27, 2011, 08:34:59 pm »
Cool  ;D

Have fun!
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cin605

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Re: MeiMei is coming for a visit
« Reply #7 on: June 28, 2011, 02:40:43 pm »
Rivergirl....MeiMei is staying in York Maine w/ a friend.....we plan on luch here in Newmarket if you would like to join let me kno...More the merrier..newmarket is about 20 minutes from Hampton Beach.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Keri

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Re: MeiMei is coming for a visit
« Reply #8 on: June 28, 2011, 09:43:58 pm »
have a great visit!!!
mei mei and i probably live 15 minutes from each other (maybe an hour in traffic!)
we need to meet each other too!

keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Rivergirl

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Re: MeiMei is coming for a visit
« Reply #9 on: June 29, 2011, 12:01:02 pm »
thanks for the invite Cin, maybe by next week I will feel like driving out of my neighborhood, I will let you know.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Mei Mei

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Re: MeiMei is coming for a visit
« Reply #10 on: July 01, 2011, 07:19:38 pm »
 ;D  Hey, I just saw this Cindy.   I didn't know you posted this.  I am so touched and heartwarmed.   We have a Days Inn paid for the night of the 7th so we'll be together all afternoon and evening.  I want to try those iced teas you are always talking about   8).  We can have Mickey Dees breakfast together in the morning.   It takes Kathy 6 hours to get out of bed and me two minutes so I'll need some company while she gets herself together.   We'll be in the Days Inn in Dover.  It says on Priceline that there is a Dunkin Donuts across the street, but I know you like Mickey Dees iced coffee so come over to the inn and get me.   Next is your turn to come down here to Chevy Chase. 

Keri, come over and play.  I have a cute dog named Punky.    Where do you live?
All you NH ANers, there is an informal meeting the afternoon of the 7th,,,,come on down.   PM me for cell phone.

Hugs to all,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

ppearl214

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Re: MeiMei is coming for a visit
« Reply #11 on: July 06, 2011, 04:56:15 am »
Well, I know Metro Boston is in the mix somewhere due to the flights, so................... have the updated schedule/email and jealous of the trip towards the NH/ME Seacoast! Haven't been up that way in a while! You all have a terrific time without me and if my tinnitus roars in overdrive, me knows you all are gabbing about me!  >:D  Will see if can catch MeiMei on the trip back towards Boston before she walks the plank ....er..... departs Boston! ;)

MeiMei, keep me updated for the return back to Boston so we can try to work out the schedule. Am familiar with some of the activities for your return. You have my schedule. :)

xo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: MeiMei is coming for a visit
« Reply #12 on: July 06, 2011, 05:27:52 pm »
I am so very excited to be meeting all of you.   I fly out of here to Logan tomorrow morning and arrive at 11:30.   Kathy is picking me up and driving us to New Market and I got us a room in the next town where her father grew up so if I miss anyone on Thursday, we'll still be around Friday morning and knowing us won't be out of there till 1.    Then Kath wants to go to York Beach and I'm looking for a motel on Priceline.   A lot of them are already booked so I'm working on it right now.

Looking forward to seeing you tomorrow. and Phyl and hopefully Laura on Sat.   Kath doesn't have any appointments till Sunday.   She teaches Sunday School.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

MZB475

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Re: MeiMei is coming for a visit
« Reply #13 on: July 06, 2011, 07:30:56 pm »
hello New Hampshire AN'ers! I live in northern MA and had the pleasure of meeting MeiMei in person in Cinci! I'm coming back from FL late on Saturday afternoon, so will most likely miss out on the fun/visit.  I'll try MeiMei on her cell to see if I can catch up with you all!
Laura B
Diagnosed 2008
Wait and Watch--blessed to have this gift :)

Mei Mei

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Re: MeiMei is coming for a visit
« Reply #14 on: July 06, 2011, 08:36:18 pm »
Hey Laura,
Maybe we can get together on Sunday or Monday night after work.   It will happen, if not this week, another week.   We are connected now.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh