Author Topic: Headaches...caused by AN or Fibromyalgia  (Read 6154 times)

Nancy Drew

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Headaches...caused by AN or Fibromyalgia
« on: October 17, 2011, 06:55:17 pm »
Hi!

I was diagnosed with fibromyalgia about three months after I had GK.  I have a headache almost every night, and sometimes I get them during the day.  It vaires between a migraine and a low grade headache.  Trying to figure out which one to blame it on...AN or Fibro!!!  I have my 3 year MRI on Friday.  Always worried when these MRIs come up.  Last year I got a good report.  Thanks for any info you might be able to share about headaches.

Nancy
12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

Jim Scott

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Re: Headaches...caused by AN or Fibromyalgia
« Reply #1 on: October 18, 2011, 04:04:59 pm »
Nancy ~

For what its worth: my wife does not have or ever has had an acoustic neuroma.  However, she was diagnosed with fibromyalgia over 15 years ago.  Among other issues she deals with are headaches that are sometimes severe, sometimes mild but that occur on a fairly regular basis.  She takes a relatively high dialy dose of Neurontin (Gabapentin) for pain but depends on OTC medications for the headaches.  They help, sometimes.  I would ask your doctor for his opinion on the cause of your headaches.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mei Mei

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Re: Headaches...caused by AN or Fibromyalgia
« Reply #2 on: November 08, 2011, 07:32:20 am »
I too have a form of Fibro called Myofacial Pain.   I really don't know what the difference is, but when Cymbalta was approved for Fibro my doctor gave me an RX for it and put me on 60mg.   Like magic all the pain and headaches all were going.     These headaches and pain would last all month but after the Cymbalta, I felt fine.

Give it a try if your doctor says it's OK.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

lifeisgood

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Re: Headaches...caused by AN or Fibromyalgia
« Reply #3 on: January 04, 2012, 02:21:51 pm »
What about Lyrica?  I have been presribed it but it is also for fibromyalgia.
Just a thought.
Best to you.
Mary
3.4cm AN surgically removed 3/04
by Dr. Wiet and Kazan at Hinsdale Hospital in Illinois.
Translab approach

Mei Mei

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Re: Headaches...caused by AN or Fibromyalgia
« Reply #4 on: January 12, 2012, 05:25:41 pm »
I tried that for a month and didn't help the headaches but had the side effects of no sleep and sever constipation.

Don't do it!

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Jim Scott

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Re: Headaches...caused by AN or Fibromyalgia
« Reply #5 on: January 13, 2012, 01:28:33 pm »
What about Lyrica?  I have been presribed it but it is also for fibromyalgia.

My wife - who suffers with fibromyalgia - tried it (at her doctor's suggestion) and experienced side effects very similar to those Mei Mei described.  However, every person seems to have a different reaction to Lyrica, so a trial may be worth considering.  Just be cognizant of the possible side effects.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.