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Author Topic: ANA patient survey frequency + living database  (Read 2581 times)

jak1

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ANA patient survey frequency + living database
« on: April 18, 2012, 05:42:29 pm »
Hey folks,

Anyone know the frequency of the patient survey?  I know this was done around 1998 and again in 2008.  Is there any effort to do this more often than every 10 years as the landscape keeps changing?

Also, anyone know the status of the living database?  I believe this would really be super helpful to many of us.

I would gladly participate and help with these is possible..

thanks,

-JAK
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2.7cm AN diagnosed 4/11.  Stanford CK 5/11.

leapyrtwins

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Re: ANA patient survey frequency + living database
« Reply #1 on: April 22, 2012, 03:15:37 pm »
Your best bet is to contact the ANA and ask them these questions.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: ANA patient survey frequency + living database
« Reply #2 on: April 28, 2012, 09:38:19 pm »
I would gladly participate in a long range study as I am still a work in progress after my original surgery.   I got miles to go before I sleep.
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
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smcij

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Re: ANA patient survey frequency + living database
« Reply #3 on: June 05, 2012, 04:28:03 pm »
Me too.  Would love to see an up-to-date survey and would happily participate.
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