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Author Topic: 1st post CK follow up  (Read 2873 times)

mikeGE

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1st post CK follow up
« on: May 07, 2012, 06:33:20 pm »
I just had my 6 month post-CK follow up which included MRI and hearing test. My tumor (kids named "Ike") appears to be dying and my hearing is pretty much unchanged. Great news, even though hearing in my right ear is not very useful and I have tinnitus 24-7. But this was the case prior to CK treatments. Overall, I feel great. My AN has not really slowed me down and neither have the CK treatments. My Next follow up will be in October...
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9mm x 5mm
Diagnosed 12/2010
CK at Stanford completed 10/12/2011
Drs. Chang and Soltys

ppearl214

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Re: 1st post CK follow up
« Reply #1 on: May 08, 2012, 04:52:26 am »
Mike

Continued wellness wishes to you! Sounds like great news so far and hoping that all stays on target! :)

If it helps..... I was in your same shoes at 6 mos... and now... I am 6 YRS later... and for me, doing fine! :) 

Phy
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

chloes mema

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Re: 1st post CK follow up
« Reply #2 on: May 08, 2012, 08:32:35 am »
So glad to hear two positive stories!   :D

Karen
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Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

mikeGE

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Re: 1st post CK follow up
« Reply #3 on: May 08, 2012, 06:55:15 pm »
Thanks for the kind words Phy!

Given my circumstances, I feel like I made the right choice with CK and it is always nice to hear about the long term successful outcomes of others.

Deciding on treatment type (surgery vs radiation) and when to do it can be agonizing.  It was the most difficult part for me. Looking back on the process I am just grateful that I actually had choice.

This forum has been, and continues to be, a very valuable resource with lots of kind people sharing their stories....I am very grateful for it!

Cheers,
Mike

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9mm x 5mm
Diagnosed 12/2010
CK at Stanford completed 10/12/2011
Drs. Chang and Soltys

Tumbleweed

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Re: 1st post CK follow up
« Reply #4 on: May 08, 2012, 11:25:42 pm »
Congrats, Mike! Dr. Chang was my doc, too. He is THE BEST!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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