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Author Topic: Completed my CK treatments yesterday  (Read 6666 times)

chloes mema

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Completed my CK treatments yesterday
« on: May 09, 2012, 10:22:17 am »
It's official, I am now a "Toastie Postie"!!!! :D

Second CK treatment on Monday was a little nerve wracking because my lower jaw kept moving.  I think the mask must have been pressing on a nerve.  I finally ended up clamping my jaws together so tight I thought I would / might have cracked a tooth.  Felt great after the treatment however.

Third / final CK treatment was yesterday.  I woke up yesterday morning very tired and lethargic which ended up making me fall asleep during the procedure.  Went home afterwards to continue my nap.  Went out to dinner last night with a group of friends still felt subdued.

Today I have a mild "let down" feeling, I guess all the adrenalin from the anticipation of the CK procedures is gone.  Went to the gym this morning for two hours, scaled back on the weights I used but increased the reps so it was a good work out.  Was mildly dizzy but worked through it.  Was going to do yard work when I got home but decided maybe that was pushing it so have camped out in front of my computer once again.

Again a big hug and many thanks to all of you for your information, support, prayers, emails, posts etc.  I could not have made it through this without all of you.  :-*

Hugs

Karen
Logged
Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

Jim Scott

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Re: Completed my CK treatments yesterday
« Reply #1 on: May 09, 2012, 02:39:14 pm »
Congratulations, Karen!

Now, that wasn't so bad, was it?   ;)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Twindy

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Re: Completed my CK treatments yesterday
« Reply #2 on: May 09, 2012, 03:25:05 pm »
Congrats!  I just had my treatment yesterday as well.  Hope everything goes smoothly for you here on out!
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MDemisay

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Re: Completed my CK treatments yesterday
« Reply #3 on: May 09, 2012, 03:56:05 pm »
Karen,

Congrats to you! Was gratified to hear of your good feeling from our group prayer!  Prayer is important! It always helps to petition God! HE is always there!

Healing be on all of us, where ever we maybe in this group adventure of ours!

Mike

Keep postin you toastie!
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

TJ

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  • 1.2 cm AN right side, CK November 2010
Re: Completed my CK treatments yesterday
« Reply #4 on: May 09, 2012, 06:06:56 pm »
Karen

I am so happy for you that it is finally over.  Now you can try to get on with whatever you were doing before the intruder.  My prayer is for you to have none of the side effects that so often come with radiation.

And as far as naps are concerned I think all grown ups should be required to take them, would be a little less stress in the world.

Take Care
Tom
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leapyrtwins

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Re: Completed my CK treatments yesterday
« Reply #5 on: May 09, 2012, 06:42:53 pm »
Congratulations, Karen.

Hope necrosis is the next thing on your list  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lrobie

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Re: Completed my CK treatments yesterday
« Reply #6 on: May 09, 2012, 07:40:04 pm »
Congratulations, Karen!!

I'm so glad that you're on the opposite side of it now and on the road to having your mind on things other than your AN.  Enjoy spring and summer.  They are always good at keeping an upbeat mood.

Lisa
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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

KBL

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Re: Completed my CK treatments yesterday
« Reply #7 on: May 09, 2012, 08:37:27 pm »
 :D Yay Karen!
I was so happy when my CK was over!  Treat yourself to something special, some good chocolate and a pedi! 

Blessing, Karen L.  :)
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5.6 cm. left side retrosigmoid surgery January 2010.  Dr. Villavicencio, Boulder, CO  Cyberknife April 2010  Left side  facial paresis started September 2010.  Gold weight implant Dec. 2010.  Total hearing loss on left side.  As of today, tumor still appox. 28x18x8 mm

chloes mema

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Re: Completed my CK treatments yesterday
« Reply #8 on: May 10, 2012, 08:13:34 am »
Jim

No, it wasn't as bad as my vivid imagination thought it would be but it wasn't the most fun I've had lately.  Glad it's over with, I can get back to living my life although it will be a slightly different life now.   ;)


Karen
Logged
Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

cindyj

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Re: Completed my CK treatments yesterday
« Reply #9 on: May 10, 2012, 11:33:27 am »
Yep, get back to living life, Karen!  Glad the treatments are behind you!

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

ash

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Re: Completed my CK treatments yesterday
« Reply #10 on: May 17, 2012, 05:52:55 pm »
Hi Karen,

I finished my CK at Stanford on 5/11/2012, I hope everything goes well for you. I also did "Treatment Journal" under "Radiation" to help people understand what they may be in for if they chose CK.

Bill
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Born deaf in left ear, Diagnosed AN in right ear 2/1/ 2010 4 x 3 x 2mm; 8/1/2010 4 x 3 x 4mm; 9/1/2011 6 x 4 x 4 mm; 3/1/2012 8 x 4 x 4mm; Recommendations: U of Penn-GK; Stanford-CK; NY-CK; Cooper-Novalis; Pittsburgh-GK; HEI- still waiting ; Treatment: Stanford-CK 5/10/2012 (Dr. Chang, Dr. Soltys)

Tumbleweed

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Re: Completed my CK treatments yesterday
« Reply #11 on: May 18, 2012, 01:06:02 pm »
Congrats on your new Toastie Postie status, Karen! The worst is over. Here's wishing you smooth sailing while your AN dies.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

chloes mema

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Re: Completed my CK treatments yesterday
« Reply #12 on: May 18, 2012, 04:12:33 pm »
TW

Oh, good!  Something new to look forward to - necrosis!   :D  That word just sounds 'bad' but I know it's the best thing that can happen, right? 

Karen
Logged
Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

Bobette

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Re: Completed my CK treatments yesterday
« Reply #13 on: May 19, 2012, 09:53:33 am »
Karen, you made me laugh!  Yes, necrosis is a beautiful word for us ANers!  ;D   Please keep us posted. 

Bobette
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Tumbleweed

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Re: Completed my CK treatments yesterday
« Reply #14 on: May 20, 2012, 09:53:46 pm »
Yeah, Karen, necrosis is what you want. It is not to be feared in the slightest, but celebrated. And whether it shows up on your MRI or not, it will happen. (Sometimes it occurs in between MRI series and isn't visually apparent on the before and after images.) Your AN is on its way outta here.

Best wishes,
TW
Logged
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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