Author Topic: My Personal Gamma Knife Treatment Journal started June 10, 2012  (Read 60377 times)

MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #60 on: August 24, 2012, 03:19:11 pm »
Liz,

How ya doin? Didn't hurt, I was only startled! I am ok.  Thanks though!

Mike

No symptoms yet.
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

skipg

  • Full Member
  • ***
  • Posts: 197
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #61 on: August 24, 2012, 06:24:30 pm »
Hi mike Mike, I did a similar thing last month but it was the dog. He is the same color as the rug (tan) and when it is dark he blends right into the carpet. I was walking rather quickly down a dark hallway where there is usually no obstacle, but the dog decided to sleep across the hallway. I went flying and he went running and my wife awoke in a panic and started yelling about me starting to be unsteady at night. I tried to tell her "it was the dog", but he had run to his bed and was like "who me?". Anyway, no damage done and I think my wife finally believed me. Glad we are both ok.
Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

LizAN

  • Sr. Member
  • ****
  • Posts: 354
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #62 on: August 26, 2012, 10:02:51 pm »
Hi, Mike,

I'm doing well.  Thanks for asking!

I fell a couple of weeks ago and landed hard on my hip.  It shook me up, but fortunately, I was okay after icing it to prevent swelling.  It was a little hard on my confidence, but I've recovered from that, too.

I had been so careful, but as I get better, I also get more relaxed and less deliberate when I'm moving.

Can your wife sleep through your turning the light on?

Liz
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #63 on: August 27, 2012, 09:38:13 am »
Dear LizAn,

My wife doesn't mind as much as when I fall and startle her out of a sound sleep! Much different because while it is a minor annoyance she has decided to live with it.

Skip, that must have hurt! Is the dog ok? I know you are! These are the accomodations that we all have to make to enjoy our collective safety to light the areas in which we walk.
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

skipg

  • Full Member
  • ***
  • Posts: 197
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #64 on: August 27, 2012, 11:43:50 am »
Mike the dog was fine as he sheepishly laid on his bed (where he should have been in the 1st place) and innocently pretended to sleep. Another AN story.
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

LizAN

  • Sr. Member
  • ****
  • Posts: 354
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #65 on: August 30, 2012, 11:59:58 am »
Mike,

How about an LED head lamp to light your way, or even a regular flash light?  Would that be enough?

I use a head lamp outside to walk the dog at night.  It does not feel like enough for me, but the ground is very uneven and we live out in the country where there are no city lights.

Liz
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #66 on: August 30, 2012, 01:08:32 pm »
LizAN,

What a bright idea! That's an excellent suggestion. A headlight that straps on. Neat!

 A couple of years ago, I actually had a cane with a light in it! Did you know that? If you look for them online, you can get them! I'll be looking for one soon as my regular cane has seen it's last days of usefulness!

Mike


PS no symptoms besides facial twitching yet (and that only comes inerMITTently!)

Mike

1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

LizAN

  • Sr. Member
  • ****
  • Posts: 354
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #67 on: September 01, 2012, 08:50:36 pm »
I've been using head lamps since the days when I lived way out in the country and had to feed horses late at night, and I had no barn.  It was quite an adventure.

Let me know how it goes.  A lighted cane is a great idea.

Liz
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #68 on: September 10, 2012, 01:48:31 pm »
LizAN,

it is called the Pathlighter and has a lighted clear plastic tube at the bottom half of it the problem I had with it when I had it a while back was that I was careless and one day while I dropped it, I crushed the botton end of it the part that turns it on and off. So I quickly replaced it with an adjustable aluminium cane easily purchased at CVS. Now that cane needs replacing as well!


Bother!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

JWW

  • Jr. Member
  • **
  • Posts: 80
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #69 on: September 10, 2012, 08:08:54 pm »
Hunting: Cabela's 4-Led Camo Cap$29
 (1 store)

JWW

  • Jr. Member
  • **
  • Posts: 80
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #70 on: September 10, 2012, 08:12:15 pm »
Description

The LEDs in this hat provides bright illumination while keeping your hands free for other tasks. Two 5mm narrow-angle LEDs for distance spotting and two 3mm wide-angle LED floodlights for close-range tasks.LEDs produce 100,000 hours of run time. One size fits most. A single lithium coin CR2032 battery provides 50 hours of run time. One size...more



MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #71 on: September 11, 2012, 08:03:55 am »
Dear JWW,

Good advice thanks.


Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

MDemisay

  • Hero Member
  • *****
  • Posts: 892
  • Forever Thankful for Supportive ANA Friends!
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #72 on: September 14, 2012, 11:03:11 am »
To All,

I just past my four month mark on the 11th. I'm very happy to report that I have no new symptoms. Have a nice weekend everybody, pain-free!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #73 on: September 14, 2012, 11:08:01 am »

just past my four month mark on the 11th.  I'm very happy to report that I have no new symptoms.  Have a nice weekend everybody, pain-free!

Mike ~

Congratulations! - and thanks.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

skipg

  • Full Member
  • ***
  • Posts: 197
Re: My Personal Gamma Knife Treatment Journal started June 10, 2012
« Reply #74 on: September 17, 2012, 05:58:39 pm »
Congrats Mike, I trust you had a good celebratory weekend.
Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12