Author Topic: Titanium mesh and alloys. Our mesh is not pure Titanium  (Read 2621 times)

Mei Mei

  • Hero Member
  • *****
  • Posts: 1278
Titanium mesh and alloys. Our mesh is not pure Titanium
« on: August 04, 2012, 10:49:20 pm »
I saw an Ehlers Danlos Syndrome specialist on Wed. and he suggested that I had an allergy to the mesh because it wasn't pure Titanium.   I searched on the internet and found a supplier that said they sent samples to Johns Hopkins.  They were in China and I asked them what was in the alloy.  The woman said that she would  not tell me until I placed an order.   Later someone from her company said that the alloy contained Nickel which I am very allergic to.   My friend gave me a necklace earrings  set for my birthday a few years ago.   My neck started bleeding as did my ears.    A few years later a friend gave me a necklace she got for me from EBay.   I wore it for a few days and my neck was really bleeding.   I looked on the internet and there was a group of people talking about their allergy to Nickel.   My dermatologist told me not to wear costume jewelery and gave me cortisone cream to help out the outbreak.   I just couldn't wear anything with nickel.   Now I find out that the Titanium mesh is not pure Titanium but contains Nickel.    The nurse sent me the brochure from the supplier:  Stryker and gave the components.   I sent this to my friend, who is a jewelers and mettalurgist.   Now I am facing the project of getting this thing out of my hear.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

LizAN

  • Sr. Member
  • ****
  • Posts: 354
Re: Titanium mesh and alloys. Our mesh is not pure Titanium
« Reply #1 on: August 09, 2012, 08:21:32 pm »
I saw an Ehlers Danlos Syndrome specialist on Wed. and he suggested that I had an allergy to the mesh because it wasn't pure Titanium.   I searched on the internet and found a supplier that said they sent samples to Johns Hopkins.  They were in China and I asked them what was in the alloy.  The woman said that she would  not tell me until I placed an order.   Later someone from her company said that the alloy contained Nickel which I am very allergic to.   My friend gave me a necklace earrings  set for my birthday a few years ago.   My neck started bleeding as did my ears.    A few years later a friend gave me a necklace she got for me from EBay.   I wore it for a few days and my neck was really bleeding.   I looked on the internet and there was a group of people talking about their allergy to Nickel.   My dermatologist told me not to wear costume jewelery and gave me cortisone cream to help out the outbreak.   I just couldn't wear anything with nickel.   Now I find out that the Titanium mesh is not pure Titanium but contains Nickel.    The nurse sent me the brochure from the supplier:  Stryker and gave the components.   I sent this to my friend, who is a jewelers and mettalurgist.   Now I am facing the project of getting this thing out of my hear.
Mei Mei

Oh, Mei Mei, how disheartening!  It would explain a lot of your experience.  I can hardly believe they would put nickel in a titanium implant, given how many people are allergic to it!

I specifically asked Dr. Slattery whether the titanium mesh he uses was pure titanium or an alloy.  I didn't think to ask for a brochure from the supplier.

Liz
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz