Facebook Group - Acoustic Neuroma / Vestibular Schwannoma Group

[pimento]

I have been copying and pasting the ANAUSA local support meetings in our group, so I thought I would let you guys know that we exist! We are a Global based Facebook group, which means we get to meet patients and families from all over the world. Right now we are at about 1,080 members and growing! If you are having trouble finding us, be sure you are searching in Global groups.

Come check us out Not sure if the link below works, but give it a try.

http://www.facebook.com/groups/8190517727/

Cheers,

Kelly

[PamJ]

Hi Kelly yes your link does work I'm in England and just tried it

[pimento]

Excellent! thanks for checking, Pam.

Also take note everyone that I it is an 'invite only' group for the sole fact that I got bombarded by spambots joining. I hope that noone feels offended by it.

thanks again and welcome to those who have already joined!

Kelly

[PamJ]

Doess it mean if we talk on facebook all out friends can read it

[JWW]

Good question PamJ, I don't want everyone on my Facebook page to be reading what I am saying on this new group webpage!

I have already received a spam message from this new website.  Somebody by the name of Abraham Crawford wrote: "Dear June, your profile captivate my attention. I will like both of us to no each other."

Can you say BARF!!! Might have to leave this wonderful new group.

JW

[pimento]

It all depends how you set your privacy settings. I have mine set pretty high so most people cannot see my profile at all. But do know that it is Facebook after all, and you may not want to have all of your information out there. It is a matter of preference.

I do pay close attention to the goings on in the group and I urge all of the members to notify me if they see any behaviors that seem inappropriate.

I can assure you that this Abraham Crawford is not a member of the group, you were hit by a random fake account unfortunately.

I understand that Facebook is not everyone's cup of tea, but we are over 1,080 strong and we would love the group to grow even larger. I will not take offense if you decide it is not for you.

Cheers!
Kelly