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Author Topic: 6 mo post op MRI done....now waiting for results  (Read 4185 times)

mindyandy

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6 mo post op MRI done....now waiting for results
« on: August 28, 2012, 05:41:05 am »
Hi guys. I had my 6 mo post op MRI yesterday. 6 mo already???? CRAZY huh? Well it will take a few days for Dr. Friedman to get the results. Once I know then I will post them. Remember my situation is different. I do still have my AN but it should be smaller than pre op. This is because I had surgery to take as much off my trigeminal nerve to take the pain away & Dr. Schwartz said my AN has not grown since my CK done back in 2008. Since my hearing was perfect he didn't want to risk me losing it. My hearing is still perfect so I am thankful. I do still have some facial twitching but he said that is not hurting anything so I learn to deal with it.

Thank you for all the support I receive here.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

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Re: 6 mo post op MRI done....now waiting for results
« Reply #1 on: August 28, 2012, 12:35:24 pm »
Hi Mindy, please let us know the results. 

With caring

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

mindyandy

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Re: 6 mo post op MRI done....now waiting for results
« Reply #2 on: August 30, 2012, 01:01:52 pm »
Thanks Karen
Dr. Friedman phoned me this morning. From the report he got stable/slight shrinkage from my last MRI scan Nov 2011. He said good news and let repeat in a year  ;D
I asked what the measurements were and the report did not say. He said if I sent him a copy of my scan he will measure for me. I have to say Dr. Friedman & Schwartz are hands down wonderful.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

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Re: 6 mo post op MRI done....now waiting for results
« Reply #3 on: August 30, 2012, 01:52:10 pm »
Oh Mindy, I am so relieved for you!!!!!!  Hooray!!!!  We get to all celebrate with you this good news.   ;D

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

lrobie

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Re: 6 mo post op MRI done....now waiting for results
« Reply #4 on: August 30, 2012, 01:57:05 pm »
Great news, Mindy!!
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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

Jim Scott

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Re: 6 mo post op MRI done....now waiting for results
« Reply #5 on: August 30, 2012, 02:03:51 pm »
Minday ~

The words 'stable' and 'shrinkage' are like poetry when heard by a post-radiation AN patient! Congratulations!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: 6 mo post op MRI done....now waiting for results
« Reply #6 on: August 30, 2012, 04:41:46 pm »
Mindy .....

Good news, indeed!!!  And, I agree that Dr. Friedman and Dr. Schwartz are wonderful!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

davecz

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Re: 6 mo post op MRI done....now waiting for results
« Reply #7 on: August 31, 2012, 08:43:21 am »
Hi Mindy,

That's great news! And it's crazy that six months has already gone by. That was fast. I haven't been on here much, so this was the first post I've read in a while. Glad to hear your report. I have two months to go before my MRI. I'm sure that time will approach very quickly. I'm finally returning to normal except for some taste issues. In fact, I just returned from a really fun four days in Yosemite. I even did the hike up Half Dome with no problem. That was great!

Well, I'm off to work. Congratulations on your recent report :)

Dave
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Diagnosed 11/23/2011, R-AN, 3.0cm, Age: 51, very
athletic, symptoms; Sudden hearing loss R Ear, balance
 issues, fatigue, tinnitus. Surgery HEI, 04/27/2012, Dr.
Friedman & Swartz. Post op, translab, 100% tumor removal,
Facial nerve intact, no balance issues, released 3 days post op,
Doing grea

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Re: 6 mo post op MRI done....now waiting for results
« Reply #8 on: August 31, 2012, 08:46:16 am »
What a fantastic recovery!  :)

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

mindyandy

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Re: 6 mo post op MRI done....now waiting for results
« Reply #9 on: September 07, 2012, 09:59:15 am »
Thank you everyone. Today is offically 6 months post op. I can say that I feel good except a few minor issues such as facial flutters/twitching, slight numbness off and on(had major numbness post op)same spots, and tingling/painfree zaps in my lip. I'm guessing my trigeminal nerve is still trying to mend. As long as the pain TN pain is gone its all good  ;D

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

It is what it is

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Re: 6 mo post op MRI done....now waiting for results
« Reply #10 on: September 07, 2012, 12:31:27 pm »
Oh Mindy, that is wonderful news!!!  I'm so glad to hear that you are feeling as well as you are.  I sure agree about those doctors of ours.  :)

karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.
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