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Author Topic: Just got my surgery date  (Read 8378 times)

debraclark

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Just got my surgery date
« on: September 10, 2012, 02:51:45 pm »
Well, just got my surgery date, September 25, 2012 at Jefferson Neuroscience Hospital, don't know what time yet. Have to go next week for pre admission testing and another MRI. I have been waiting to know when the date was, now the butterflies are in my stomach.  :o Will be retrosigmoid procedure.
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New Jersey- Female- 54
Self Diagnosed July 6, 2012
Officially Diagnosed August 16, 2012      3CM AN
Surgery at Jefferson Neuroscience Sept. 25, 2012
Removed 99.9% of tumor-10 hour surgery-Retrosigmoid

alabamajane

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Re: Just got my surgery date
« Reply #1 on: September 10, 2012, 02:57:43 pm »
Our prayers and thoughts will be with you,, it is a scary time for sure but try to stay positive about it and realize things will go well and soon you will be recovering and beginning to feel better. Jane
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It is what it is

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Re: Just got my surgery date
« Reply #2 on: September 10, 2012, 05:02:25 pm »
Hi and thanks for letting us know.  It sure makes it more real when the date is set.  You did a good job listening to your body in diagnosing the tumor and you will do a great job at listening to your body while you heal from surgery.  There is a lot of wisdom on this list.  I hope you ask whatever questions you have that might help you feel less anxious.  With caring,   Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

mindyandy

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Re: Just got my surgery date
« Reply #3 on: September 10, 2012, 05:24:50 pm »
I responded to your FB post. I too had retro. 6 months post op here. If you have questions don't hesitate to ask. I was a wreck. I also post how people felt or thought of when they first woke up. If you want to do a search you can find it.

Mindy
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

debraclark

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Re: Just got my surgery date
« Reply #4 on: September 10, 2012, 05:57:43 pm »
Thank you!  :)
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New Jersey- Female- 54
Self Diagnosed July 6, 2012
Officially Diagnosed August 16, 2012      3CM AN
Surgery at Jefferson Neuroscience Sept. 25, 2012
Removed 99.9% of tumor-10 hour surgery-Retrosigmoid

leapyrtwins

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Re: Just got my surgery date
« Reply #5 on: September 10, 2012, 08:24:05 pm »
September 25th is a lucky day; I'll be 51.

Good luck with your surgery.  I'll keep you in my prayers.

Jan
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Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

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millie

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Re: Just got my surgery date
« Reply #6 on: September 11, 2012, 06:14:36 pm »
I will pray for you too Debra.  And remember to pray for me- my surgery is October 17th in NYC.
We can do this!
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It is what it is

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Re: Just got my surgery date
« Reply #7 on: September 11, 2012, 06:27:23 pm »
Prayers to both of you.  You are doing it.  :)
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

debraclark

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Re: Just got my surgery date
« Reply #8 on: September 12, 2012, 11:59:52 am »
Thank you everyone, and Millie I will keep you in my prayers too.  :)
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New Jersey- Female- 54
Self Diagnosed July 6, 2012
Officially Diagnosed August 16, 2012      3CM AN
Surgery at Jefferson Neuroscience Sept. 25, 2012
Removed 99.9% of tumor-10 hour surgery-Retrosigmoid

geexploitation

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Re: Just got my surgery date
« Reply #9 on: September 14, 2012, 09:02:37 am »
It looks like two of us have birthdays on your surgery date; I'll be 35.

Congratulations on taking this step and good luck!

Sean
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=========================
41 mm x 24 mm x 28 mm probable AN diagnosed 1/10/2012.
Surgically diagnosed 7/9/2012 as TRIGEMINAL schwannoma and removed via retrosigmoid at MGH in Boston, MA by Drs. Barker and McKenna.

Jim Scott

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Re: Just got my surgery date
« Reply #10 on: September 14, 2012, 11:11:18 am »
Hi, Debra ~

Allow me to add my assurance of my thoughts and prayers being with you and your family now and on The Big Day (September 25th).  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

debraclark

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Re: Just got my surgery date
« Reply #11 on: September 14, 2012, 12:56:22 pm »
Thank you for your well wishes and prayers, it means alot.
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New Jersey- Female- 54
Self Diagnosed July 6, 2012
Officially Diagnosed August 16, 2012      3CM AN
Surgery at Jefferson Neuroscience Sept. 25, 2012
Removed 99.9% of tumor-10 hour surgery-Retrosigmoid

jenichol

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Re: Just got my surgery date
« Reply #12 on: September 16, 2012, 07:37:43 pm »
Hi Debra,

Just wanted to add my prayers your way.  I am almost 3 mos retrosigmoid approach.  Best wishes to you.  You WILL get through this.  Trust your surgeons. 

Jan
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48 yo female --3+cm right sided AN. Retro sig removal 6-22-12 at UVA.  SSD right ear.  HA.  Constant Loud Tinnitus. Fullness. Imbalance.

debraclark

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Re: Just got my surgery date
« Reply #13 on: September 19, 2012, 08:21:02 am »
Thank you Jan! I just had all my preop stuff done yesterday with medical and cardiac clearance, MRI for OR, etc. Now just have to wait for the day before surgery to get my time. Everything is moving along quickly now. Yesterday went so smoothly with all my appointments and tests. I pray for my surgery to be the same way. =) Thanks again everyone for your prayers, well wishes and comments.  :D
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New Jersey- Female- 54
Self Diagnosed July 6, 2012
Officially Diagnosed August 16, 2012      3CM AN
Surgery at Jefferson Neuroscience Sept. 25, 2012
Removed 99.9% of tumor-10 hour surgery-Retrosigmoid

It is what it is

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Re: Just got my surgery date
« Reply #14 on: September 19, 2012, 08:34:15 am »
It is good to hear how well everything went in preparation for surgery.  You continue to be in my thoughts and prayers.

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.
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