Author Topic: Double Vision  (Read 10996 times)

PamJ

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Double Vision
« on: December 07, 2012, 01:47:53 pm »
I have been on this site for a few months now and read everything but haven't seen anyone with the same problem as me.  I had my AN out 20 months ago and had double vision.  Drs decided to inject with botox because of facial palsy I couldn't blink.  After 3 months botox wore off and still double vision.  The next step was to have my eye partially stitched down which I had for over a year, when eye opened still double vision and eye has dropped.  Has anyone else had this problem for as long as me.  I see the eye surgeon in January.
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

Karen

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Re: Double Vision
« Reply #1 on: December 09, 2012, 06:23:00 pm »
i HAD ABOUT THE SAME THING with double vision.  After they opened my eye i still had double vision.  I ended up having 3eye muscle surgeries done to straighten my eye.  Mine was off sideways and up and  down.  Now I have a small prizm in myglasses and no double vision.
Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

PamJ

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Re: Double Vision
« Reply #2 on: December 10, 2012, 02:55:14 am »
Hi Karen thanks for your reply.  I've had different prisms (stick-on ones) on glasses to see if it would help before making glasses with prisms built in but didn't work.  I notice when I'm looking at something say the TV I can see the double vision get worse as if my eye is slowly dropping down more.  I've been told I'll have to have the muscles stitched.  Was the op very gruesome I've had so many ops but still get nervous at the thought of more.
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

Karen

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Re: Double Vision
« Reply #3 on: December 30, 2012, 11:03:19 pm »
The eye muscle surgery was    nothing at all.  I don't have any feeling in that cornea so that helped but it wasn't bad at all .I had 3 of them done!!!  any other questions?
Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

PamJ

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Re: Double Vision
« Reply #4 on: December 31, 2012, 06:19:15 am »
Hi Karen I'm seeing the eye surgeon on 10th January and am counting the days to see him I have been told it will be another op but as long as it gets rid of the double vision I don't mind.  It's good to hear the op wasn't that bad for you.  Did you have it done under local or general and did they lift your eyelid and eyebrow at the same time.  Sorry for all the questions.  Did you have it done in the UK
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

Karen

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Re: Double Vision
« Reply #5 on: December 31, 2012, 12:45:50 pm »
I had mine done in the united States.  I was asleep when they did mine.  I never ha my eyebrow lifted.  Where do you live?
Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

leapyrtwins

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Re: Double Vision
« Reply #6 on: December 31, 2012, 12:49:42 pm »
Someone on the Forum had trouble with double vision for months.  I searched but can't find her posts; it was about 4 or 5 years ago.

Jim Scott or any of the other "old-timers" remember who I'm talking about??

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

leapyrtwins

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Re: Double Vision
« Reply #7 on: December 31, 2012, 12:58:43 pm »
Not the thread I was looking for, but this one might be helpful http://www.anausa.org/smf/index.php?topic=3754.msg40349#msg40349

Just found the Forumite I was looking for - calimama (aka Trish) from Canada.  Trish had double vision problems for over a year - if I'm reading her posts correctly.  You may find it helpful to look at her posts.  Just search on calimama and you'll find them.

Jan
« Last Edit: December 31, 2012, 01:12:36 pm by leapyrtwins »
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

PamJ

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Re: Double Vision
« Reply #8 on: December 31, 2012, 03:12:26 pm »
Karen I'm in the UK but feel better now I've spoken to someone who's had it done, thanks. 
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

PamJ

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Re: Double Vision
« Reply #9 on: December 31, 2012, 03:21:43 pm »
Jan thank you for the link I've just read it and there's someone on there also in the UK who had exactky the same as me, AN removed, double vision, botox and still double vision so after reading your link and Karen telling me about having her double vision sorted out i feel a lot more confident having it done.  Pam
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

leapyrtwins

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Re: Double Vision
« Reply #10 on: January 01, 2013, 11:00:31 am »
Pam -

hope all goes well.  Please keep us posted.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

PamJ

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Re: Double Vision
« Reply #11 on: January 01, 2013, 11:40:30 am »
Thanks Jan I'm counting the days till I see the surgeon I've had this double vision for 20 months and it's really getting me down
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

leapyrtwins

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Re: Double Vision
« Reply #12 on: January 05, 2013, 07:06:29 pm »
Hang in there, Pam!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

PamJ

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  • Posts: 174
Re: Double Vision
« Reply #13 on: January 06, 2013, 07:02:07 am »
Thanks Jan only 4 more days to go
March 2011 - Acoustic Neuroma translab surgery
July    2011 - Tarsorrhaphy surgery
June   2012 - BAHA abutment surgery
July    2012 - Tarsorrhapy reversed
Sept   2012 - BAHA (Pronto Pro) fitted
Sept   2013 - Diplopia Surgery
April   2014 - Platinum chain surgery

Elizabeth Cuttler

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Re: Double Vision
« Reply #14 on: February 19, 2013, 03:12:12 pm »
I had seven episodes of double vision ranging from three months to seven; I was diagnosed with a meningioma, and I was treated with radiation (32 sessions) in 2000. The second week of the treatment the double vision went away.
A month ago I started seeing double, but this time vertically. I had a brain MRI, I saw the neuro-ophthalmologist twice and she can't find what's wrong.
I get this vertical double vision in certain positions; I don't have it all the time, but it is very annoying.
I will see another doctor in an hour; let's see if someone can figure out what's going on.
At the same time, I am having terrible headaches, and the right side of my neck is hurting also.
Wish me luck, got to go.

Elizabeth