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Author Topic: Does anyone have this?  (Read 2784 times)

Alison

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Does anyone have this?
« on: December 08, 2012, 07:24:59 am »
 Hi,

Can I ask if anyone had this before treatment( or after).When I lie down and the back of my head presses against the back of the cushion on the sofa I feel the AN side of my head go numb/throbbing and the tinnitus gets overpowering. It eases after a while when I sit up again. Also does anyone find the tinnitus and full ear worse in this cold weather? My head is pounding AN side today and back of head/neck hurts.

Bit worried it may be brainstem related?

(I'm awaiting treatment SRS ).

Thanks, Alison
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CPA and IAC AN 14.5mm x 10mm x 8mm diagnosed August 2012 treatment in UK SRS Linac with headframe  Dec 2012 MRI 4 month post April 2013 was 18mm x 13 x 7.8 (this April MRI was not measured until Jan 2014) MRI January 2014 was 17mm x 11.4 x 8.3 (one year post)

Sam-NewZealand

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Re: Does anyone have this?
« Reply #1 on: December 13, 2012, 02:22:30 pm »
yes me! ... gets worse at night too or after a busy day
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MRI on 16 Nov 2012 diagnosed - 29 years old!
Left AN 2.7 x 2.6 x 2.4 cm - pressing on brainstem & sensory nerve for face, full/numb ear feeling, constant tinnitus & major hearing loss in Left ear
7 hr AN surgery 25 Jan 2013
2 hr CSF Leak surgery 16 Feb
SSD Left, dry eye & slight Facial Nerve Damamge

cherrypiper

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Re: Does anyone have this?
« Reply #2 on: December 19, 2012, 10:17:14 pm »
my Tinnitis still gets worse with allergies , pollen and such, and fronts of weather yes......

thats when i know to take the extra meds for the allergies
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10 mm x 2.4mm surgery date 12/03/07

glad to be here

millie

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Re: Does anyone have this?
« Reply #3 on: December 20, 2012, 08:19:08 pm »
My symptons seem to worsen when I get stressed or tired.  But right now, my earinging is not even going on...I csn't believe it!
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