A VISIT WITH MY NEW NEURO..........

[LISAMARIE]

Hi Everyone......
I have just found out that my Tumor is not
a Acoustic Neuroma, and more likely a glioma
Tumor. It is located on the FIFTH Nerve and it
is pressing on the memory portion, and causing
problems.

We are in the process of finding a Neuro surgeon
and iv'e been told it must come out, and that there
is no way of telling if it's malignant or benign until it
is removed. I went from hey it's a benign tumor, to
hey we won't know till it comes out, that makes me
a lil nervous.

Have any of you been thru this same journey, or
perhaps I have something that is totally different from
AN? I'd love to hear about your experiences, i'm
not real sure if I still belong in the AN boards, or if I have
a different condition all together......

Thanks for your help!!!!!!!

Lisa marie......

[Mo]

Lisa Marie,
First let me say  that you are doing the right thing by hunting for information.  Knowledge is power!  Do the research and go with your gut feelings.  I will keep you in my prayers.
Mo

[Russ]

Hi Lisa
  I wonder if indeed this is a malignant glioma, whether surgical treatment for this would differ greatly than for AN?
http://www.mskcc.org/mskcc/html/9738.cfm
  I had thought 5th cranial nerve tumors affected the trigeminal nerve. If that's the case, you 'may' be in the right group.
  Seems you need it out ( no choice really ) and then one day and thing at a time! You could consider a second or third opinion or at least other MRI interpretations. Such as at the Sloan Ketterling link I enclosed.
  Russ