Author Topic: Getting Ahead of Myself  (Read 7298 times)

MDemisay

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Getting Ahead of Myself
« on: January 12, 2013, 12:41:54 pm »
To all of my Well meaning AN friends,

I was feeling so elated yesterday with no facial tremors in days,
It truly felt good and right that I was passing the 7 month mark I felt
So incredibly happy...

However, - felt a little twinge or remnant? Of a facial twinge this morning!

Has this ever happened to anyone else here?

I feel that I let everybody down, that I should have waited to get some
Concrete results back from a follow up CAT  scan with contrast.

I apologize!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Jim Scott

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Re: Getting Ahead of Myself
« Reply #1 on: January 12, 2013, 01:09:06 pm »
Mike ~

Hardly any need to apologize for wanting to share good news with fellow AN patients.  That your celebration was a bit premature is not unusual as these twitches can manifest themselves for some time and we are not always as patient as we need to be as full recovery can take years, not months. 

I wish you continued healing and more reasons to post good news in the months to come.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MDemisay

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Re: Getting Ahead of Myself
« Reply #2 on: January 12, 2013, 08:41:03 pm »
Thanks for understanding Jim!


I thought that because I hadnkt had a spasm in days that they would go away...I guess I got overeager!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

c_mcq

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Re: Getting Ahead of Myself
« Reply #3 on: February 26, 2013, 01:08:16 pm »
absolutely no need to apologize.  healing is an ongoing process for the rest of your life.  you will notice little changes always and want to share them, continue to get excited about the change!  ever little bit is a step forward. 

MDemisay

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Re: Getting Ahead of Myself
« Reply #4 on: March 23, 2013, 09:23:00 am »
.Dear Jim and C Mq,


I really feel like "I jumped the shark" I posted on my good feeling without waiting a while for it to be lasting and posting on that. I may have done a disservice to those people hoping that this AN adventure is hopeful and engaging. For that I apologize!

To all of you who want to feel better about the decisions that you have to make about your treatment, please know that I have my ups and my downs.  6eeling the way I did when I posted that I had no symptoms was misleading .


I currently am waiting to go for a CT scan and to be seen for my follow up with Dr. Sisti.

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

grammyslim

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Re: Getting Ahead of Myself
« Reply #5 on: March 23, 2013, 09:19:31 pm »
Experiencing same thing twitch better than spams
Feel better my friend
1.4 cm diagnosed 01/12
significant hearing loss rt side
total balance loss rt side - AN side -
left side already compensated (who knew)
Radiation completed May 2012 - all systems are GO -- so happy I chose radiation near home.

arizonajack

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Re: Getting Ahead of Myself
« Reply #6 on: March 24, 2013, 11:31:49 am »

I really feel like "I jumped the shark" I posted on my good feeling without waiting a while for it to be lasting and posting on that.


No biggie.

I've been posting my optimism from day one after GK.

And I have no idea what will happen tomorrow.

3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

MDemisay

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Re: Getting Ahead of Myself
« Reply #7 on: March 26, 2013, 09:07:02 am »
Thanks Jack!

I cannot stress enough how grateful I am to have someone (all of you) who knows what it's like to go through something like this! It makes not knowing what comes next almost tolerable!

Thank you!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!