Starting Cyberknife...

[Guitarmn50]

Well, I finally followed it through, and the watch & wait is over!  Today, was DAY ONE!   Well, everything went very well.  I remained motionless--even though I had a few bouts of Bronchitis, and swallowing flem (during treatment) it all went perfectly.  Post op, I could tell  something happened: my legs felt a bit heavy..maybe lightheaded.  I do have a slight headache, but that might just be from my sore neck that was bothering me before I went in ! Jeez! for me that's "old hat !"      I didn't get a good night sleep last night, and fortunately, I've been able to rest this afternoon...slept ffor about an hour, and then I woke up.     I'm an insomniac anyway! Well, we'll see what happens tonight.  I haven't taken any pain meds today--I had the Decodrin (sp) at treatment time.  I also have some Tylenol with Codine--though that might not be such a great idea.

I'll stay regular on the forum now... dedicated here!!!!   Walter

[KBL]

Good luck Walter.  I had 5 treatments, 60 minutes each.  I needed Ativan to get through them.  It relaxed me enough that I could doze off during the sessions.  Then I came home and napped.  I didn't need pain killers during that time.  I also took a steroid after each treatment, the steroid caused sleeplessness at night for me.  Keep us informed on how it all goes.  Karen

[Guitarmn50]

Thank you Karen – I really appreciate that.      Yes, I will keep everyone informed.

[Guitarmn50]

Well, number three went pretty good.  Model patient here, I guess.  No issues at all today, but I didn't get a good night sleep due, I believe, to the Decodrin.  Also, woke up  around 2am with a slight stinging sensation on my Neuroma side...which dissipated after about 5 minutes. Just one more to go and I'm done !   

[Palace]

Marin County in the "bay area," huh?  Well, we're neighbors: I'm Joan Rivers in the Santa Cruz Mountains.  (wearing a rubber mask at times for a disguise)  Sometimes, I go out as Rita Hayworth since I used to sit next to her at "The Smokehouse Restaurant" in Toluca Lake, CA.

But seriously, CK left my head feeling heated even if the sun was exposed to my hair for seconds.  This sensation lasted about a year for me.

I didn't use the steroid drug since (yes, believe it or not) I have ended in ER from a reverse reaction of steroids.  (swelling and couldn't breathe)

I'm assuming you are a Stanford treated person.  (who is your team there?)

In any event, congratulations that as of today, the treatment is behind you.



Palace

[Guitarmn50]

Marin County in the "bay area," huh?  Well, we're neighbors: I'm Joan Rivers in the Santa Cruz Mountains.  (wearing a rubber mask at times for a disguise)  Sometimes, I go out as Rita Hayworth since I used to sit next to her at "The Smokehouse Restaurant" in Toluca Lake, CA.

But seriously, CK left my head feeling heated even if the sun was exposed to my hair for seconds.  This sensation lasted about a year for me.

I didn't use the steroid drug since (yes, believe it or not) I have ended in ER from a reverse reaction of steroids.  (swelling and couldn't breathe)

I'm assuming you are a Stanford treated person.  (who is your team there?)

In any event, congratulations that as of today, the treatment is behind you.



Palace

That is a condition I was completely unaware of: I'm so sorry to hear you have gone through such an unfortunate experience such as that !

For myself, I was treated at the Kaiser Permanente Cancer Research Center at South San Francisco.  Everything seems to be okay for my final day...no headaches or adverse reactions whatsoever. I did experience a little bit of insomnia over the last couple of days but nothing too detrimental. 

I'm feeling a little bit spent on this last day, but feel fairly normal otherwise.  Fortunately, this was the last day of using Decodrin, too..I guess in my case it did work.  Now, it's just a matter of watching, and wondering if the the damn thing is finished..time will tell. 

Walter 

[ppearl214]

Walter,

Have been following along and want to congratulate you for being a "Toastie Postie" (radiation post-treatment)!

Immediately post radiation, I did have "hot face" and hints of flushing but nothing that couldn't be tolerable. It calmed down and did peek out every now and then for a couple of months.  Again, nothing bad.  Wanted to send you wellness wishes and will continue to follow.

Now that I am approaching my 7 yr ANniversary of CK, passing the wellness torch to you for a successful outcome!

Phyl

[Guitarmn50]

Walter,

Have been following along and want to congratulate you for being a "Toastie Postie" (radiation post-treatment)!

Immediately post radiation, I did have "hot face" and hints of flushing but nothing that couldn't be tolerable. It calmed down and did peek out every now and then for a couple of months.  Again, nothing bad.  Wanted to send you wellness wishes and will continue to follow.

Now that I am approaching my 7 yr ANniversary of CK, passing the wellness torch to you for a successful outcome!

Phyl

Thank you Phyl !   

Well Phyl, I seem to be experiencing some of that hot face effect as well.   It comes and goes...what the heck it's only day 4 after treatment.  Like you said, It's not that bad..certainly nothing that I can't deal with as well..

Ok, I'll take that torch Phyl, and run with it to my equally bright ANniversary and move it on accordingly !    

Regards Walt